HealingWell
Search Close Search
☰

Vasculitis question

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/30/2017 2:08 PM (GMT 0)
Hi all,

Curious if folks have any suggestions for herbal or otherwise treatment of vasculitis, including temporal arteritis.

Thanks!
Posted 10/30/2017 3:57 PM (GMT 0)
I don't know of herbal treatments for it - other than treating the infection that has caused it.

Have you been diagnosed with it?
Is Temperal arteritis the same as giant cell art?

I had looked it up a few years ago when I was sleuthing out what might be wrong with me and came across Polymyalgia Rheumatica - As GCA is sometimes part of that.

I recall the treatment being steroids for a year or two.

The test for GCA is a biopsy. Have you had one done?

Mike - do you have bad headaches?
Posted 10/31/2017 2:24 PM (GMT 0)
Hi
I know Buhner talks about protecting the endothelial function. He has some suggestions in his 2nd lyme book I think, but unfortunately I don't have it here.
Posted 10/31/2017 5:44 PM (GMT 0)
Mike - have you thought about going to a Rheumatologist - I believe they are the ones who diagnose GCA?

I think the biopsy is the gold standard...though, not sure if you'd want to do that.
I read that it's not too bad - as far as being invasive?

But, the Rheumy may be able to rule it out without a biopsy...just by listening to your symptoms...
Posted 11/1/2017 12:19 AM (GMT 0)
Girlie - I actually saw a Rheumy in Feb as my current LLND thought I might have it and the Rheumy then had me go to an Eye Doctor who apparently specialized in this and he said I couldn't have it because I was too young. Seriously. He said I had migraines and wouldn't do a biopsy. Needless to say I was nonplussed. So I let it go to focus on other things, but recently has crept into my mind again as a possibility.
Posted 11/1/2017 12:21 AM (GMT 0)
Thanks Red Label - much appreciated!
Posted 11/1/2017 12:23 AM (GMT 0)
What an arse - I mean - geez - you want to rule it out and never think about it again.

I did read that the biopsy isn't so bad so why not do it for peace of mind.
Posted 11/1/2017 12:29 AM (GMT 0)
Yeah - the only other thing I'll say about him is that he reminded me of an Infectious Disease doc ;)

I may try to get another opinion... Just makes sense to me.
Posted 11/1/2017 12:37 AM (GMT 0)
Do you have a raised ESR?

It is often with Temporal Arteritis.

Avg age is something like 72 and higher percentage of women get it compared to men.
So you have a couple things in your favour

Also something like 15% of people with TA also have Polymyalgia Rheumatica - you don't have PR symptoms -right?

So odds are in your favour!!
Posted 11/1/2017 12:45 AM (GMT 0)
It can be associated with Q Fever, which is another reason why I'm curious

Post Edited (Mister Mike) : 10/31/2017 6:56:06 PM (GMT-6)

Posted 11/1/2017 4:56 AM (GMT 0)
the only thing that helped with bart treatment after my sulfa induce vascultis was iv curcumin . its powerful ...and immediate . a integrative doc can order it for you compounded from az .

i had found a paper about a romainian girl using this and hbot a making a recovery
✚ New Topic ✚ Reply