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Almost 3 mos into ABX Treatment...great progress report

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Lyme Disease
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Posted 11/5/2017 12:36 AM (GMT 0)
I wanted to update the group and throw some things out there for anyone who has been on the fence about antibiotics. I started treatment with herbs a year and half ago, but 3 mos ago, I felt like I platuaed, and my symptoms weren’t getting any better, in fact I was regressing. so I switched to an ABX protocol:

Rifampin + mino (45 days)
Rifampin + Clarythromyacin (45 days) + Nystatin
Rifampin + Bactrin + Grapefruit Seed Extract +Nystatin

All the while, I’ve stayed on low dose JK, Eleuthero and Curcumin to aid in detox etc.

Ive consistently made steady progress, after the switch to Bactrin a week ago, I feel like a got down another level deeper into clearing this infection. The nagging anxiety took a big step in the right direction since my last switch to Bactrin and now my body feels like its holding up although I’ve had some flare ups of itchiness and fungus at times but physically I’m doing okay. So far, I’d say antibiotics has been worth the $$$ and potential damage to my body because I’m feeling better, and I think as long as I am improving, I’ll stay on em.

My MD says we are still just going after the Bart and haven’t really begun to go after the lyme in full yet so I’d say I’m about 12% in.
Posted 11/5/2017 1:03 AM (GMT 0)
I just quickly read your post - I only have a few minutes...but wanted to say "yay" on your improvements.

That's great.
Posted 11/5/2017 1:40 AM (GMT 0)
Hi NW_Lyme_Guy -

Glad you're making progress! It is not at all unusual to shift protocols during treatment - even more than once. It's important to understand how to read our bodies and their responses (or lack thereof) to the infections and treatment and adjust, accordingly.

I had strong responses to herbs for bart and babesia - but the herbs for Lyme that I tried did nothing - no herxing, no improvement. And like you, my Lyme sx continued to get worse and worse until I started to lose the ability to walk. I had a decade worth of severe GI issues I was working really hard to heal so I refused oral abx and started IV abx... and improved drastically.

And I even had to switch from the bart herbs to abx because the herbs were giving me gastric episodes - one landed me in the ER.

But I also stayed on herbals for everything while on abx for broader coverage. I am now in the process of transitioning back to all-herbal after 3 yrs of abx. I was chronic and undiagnosed for 16 yrs so most people won't need this much treatment but wanted to share my experience too.

Good luck and let us know how things go!

-p
Posted 11/5/2017 4:01 PM (GMT 0)
Wonderful news to read. Go, NW_Lyme_Guy, Go!
Posted 11/5/2017 4:14 PM (GMT 0)
Your post show that both routes have positive effects. So I'm a big advocate of doing both throughout a comprehensive treatment plan. Not necessarily the entire time.
Posted 11/6/2017 1:54 PM (GMT 0)
What were your symptoms prior to treatment ? Congrats on your progress
Posted 11/6/2017 6:06 PM (GMT 0)
hi

brilliant new s yay it will continue Iv heard good reviews of that rimpfampin In the uk Lots folk getting improvements Sadly its a specialist given one Seeems only llmd give this not those lucky enouyght to get treated by nhs I was not getting anywhere on herbs Alone I'm about to start combos and pulsing abx by a llmd You have lifted my mood As I think nothing wil help me It 8 months cowdens and a year buhner 2 years and big fat 0

iv been taking 6tsp of knotsweed 6 tsp gou teng 4 halh cats claw /3 eleuthero so on with other herbs
Posted 11/7/2017 8:22 AM (GMT 0)
Lookimg4acure, I cant say when my symptoms started for sure, but I’m going to go out on a limb and say I might have been exposed to lyme in utero....if not, I’m pretty sure I contracted it sexually as a young adult, however, my symptoms began in earnest in my 20s. I had a bout of chronic fatigue which forced me to change my diet (all natural no sugar etc), after4 months or so, I started getting better and this was in the 90’s, pre internet type stuff. Got re-exposed by a tick a few years ago...

I’d say I was in remission til my 40s, then I developed debilitating migraines, sore knees and neck, but the neuro stuff was what got my attention. Insomnia followed by a panic attack that lasted the better half of 12 months. Followed by depression and OCD. Followed by panic disorder and ptsd, basically life became one big suck. Tinittus, agoraphobia, I mean it was like I suddenly lost my mind or had a :mid life crisis.

I refused to believe that my brain had suddenly become imbalanced, and I loved my life and family, and didn’t believe I was having a midlife crisis, so I started searching for answers, came across Buhners book and the rest is history.

My physical symptoms are almost in remission again and the neuro ones are getting better, and would have been resolved had the first MD I went to see been trained in something other than...oh here’s Ativan and some lexapro...good luck.
Posted 11/7/2017 1:15 PM (GMT 0)
Great! Good Bartonella treatment. cool cool
Posted 11/9/2017 5:43 AM (GMT 0)

NW_Lyme_Guy said...
Lookimg4acure, I cant say when my symptoms started for sure, but I’m going to go out on a limb and say I might have been exposed to lyme in utero....if not, I’m pretty sure I contracted it sexually as a young adult, however, my symptoms began in earnest in my 20s. I had a bout of chronic fatigue which forced me to change my diet (all natural no sugar etc), after4 months or so, I started getting better and this was in the 90’s, pre internet type stuff. Got re-exposed by a tick a few years ago...

I’d say I was in remission til my 40s, then I developed debilitating migraines, sore knees and neck, but the neuro stuff was what got my attention. Insomnia followed by a panic attack that lasted the better half of 12 months. Followed by depression and OCD. Followed by panic disorder and ptsd, basically life became one big suck. Tinittus, agoraphobia, I mean it was like I suddenly lost my mind or had a :mid life crisis.

I refused to believe that my brain had suddenly become imbalanced, and I loved my life and family, and didn’t believe I was having a midlife crisis, so I started searching for answers, came across Buhners book and the rest is history.

My physical symptoms are almost in remission again and the neuro ones are getting better, and would have been resolved had the first MD I went to see been trained in something other than...oh here’s Ativan and some lexapro...good luck.

Thank you for that the reason I asked is because i've developed all kinds of weird symptoms after a some weird encounter and the only thing ive tested positive for was Lyme with igenex.... ive taken so many abx since the beginning so I'm not sure what to think.

Did you have any physical symptoms in your 20s? Like urinary or back pain?

Thank you
Posted 11/12/2017 8:02 AM (GMT 0)
Looking4acure.....

Not sure about the wierd encounter, do you mean with a doctor? A tic? A human being? From what I understand, lyme is spread 3 ways: Bite from an insect, in utero, or sexually. I think the 3rd way is the most prevalent, followed by the 2nd. That’s just my humble opinion.

From what I understand, yes painful urination can be a symptom of Lyme.

Yes, had urinary and back pain...but don’t know how related they were to lyme. Back pain had more to do with military service than anything else.
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