I have the same things going on, especially with the shower.
it's awful. Who knew what a luxury taking a shower every day was? I took it for granted. There are so many things I can't do at the moment. I can't imagine keeping a Lyme journal. I'm having a difficult time just trying to get my food and supplements down. I really should keep track of this stuff, but I don't have the energy.
I used to have about
one energetic day a week. I'd feel so good and make all of these plans! Then when the planned thing came around, I'd say, "Why, oh WHY did I think I could do this?"
Guess what... I'm still making plans! I sure hope I'm having a good day when they roll around.
May your good days start to outnumber your bad days.