Help me understand where I'm at

Quick backstory: I got bit by a tick that had been on me for 48 hours back in July 2015. I was in a state park doing research for a college class. Fast forward to Nov 2015. Only symptom to this point had been increasing headaches and hot flashes/lightheaded. Leave school one day feeling very ill. Throw up a good dozen times that day. Wake up that night and most of my left side of my body is numb. Go to ER and they can't figure it out. The next several months are filled with classic onset of Lyme symptoms and me going to doctor to doctor w/o explanation.

Finally, in Mar 2016 a local PCP clinically diagnoses me with Lyme after a test shows inconclusive results. He treats me on and off for the rest of the year with Doxy. Initially Doxy has me herxing HARD. After several rounds of Doxy I feel somewhat better but can't shake all the symptoms.

Fast forward to Jan 2017; after feeling frustrated by my lack of progress I search around and discover LLMDs. Luckily, there is one right near me which is unusual! (Live in SE USA). He tests me with Igenix. Igenix comes back positive for Babesia only. He clinically diagnoses me with Bart after discovering my Bart scratches on my back. He puts me on a comprehensive antibiotic and herb protocol for close to six months. After that, he put me on a natural herbal protocol. Initially, I made a lot of progress and thought I was going to beat this. However, I regressed and he put me back on antibiotics in Oct 2017.

Here's the thing though and this is where I was hoping to get some perspective here....my symptoms have evolved. Over the last 4 to 6 months I feel like my symptoms have went from bacteria caused symptoms to autoimmune symptoms. Perhaps bacteria is still causing autoimmune? My ANA test in Oct was positive. My EBV came back "reactivated". A good example of what my day to day looks like now is this: Past week I feel relatively good for 4 to 5 days. Never feel perfect but my energy and mood is good and pain is low. I have normal bowel movements. The last couple of days I start to have joint pain, muscle pain, nueropathy, no energy, diarrhea, stomach is tore up, feeling of about to throw up, decreased appetite, left hip pain, intermittent chest and kidney pain, many canker sores in mouth. Essentially, my immune system is compromised.

My question is where should I go from here? My LLMD currently has me on this treatment.

Clairthromycin - 2x a day
Malarone - 2x a day
DesBio Vial Series - 2 boxes Borrelia/Babesia series followed by 1 Box 10M Borrelia series and 1 Box 1M Borreli Series
Borrelia/Babesia Homochord
Artmenisin
Nystatin
InterFase Plus
Collodial Silver - Argentyn 23
LDN
BLT Liquid Herbs (alternate with Artmensin)
Probiotics



Is this a good protocol for my current status? I like my LLMD but I can't help wonder if someone like a rheumatologist might be better for me at this point? I just don't know. Perhaps a different LLMD with a fresh perspective. I'm trying to be patient with my current Doc but I'm starting to feel uneasy. Thanks for reading!

Hi and welcome to our forum,
Sorry you are dealing with Lyme and co but so glad you have joined us here.

Like Girlie I wonder about Bart treatment.

Also are you using any binders like Act. Charcoal or zeolite to help rid the toxins?

I would stick with an llmd for your Lyme and co treatment.If your gut tells you its time to change I would look for another llmd .

I think its important to feel confident in your relationship and in the ability of your llmd to guide and treat you properly.

We encourage all new members to read our"New to Lyme" start here thread at the top of the page. It has useful information on detoxing, treatment, testing and more.

Well take care and I wish you the best of healing, Jo

Always keep trying. A biological dds and treating parasites help me the most.
DDs are expensive but probably saved my life.
You could get checked by a biological dds.
Adding ozone and saunas at home are longer treatments but I think have really help. I bought my ozone generator for 700 and anyone can buy a cheap sauna for 400 on amazon. Doing both 3-5 times a week will help