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Lyme Disease
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Posted 12/5/2017 3:48 AM (GMT 0)
Hi,

Probably like most initial Lymes treatment, I did a 21-day course of Doxy two summers ago (had the bullseye rash). That was that. Life took over, my mom with severe Dementia came to live with me and my college grad son came home at the same time. For months, I took care of them both as my son did a suicide attempt a week after my Mom died (he was despondent over her death and also, not finding his "perfect" after-college career right away). Anyway, DS is still home, still depressed after 3, 90-day stints in one of the best facilities around. Enough about that, but it plays into why I thought my short term memory loss, psychosis/irritability, migraines worsening and horrible fatigue was due to stress (and I'm sure it was/is, in part).

However, I've been getting intermittent fevers from low-grade 99.1 to a spike of 103 upon occasion. My neck, back, knees are killing me (I see a RA specialist in two weeks). I was in the ER last weekend with "stomach flu" they said, uncontrollable vomiting/diarrhea. I was just given an anti-nausea med and sent home. No antibiotics because I just finished a round for chronic parotid gland infections I get 4-5 x a year. ENT says I have to live with it or remove the gland.

I contacted my Internist when I wasn't getting better, and in fact, getting worse. I now have an upper respiratory thing where if I cough, I lose all bladder control and can't feel it happening (I've had no vaginal births). Yet my throat, etc. does not hurt.

So, these test results came back today. AB IGG & IGM Positive. Positive for Borrellia Burgdorferi. My CRP level is 39. My sed rate is 57. Blood urine plus 1 (whatever that is). "Low to moderate risk" infection can turn to sepsis/septic shock. Trace leukocytes. BUN 4 mg higher than range. I am two years out from my initial diagnosis. I've been feeling poorly, but as stated, chalked the fatigue, headaches, shortness of breath, short term memory major issues to severe stress--living with a chronically suicidal son is horrible and taxing.

My cholesterol and such was excellent, no issues there. At least something is good.
rolleyes I guess I'm asking more knowledgeable people out here if Borrellia Burgdorferi is a "standard" thing lymes produces (I know there are a few strains of icky stuff). Two years out, will Doxy be of any help now??? Most of all, how worried should I be about my heart and brain especially because I do have a slight, mild heart issue (a murmer and mild ventricular diastolic dysfunction) and my brain only because of my Mom, Dad & Grandparents all having stroke-related stuff. shocked

I appreciate your time, thank you!!!! smile
Posted 12/5/2017 4:21 AM (GMT 0)
LadyLinda,

I'm so sorry for all you've been through not only with your health but with your mother and son, too. You're right. All that is an enormous amount of stress. I'm going to share some of my thoughts on what you said and the questions you asked and let others comment on the rest, especially about abx as I don't have any knowledge on that.


IMO, you should be concerned about your heart, brain, abnormal labs, and symptoms. It is very evident that you still need treatment for Lyme and coinfections. From what you've said, it sounds like you have babesia and/or bartonella or possibly other infections. Those are the two most common and recognizable ones.
I also had the loss of bladder control with cough for a couple of years. I'd actually forgotten about that. I also had long term exposure to toxic mold for years up until October a year ago. Come to think of it, I haven't had the bladder control issue since I got out of the mold. I can't say for sure what caused that particular symptom for me.

Although your symptoms could be from Lyme, babesia, and maybe bartonella, I can't shake the idea that something else, like mold exposure or another infection or health issue, may be involved here, too. Just something to consider.

Also, the fact that your mother had dementia and your son is suicidal raises questions for me, too. Both mold and Lyme/coinfections can cause those, too. Also, it is quite common to hear of multiple members in a family having these infections and/or mold toxicity. Genetics plays a role.

Bottom line - you're sick and need adequate treatment for all of your infections. They won't resolve on their own. Whether you treat with abx, herbs, or a combination of the two is up to you. Doing nothing will only allow your body to become weaker and more dysfunctional

Hoping you can get the answers and insight you need to move forward and formulate a plan to get back on the road to recovery. Also consider the possibility that your son may be infected, too, or may be mold toxic. If either is the case, then he will need treatment, too.
Posted 12/5/2017 4:31 AM (GMT 0)
Borrellia Burgdorferi is the scientific term for Lyme. Unfortunately when you were initially diagnosed two years ago you were severely under treated. All the other issues that you have been dealing with are additional stressors which like Lyme, suppress the immune system.

Every medical issue you mentioned could easily be caused by Lyme or a co infection. I highly recommend that you find a LLMD (Lyme Literate MD) ASAP. Additionally if your son never dealt with depression before your mother's passing I would also consider that he might have been bite. Lyme effects everyone differently. Anxiety and depression are very common symptoms. There are a few symptom lists in the New To Lyme thread pinned at the top. Take a few minutes and read through there.
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