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What is your herx cycle (how often)?

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Posted 5/3/2018 12:02 AM (GMT 0)
So I'm having a lymie week this week. Wonky, off-kelter feeling. Head fogginess. POTS.

For me I can go a good 2-3 months before having a bad week (like the one I'm in now). This is tons better than herxing non stop or every other week like the olden lyme days.

But it's still a bummer. Right when you are not really consciously thinking about lyme (but you are still doing everything lyme related out of second nature habit), a herx week happens to sadly remind me it's not 100% gone (and most likely never will be).

And then cycle of worrying and anxiety creeps back up.

Then it passes, I get another really good 2-3 months and then a herx week.

I'm just curious to learn about other lymie's herx cycles.
Posted 5/3/2018 3:11 AM (GMT 0)
Hoping to get to that point, but mine is daily so far. What did you do to get there? Herbs? Llmd or self treat? Ty pray you get 100 soon
Posted 5/3/2018 5:32 PM (GMT 0)
I just seem to have a few good days followed by a few bad days and then the same all over again
Posted 5/3/2018 5:47 PM (GMT 0)
I seem to have the opposite of your cycle - herx for 2-3 months. Then have a good week or two. Add something new or increase doses and back to herxing again.

I'm sorry you're still having some bad weeks. Hope you figure out why. I know that's discouraging.
Posted 5/3/2018 6:08 PM (GMT 0)
on antibiotics i am ok for 6 months, then i have a few bad weeks. we almost call it "victory" with treatment, then bang ...

when i was early in the disease, these cycles were VERY narrow, i almost cycled every 1-1.5 months. slowly it became more distant ... and with abx even more
Posted 5/3/2018 6:20 PM (GMT 0)
Ditto what Daisies said. Mine are no rhyme or reason.

Flares/herxing.....water is muddy for me.

Except for a few occasions when I've started a new med...and my symptoms are off the chart a few days later...
Posted 5/3/2018 11:51 PM (GMT 0)
I stopped herbs completely for a couple of days. And the herxing seem to greatly dissipate.

I've been taking herbs at full dose for 5 or 6 seeks straight.

Herb breaks. Is that a real thing? Should we be taking consistent and periodic breaks?

The herbs help us but can be taxing?

I know this is true for ABX but always saw herbs a little differently in this regard. Perhaps I should not.
Posted 5/4/2018 12:52 AM (GMT 0)
I was wondering the same. I want to break from my herbals to see what my baseline would be. I also do not want to loose any ground. I am approaching 5 months of Buhners bart protocol. I also do not want to looses any ground.
Posted 5/4/2018 2:35 AM (GMT 0)
Not necessary to have breaks with the herbs...but if you're herxing...it might be a good idea...or just cut back the dose for several days.

I don't think I'd take a break during the non-herx times.

I didn't herx when I was taking the lyme herbs...not that I know of anyway.

But, I was only on them alone for a couple months prior to starting abx treatment.

And then later added the bart herbs to my lyme antibiotics for about 4 months.
Posted 5/4/2018 1:43 PM (GMT 0)
I, too, had to take a break due to stomach bug or something a few weeks ago. The day I got sick with diarrhea and vomiting, I still took berberine, licorice, and bidens to hit whatever "bugs" were attacking my gut but cut out all the other herbs and supplements. A few days later, I started having more symptoms return, so I added back the knotweed at 1/2 tsp of powder 2x day (vs 3/4 tsp 3x day). I gradually added back all the herbs/supplements except Cordyceps and EGCG and quercetin. Still haven't added those back in.

Once I started back on lower doses only 2x day, I started to feel better than I had in months. I think I had been herxing constantly for months (even on tiny doses). This was the first real break I'd taken since starting 10 months ago.

Based on what I just experienced, I would say taking breaks when you feel you may be herxing for a long time is a good idea.

I had my TGFBeta-1 tested. In February, it was over 17,000. I just had it tested again after this gut fiasco/herb break and it came down to 6,000. That is a CIRS inflammatory marker that is typically associated with mold exposure. My environment did not change between February and April, so I'm making assumptions now that there are more things than just mold exposure that can cause TGFBeta-1 to rise. Maybe herxing is one of them. Not a good thing. High TGFBeta-1 over 5,000 is a cause for concern and is a precursor for developing autoimmunity.
Posted 5/7/2018 11:23 PM (GMT 0)

Girlie said...
Not necessary to have breaks with the herbs...but if you're herxing...it might be a good idea...or just cut back the dose for several days.

I don't think I'd take a break during the non-herx times.

I didn't herx when I was taking the lyme herbs...not that I know of anyway.

But, I was only on them alone for a couple months prior to starting abx treatment.

And then later added the bart herbs to my lyme antibiotics for about 4 months.

What would you recommend Girlie? What is several days? I'm about 5-6 days in on stopping herbs.

The parkison like tremors in my right arm/hand stopped. POTS stopped. But the wonky off-kelter feeling when walking is still lingering around.

It happens around the same time every day 5-9pm. Epsom foot soak tends to help it fade away faster.
Posted 5/7/2018 11:28 PM (GMT 0)

Woodduck12 said...
I was wondering the same. I want to break from my herbals to see what my baseline would be. I also do not want to loose any ground. I am approaching 5 months of Buhners bart protocol. I also do not want to looses any ground.

This is the exact dilemma I'm in right now. Will I feel better if I take a break. Will I lose ground and things get worse if I don't take my herbs. Catch 22.

And then break for how long before it's "too long"?

A lot of lyme symptoms I can just ignore and push through (mind over matter) but this wonky drunk/hungover feeling when moving can't be ignored. Super annoying.
Posted 5/8/2018 12:05 AM (GMT 0)
Guys,

I took that brief break and slowly restarted. Was feeling better for a couple of weeks until last Friday when I started having intestinal pain again. Been getting worse ever since. Don't know if it's bart or Lyme in the gut or candida. For me, it's mostly a guessing game.

Now I feel stuck again. I also feel like I'm even more sensitive to the herbs now than I was before I took that break. I was already very sensitive and on tiny doses. So frustrating.
Posted 5/8/2018 1:19 AM (GMT 0)
I think I figured out my issue.

Dosage. And I'm pissed.

I started taking this herb blend that my LLMD gave me. But there's a HUGE problem. The dosage is extremely weak. It's a blend of 8 herbs. The blend is 280mg (full dose). Twice a day that is 560mg. That is extremely weak. That is approximately 70mg per herb. That's the equivalent of taking nothing.

Compared to the herbs I have always taken which is 650mg full dose per herb. Twice a day that is 1300mg per herb. Times 5-6 herbs that is 6500mg - 7800mg a day. An effective dosage.

This came to me when I was going back through Buhner's literature and he was saying how an herb isn't even effective unless they are at certain dosage.

This made me go look at the label.

So it's like I've been taking nothing for almost 2 months. No wonder symptoms are creeping back.

Ordering my old reliable herbs now.
Posted 5/8/2018 2:09 AM (GMT 0)
Oh dear - so it wasn’t herxing - it was symptoms coming back from insufficient dose of herbs?


Well you figured it out and now you can adjust and get back on track.
Posted 5/8/2018 6:05 PM (GMT 0)
dacarte,

What are your old reliable herbs?

What formula did your doc have you taking?
Posted 5/8/2018 11:21 PM (GMT 0)

WalkingbyFaith said...
dacarte,

What are your old reliable herbs?

What formula did your doc have you taking?

My LLND gave me a mycoplasma blend. Researched Nutritionals. Called like myco-p something.

I get my herbs from Montana Farmacy, where 30 drops is 650mg.

Never been so excited to see my herbs shipped and on it's way, so I can get back on track.
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