Posted 5/27/2018 2:44 PM (GMT 0)
Thank you so much for commenting! I have a Naturopath doctor that has worked with Lyme patients before and she also said that with my test results and major chronic symptoms, that she is going to do further tests to dig deeper and find what coinfections I have. Before any results were given, she had me start Samento and Banderol. My symptoms have been worse since starting them. She told me that there is definitely something getting angry in me for taking these, so she is sure it is Lyme but has yet to clarify which coinfections etc.
I have been sick and in pain for years now. I was told in 2009 that it was “just fibromyalgia” and that there was nothing anyone could do but put me on some antidepressants that could possibly help with my pain. I also got X-rays of my spine and was told that I may have pinched nerves that are causing the horrible pain in my hands and feet. I have also lost some feeling in my hands and forearms. Like they have fallen asleep and are constantly in the waking up stage. I feel like I have the flu and my neck is stiff most of the time. In the past, I was having fainting spells and couldn’t stand for longer than a few seconds at a time before I had to hurry and sit down before I fainted. My lymph nodes swell on and off so I was always just given 7 to 10 days of antibiotics for a “possible infection”. But they would never try to figure out what the “infection” was coming from. I have had doctors laugh at me because i’m “Too young to have all of these problems” I’m almost 28 and I have two boys under the age of 4 to care for. I was referred to a local NP doctor who is treating a friend for Lyme disease. My friend begged me to get tests because she was misdiagnosed with fibro also. We were support for each other because we had the same symptoms. So with her finding out it was Lyme after all these years, I knew I needed to scrape the money together and find out if mine was too. Luckily, my doctor knows about tests having Faldo negatives and IND’s so she is still treating me for Lyme. I am currently on the two tinctures, taking lyposomal vitamin c, BCQ capsules, and about to order japanese knotweed to add to my daily regimen.
I will definitely check out the “New to Lyme” forum! Thank you for all of your help.