ONLY IF Ubiquinol helped you - what brand do you use?

Babs - I take CoQ10 - but not sure if I can tell it helps me.

I never knew it would help with neuropathy.


BTW - have you been testing to see what your CoQ10 levels are - I think that might be a helpful gauge?

Girlie said...
Babs - I take CoQ10 - but not sure if I can tell it helps me.

I never knew it would help with neuropathy.


BTW - have you been testing to see what your CoQ10 levels are - I think that might be a helpful gauge?

I haven't gotten tested. I don't know if it's one of them, but I know that SO MANY TESTS are not reliable. I was tested for the usual MCAS markers and it was normal... but still allergic to everything. Of course, tested normal for Lyme and Babs... those are raging.

I just found a doctor that I trust, and she's moving across the country. So I'm in a rut right now. I would really like to run every test under the sun and try to get to the bottom of my issues, but I'm so very tired of spending money for nothing. I desperately need counseling, but don't have the energy to search for yet another doctor. My husband is having health problems and we don't trust anyone at this point, so its either Google it or spend hundreds more on out-of-network doctors for him. Spent $250 on an x-ray that showed nothing.

We're still newlyweds. We're still expats. We're still young. Summer is here, we can't travel, and we're both tired of this new life we never signed up for. Madly in love with each other, just very exhausted with life. We've gone through a lot of changes that would normally require an adjustment period, and never got level before the next wave came in. I'm thankful and amazed we have enough money, but so very sad that it's leaking out through my medical bills.

Yeah, this has nothing to do with CoQ10... just having a rough week (I hope its a herx) and feeling very overwhelmed. You know the drill.

It pops up a lot in my searches, and I read Mepron depletes it. I was particularly interested after reading about its help in protecting the brain and reducing glutamate toxicity. My panic attacks, heart palpitations, jitters, and psychiatric issues were getting unbearable.

My LLMD kind of shrugged it off as take it or leave it... "maybe it could help". Since I refuse to take his pharmaceuticals, I figured it'd be the safer thing to replace it.

My ND also recommended it (Ubiquinol in particular) for my neuropathic itch.

I AM making progress. Honestly, I think I'm in the middle of a mental herx right now. My acupuncturist did a Lyme-targeting treatment and warned me it could move a lot of toxins. I was expecting sluggishness and fatigue as usual, but feel rather good physically. Just realized this sudden mental deterioration is probably the herx. Went from feeling like a Lyme Ninja Warrior Hero to "OMG this is going to kill me forever" and not wanting to get out of bed.

I credit the acupuncture with most of my progress, but it could be the Ubiquinol helping. Just wasn't obvious. I bought a cheap brand, and its time to reorder. Wondering what to do about it.

I do plan on trying one last swing at Babs with Coartem. I already paid $75 for it, but never started because I was so unstable. I wanted to stop abx, but I already wasted so much money, I'm not just going to toss the Coartem. Anyway, if that also works by starving the protozoan's CoQ10 (like mepron), then I don't want to be taking it at the same time (according to the ongoing debate.) So I'll just pick back up with the CoQ10 in between Coartem doses.

Thought that would buy me some time to get someone's opinion.

Girlie said...
okay - you've been taking Mepron - sorry, I didn't realize/remember that.


Makes sense - you're off the Mepron now though, right?

I only take the CoQ10 when I'm on the 'off' Mepron weeks....apparently not supposed to take together.

I’ve been off for a while. It was giving me mental issues that I couldn’t handle.