Could it be Lyme

I have been struggling for almost a year with an unknown illness.

Have been to many eye specialists and dr have had an mri, ct scan been hospitalized for evaluation all with no avail. My vision has been deteriating very badly especially lately with extremely bad light flashes seeing spots and shadows and things that aren’t there, extremely bad light sensitivity, bad floaters, seeing round flashes of blue or black dots with my eyes open and closed at any given time, extremely bad visual afterimages that has just ruined my vision and is getting worse it seems daily so bad they can last for minutes especially anything bright. can look at almost anything and look away and see a silhouette of the same thing I was looking at like to look at trees or something and look away like above or to the side and see what looks like a clear outline of any given object.

I even see moving bright light with my eyes closed along with seeing blue all the time. No matter if it’s bright or dark every time I close my eyes I see blue which I haven’t saw anyone else with the same problem I’m Praying I’m not the only one and so so very much more I can’t even think of everything.

I also have debilitating eye pain and eye redness that hasn’t been diagnosed. The eye pain is 24/7 along with the red veins that appeared out of nowhere. The eye pain is extreme the worst pain I’ve ever felt, feels like someone is taking a torch to my eyes at times. Whatever is causing all this it’s like something supercharged it it’s getting worse daily especially my vision.

I am honestly scared to death I never thought anyone could experience such trouble out of nowhere scared to death of losing my vision and honestly scared to death of dying things have gotten so bad.

I’ve also been having many neurological problems bad headaches on the left side that is always there above my ear even when it’s not hurting bad you can still feel it, strange pains and feelings throughout my head and whole body, random dreams every single night of my life now, takes me hours to fall asleep most of the time, my ears are always clogged and every morning when I get up they’re wet almost like I just got out of the shower, losing feeling in limbs at any given time, really bad muscle twitches all over 24/7 and so so much more. I could almost write a book I don’t know if I’ve ever saw anyone having all these problems.

All my tests have came back negative for Lyme, even igenix all except band 41 had one plus, and band 23 said ind. so sorry for such a long post I am beyond hopeless if it wasn’t for God. Need help in the worst kind of way right now have no idea what to do. If anyone has found anything to relieve the visual problems especially please let me know. This has destroyed my life.


I edited your post just to break it into smaller chunks making it easier to read

Post Edited By Moderator (Girlie) : 6/17/2018 10:55:42 AM (GMT-6)

They did start me on treatment I called and told them I was getting much worse. They told me to quit my antibiotics until the test results came back and now they won’t return my call. I paid 450 just to see them looks like they would. I haven’t tried anything for detox my vision getting so bad has scared me absolutely to death. I really don’t know what to do. I told him about the vision problems I just don’t know if he realized to the extent. Is all this combined too much for Lyme? I’m lost for words really going through so much. I was bit by a tick a few months before the bad eye pain and vision really started to decline. I was having headaches and just floaters mainly before that. Lord I’d do anything to start seeing improvement.

All my tests are back. They mailed me my igenix. I don’t really know what kind of test it was does it say I can look on the paper? I know I was positive band 41 and ind. band 23. It said you have to have two positive for them to consider positive. My other tests said I had or previously had Epstein Barr virus and hhv 6. Is that common with Lyme or just something different altogether

Have you or anyone had the visual problems I’m having to the extent I am? And does any of the things you mentioned help with vision? I’m sorry for so many questions I’m scared to death. I just want all this to stop getting worse and start healing please God. It has taken my life from me can’t even go sit outside.

Reducing inflammation in the brain is something you can do to help all your Neuro issues (including eye/vision symptoms)

So try to do regular detoxing - everyday.

You could take warm baths without the Epsom salts - although you should be able to purchase them at Walmart or a pharmacy.
You can take a dry washcloth and “brush” your skin with it prior to the baths.
The water should be warm - not hot and only stay in for 5 minutes to start.

Drink lots of water . If you have a lemon - squeeze some juice into one glass of water - it can damage dental enamel - drinking thru a straw helps to bypass the teeth.
Also rinse your mouth with clear water after to get the lemon juice off the teeth.

Light exercise - even just stretching exercises and/or a short walk.

Eat healthy.

You should put probiotics on your list as a priority. They should be taken every day.
Separate them from antibiotics - some say even from herbs that have antibacterial properties.

Hey Aaron, I’m not sure if I have the exact same problem as you but I have visual snow: Static, after images, trails, light sensitivity, halos. All of this is 24/7

Thank you. I’d just love to see a sign of improvement instead of it constantly getting worse. I have all those things 24/7 along with eye pain and so much more

I know. It’s like something has supercharged mine my vision and eye pain is getting worse it seems by the minute. Lord I Pray more than anything it starts getting better hopefully now

I’m still taking what he gave me but no improvement just getting worse. I’ve tried to start with what’s available lemon water and I always drink a lot of just bottled water.

Aaronh819 said...
I don’t know why they won’t return my call anyone would be worried. I guess I do need to find someone else it’s hard around here I drove two hours for this one the closest I could find. You did say they’re not suppose to go from test results along right? I know I’ve heard that I didn’t know if that’s why I haven’t heard back

A good LLMD will diagnose clinically - and use test results as a backup.

BUT - maybe some Docs are being watched and are forced to only treat with Labs confirming the diagnosis.
Just recently LLMD MR in Seattle, Wa announced he’s closing his practice because he’s being investigated.
He had a very busy practice - servicing the pacific NW including my location (BC, Canada)
A lot of patients scrambling to find another Doc.


No matter what - they should be calling you back.

I’m so sorry - how frustrating for you!!

Thank you. Any and all help is so much appreciated

Aaronh819 said...
My Lyme doctor finally emailed and said my results were indicative of an infection of babesia Duncan I and borrelia. You guys know so much about all this would this be indicative of all this terrible eye pain and visual disturbances? I would just love for them to start getting better instead of getting worse almost daily

Yes - the eye pain and visual issues...could ALL be from the babs and borrelia.

Just don't expect improvement overnight...it can take awhile...this is a slow road to health.