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Confused: Jernigan or Buhner or LLMD for drugs

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Posted 6/26/2018 10:30 PM (GMT 0)
Still new to forum. The more I read, the more confused I become. Do I go to an LLMD for drugs and proper diagnosis (I understand there are problems with any definitive dx), try the Jernigan products, do the full Buhner protocol?? I am so confused. Having MCS I cannot afford to do the "kitchen sink" approach. Has anyone here tried all these protocols and can give me some type of comparison? Is one protocol harder on the body toxicity wise than another? Just wondering.
Posted 6/26/2018 11:09 PM (GMT 0)
I can't say which route you should take...it is up to you.

When it's acute lyme, I do recommend antibiotics as they are very effective early on...and it's only for several weeks to a couple of months.


But, chronic...it can be years of treatment.

i did Buhner herbs for a couple of months prior to my diagnosis and treatment with abx.
If I had noticed anything ie: either a significant herx....or some improvement, maybe I wouldn't have switched to abx.
But, I didn't.

So, I am on the abx...and I'm closing in on 4 years. I have some stubborn symptoms that aren't going away quietly.
I have also added in Buhner herbs while on abx.

The antibiotics are harder on the body. They can do damage to your GI tract. They deplete the good bacteria...and we have to take probiotics daily to replenish.

There are also some nasty side effects/risks with some of the antibiotics.
Posted 6/26/2018 11:56 PM (GMT 0)
Hi Girlie,
I know my treatment choices are mine and mine alone, so no worries there. You sharing the info. you just did was very helpful. I cannot tolerate probiotics and have major gut issues already. Probiotics cause some type of immune reaction and I then end up with inflammatory reactions in many of my joints, particularly the spine causing immobility. I cannot go there at this point in time. I was diagnosed with Bartonella over 30 years ago by history and clincal symptoms, so definitely a chronic case. I guess I keep asking questions and then try to move forward.
Posted 6/27/2018 12:09 AM (GMT 0)
There is also the option of IV abx that I didn’t mention in my previous post.

Since they’re direct into the bloodstream , they bypass your stomach and don’t cause the damage that orals do
Posted 6/27/2018 1:08 AM (GMT 0)
Jernigan works for some and I liked it but the panic I could not take klonipin with the skullcap, it is dangerous to mix them. So I had to quit, went to llmd got lots of meds but scared as hell to start, so I am taking lauricidin and up to 15 pellets and feeling so good except the gi issues, I can say my pots is better with the lauricidin hr is coming down daily, I am taking twice a day no herxing yet but hope I never get a herx lol. Sure it will come as I max the dose to one scoop. It is doing something for sure
Posted 6/27/2018 1:56 AM (GMT 0)
Have you taken antibiotics before? I wonder about your reaction to probiotics...Some kind of histamine response? Do you have any other digestive/gut issues?

Was the bartonella from a cat or tick? It definitely wouldn't hurt to try some herbs and see how you fare. It may be awhile before you get into an LLMD. I would specifically ask if they are knowledgeable about MCS. Since you are somewhat on the fence of herbal and antibiotic you may consider finding one that treats both ways.

I had responded to your LLMD in Ohio thread. I grew up in Ohio - between Cleveland and Toledo.
Posted 6/27/2018 2:02 AM (GMT 0)
I'd try and see an llmd if possible, and like k07 wrote if you can find one that treats both ways that would be ideal. In the meantime, could consider trying to slowly start treating with herbals that you can very carefully titrate and start extremely slowly with treatment so you can keep the responses within reason.

I'm not as familiar with the Jernigan treatments, but I've always liked Buhner and some of the Cowden herbs are very good too (imo) and can easily be titrated since they are tinctures.

I think the Buhner herbs, while they can cause herxing and should be started very carefully and one at a time, tend to be easier to manage since some of them have detox and immune-modulating properties.

I'm not super-familiar with MCAS but I know many patients seem to have similar issues. Have you researched what other MCAS patients with these infections use to make treatments manageable? I imagine there are certain meds and supplements that can prove helpful for some patients with MCAS alleviate the immune system cascades.

In case you haven't come across her work I'm just including a link to one of Lonnie Marcum's articles, she's written quite a bit about MCAS and lyme (I think her daughter has struggled with these two things): /www.lymedisease.org/mast-cell-activation-immune-system-goes-haywire/
I think she's written about treatment strategies for patients with MCAS so could be worth researching?

Post Edited (sebreg) : 6/26/2018 8:09:23 PM (GMT-6)

Posted 6/27/2018 1:39 PM (GMT 0)
Hi Gladioli66,

I am one who followed Dr. Jernigan's protocol from his book "Beating Lyme Disease".. That was over 12 years ago and I'm still healed after having chronic lyme for about 9 or 10 years.

I feel that taking his remedies are less toxic compared to other protocols (I didn't mix his remedies with any other herbs, abx, etc.). His protocol lasted 12 months which is much less compared to other protocols...

I suggest reading books (Jernigan's book, Buhner's book) as that will help you understand all the differences between the protocols. There are also many free videos, etc. that you can listen to that are educational.

One of the reasons I chose Jernigan was because the plants are grown in Kansas and then tested so I knew what I was getting.

As far as your gut issues I suggest reading on how to heal your gut (drinking bone broth, etc.) since the gut is a very important part of one's immune system.

If you want to order Dr. Jernigan's book you can call the Hansa Center at 316-686-5900 (I believe the book is around $28.00).

Also the link below has lots of information:

lymebook.com/david-jernigan-treatment-of-lyme-disease

Hope this helps and that you find your healing path,
Denise
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