Update on my situation after seeing LLMD

Hello everyone,
I've tried to pace myself with the support group and what not since it was mostly increasing my anxiety and making me feel depressed.
That being said I plan on keeping in touch, and leaving trace of my story in case it might help someone someday. I'm also always interested in hearing you guys opinion about me.

As a quick summary of my situation, I am now on day 30 of the infection.
I've been taking Doxycycline (200mg BID) for almost 4 weeks now.
My situation hasn't improved much, and new symptoms have been appearing here and there.

I've been documenting my symptoms daily, and as we speak right now,
I can list around 15 symptoms that comes and go pretty much everyday.
My 7 most dominant symptoms, in order of importance:
1- Knee Pain
2- Blurry Vision
3- Lack of energy (psychologically)
4- Lack of energy (Muscles)
5- Jaw stiffness/pain
6- Neck stiffness/pain
7- Depression/Anxiety
The only symptoms that I seem to have gotten rid of is my limbs going numb when I would wake up (that lasted for roughly 7 days and I was really scared about it).

I saw a LLMD in Plattsurgh July 10th (Dr. M.M.).
I would recommend her to anyone. Altho I've put a lot of debt on my credit card for that appointment, she was very knowledgable and I could feel I was talking to someone that had a real clue about these diseases.

Her opinion on why I'm not getting better is that yes, I've got Lyme on ice (but not eradicated since i'm only on doxy), but Babesia is having a party in my system while the other 2 Bs are being contained.

She made me and my girlfriend do bloodwork for Igenex.
Note that my GF also started showing symptoms of nightsweat, major headache, neckpain, nausea, feeling very tired. We had unprotected sex the first few days after infection

So the doctor clinical diagnosis was that we were both infected with the 3Bs (Borrelia, Babesia, Bart)
She of course didn't want to commit to any timeframe to go in remission, but she hinted that we were probably looking at a 6 months of antibiotics.

I got absolutely freaked out by the amount of pills I will now gradually add to my regimen.
I'm actually going to list my protocole, and would be very interested in hearing you guys opinion about it.
Note that I'm not starting all these at the same time, I had a new abx every 5 days. But in the end, here is everything I'll be taking in order of addition to regimen:

Medication
- Doxy 200mg BID
- Nystatin 1,000,000u capsule (1 capsule 3 times a day)
- Clarithromycin 500mg BID
- Hydroxychloriquine 200mg BID
- Bactrim DS 800 mg-160 mg BID
- Malarone 250 mg-100 mg 2 BID FOR 3 DAYS then 1 TWICE A DAY.
- Naltrexone 0.5mg 1 Every night X 1 month then increase to 2 every night X 1 month then 3 every night

Natural Product:
- Probiotic once a day at lunch. Alternate between 2 different brand
- Multivitamin once a day at lunch
- Vitamin D3 once a day at lunch
- Boluoke 2 capsules BID
- MC-BAB2 Drops BID
- Cognease Detox Drops BID
- PerfectAminoXP to be taken before working out
- Activated Charcoal (Takesumi) before bed
- Detox2 Before Bed

So yeah... isn't that crazy? Wow.. and I used to be one afraid to take one tylenol to get rid of pain.

Other interesting unexpected things the doctor said that I would like to share with you (feel free to comment on each of them if you've been told otherwise)

- 1 Organic Coffee a day is ok. Green tea is even recommended. (I thought caffeine was a big NO)
- There is no restriction on nuts BUT no peanuts.
- No Sugar, No Carbs, No Gluten, No Dairy. Won't to be AS strict when the disease gets into full remission.
- No eggs for the next 2 months (***, what am I supposed to eat for breakfast? haha)
- Berries, Apples and Pears are the only fruit allowed, with a MAXIMUM of 3 serving a day
- No tomatoes, No Mushrooms


I'm supposed to have a skype consultation with the doctor in 3 months.

So here it is guys.
I'm praying to get better.
I'm highly interested in having your opinion on my protocole. And I'll glady answer any questions you may have.

Looks like a good plan to me. Diet recommendations are solid too.

Like you, Doxycycline didn't do much for me. Hydroxocloroquine and Clarithromycin were both pretty good for me.

I think you were smart to get with an LLMD and also smart to get your partner treated too.

good luck!

Medication
- Doxy 200mg BID
- Nystatin 1,000,000u capsule (1 capsule 3 times a day)
- Clarithromycin 500mg BID
- Hydroxychloriquine 200mg BID
- Bactrim DS 800 mg-160 mg BID
- Malarone 250 mg-100 mg 2 BID FOR 3 DAYS then 1 TWICE A DAY.
- Naltrexone 0.5mg 1 Every night X 1 month then increase to 2 every night X 1 month then 3 every night

Holy moly - are these taken daily: Doxy, Clarithromycin, Hydroxychloriquine, Bactrim DS, Malarone?

That is a lot to be taken everyday. That is 3 antibiotics plus two anti-malarials.

Are you to start them all together?

Alxander said...
Thank you all for the encouragement!! It gives me hope

Girlie: I know right??
Yes all those are to be taken daily. I'm not starting them all together: I'm adding one medication every 5 days. This is going to be a wreck to my system... I hope I won't have to follow this protocol too long hehe.

Please let us know how you do - okay?

Good luck and prayers to you!

The protocol looks excellent. It can take some time to see improvement, especially if symptoms are strong.

It's very good strategy to introduce one thing at a time.

Usually a good strategy is giving a protocol at least a few months, whenever patient plateaus it's good to explore rotating therapeutics to mix things up, but early on you should probably experience high effectiveness from the antimicrobials. Likely you'll hit the low-hanging fruit, as you progress sometimes you get diminishing returns and need to figure out strategic rotations to dig deeper.

Buluoke is a good one for biofilms. Down the line you could consider rotating in other things, like Biocidin LSF, monolaurin, oregano oil (I think this has some activity against biofilms but not positive), trying out other enzymes like serrapeptase/nattokinase. But if it were me, I'd be quite satisfied with your current protocol and treatment strategy.

For now I think trying to work your way into this protocol would be a good goal. Giving it several months and then evaluating where you are at at that point with your doctor.

You are on a lot of killing meds, don't be surprised if you start herxing (flare in symptoms). If it gets intense may want to look at further detox strategies (I can see you already have several), but other things possibly worth exploring are infrared sauna, alka seltzer gold with lemon water, epsom salt baths, burbur, pinella, etc.