My Unique, life threatening journey: Please Read

Hello all, I just recently joined this forum after utilizing it for 100’s of hours of research into what
I am dealing with physically and mentally. As briefly as possible, I wanted to share my unique journey, in hopes of encouragement, answers or direction.
3.5 years ago, happy and healthy. History of anxiety and mild depression.
I begin to experience episodes of feeling very sick in a perculiar way. Just extreme malaise. These episodes are followed by a horrific sensation in my brain that is tough to explain. Like acid being poured on my brain. Or perhaps many infections/parasites crossing my BBB all at once. Then comes extreme anxiety, agitation, blurred vision, tinnitus, BRAIN FOG, muscle weakness, jaw stiffness and major major insomnia and FATIGUE. For days on end I do not sleep. As soon as I am about to fall asleep, my whole body is filled with anxiety and I am wide awake. Severe depression sets in. Then memory loss. Like bad memory loss. Like my whole life being swallowed into a black hole memory loss. I am hospitalized for being suicidal. I feel I am going crazy. Nightmarish neurological, mental and physical experiences.
Put on many psyc Meds. Dumb doctors. After 30 days I am released. Dark black fog 24/7. Bad memory loss. Bad insomnia. Connect with LL Naturopath. Put on Doxy and Buhners Bartonella protocol. Amazingly make almost full recovery in 6 months. From barely being able to make myself a meal, to running a successful business. I stop treatment. I work too hard. I begin to feel unwell. Major depression comes. Doctor suspects Babesia. Put on Malarone. Last 2 days before my depression becomes unbearable. Untouchable insomnia. 0-2hrs of sleep a night for 2 weeks. Sleep Meds do nothing. Smoke weed. AWFUL reaction. 2 days later I am sleeping fine and mental capacity is restored.
Now currently on:
-Minocycline
-Azithromycin
-Rifampin

-Cryptolepsis
-Sida Acuta
-Alcornea Leaf
-Kudzu
-Greater Celandine
-Chinese Skullcap
-Greater Celandine
-Red Root
-Japanese Knotweed
-Lions Mane

I am 29 years old with a wife and 2 young boys. I am unable to work. Suicidal thoughts daily. What is happening to me?

Victorious!

Well your name indicates you are a fighter and with two beautiful boys I am sure you don't have a choice tough mama. Welcome to our page #1!

It sounds like you are following a good protocol but you also have to listen to your body. You are on a lot of medication. Personally I could only ever be on 2 antibiotics at once. My body just could not handle it. I have gone through a lot of what you have as well. I was fortunate at the time that it was just me and my husband because it took a lot for me to heal.

A lot of your symptoms could be the result of insomnia. It is miserable. After I finished abx I had insomnia like you describe...my body would even jerk every single time I tried to fall asleep like 20-30 times a night. Truth be told I don't remember much during that period of my life. Maybe it is best that I forgot.

Have you had your adrenals checked? If the LLND was able to help you are you still working with them? My ND fixed up my insomnia really well. I just posted on another thread about a supplement that I used to restore signaling with HPA axis. I used 5 caps of Calm PRT for a few days and then I went down to 2 caps/day. I would look into some serious adrenal support if regular sleep herbs/meds didn't work (They didn't work for me either).

The one thing I can tell you is if one doctor/treatment doesn't work there are others. If you need a referral I can help you with that too. VICTORIOUS-take care of yourself FIRST - it sucks but you have to. I know this is a difficult time but you can get through it.

Please let us know how we can help. It is worth it in the end.

~beth

Hi Victorious, welcome!


Sorry for your suffering thus far.

"Put on Malarone. Last 2 days before my depression becomes unbearable. Untouchable insomnia. 0-2hrs of sleep a night for 2 weeks. Sleep Meds do nothing. Smoke weed. AWFUL reaction. 2 days later I am sleeping fine and mental capacity is restored.
Now currently on:
-Minocycline
-Azithromycin
-Rifampin"


Clarification: You WERE on Malarone when you got depression and insomnia?
The atovaquone in the Malrone can cause depression and insomnia.

And now you're OFF it and mental capacity/sleep is good while on the mino, azithro and rifampin?


The protocol you are now on is a good one for Bartonella (and also lyme).


How long were you on the Malarone? If you ARE off of it, then a supplement of CoQ10 is warranted.

It sounds like you are herxing and may have a toxin overload/buildup

If you are able take warm only Epsom salt baths for about 10 to 15 min a day. If cant do a bath, do a foot bath it will still help.

Start drinking water with lemon juice daily.


The binder Zeobind helped me get through a few toxin overload periods.

Skullcap and Gou teng didnt cause me any issues but we are all different. The kudzu does give me a bit of issue, ( increase in burning in my feet) so I just do a lower dose.

The GC I have not used.

Jernigans antti tox II cns/pns is good for helping clear the ammonia and toxins from the brain. Something you may want to check out.

Could be the Abx, hope you get past this bump soon and get some relief.

bump