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Thoughts on this week? Getting back on track

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Posted 7/18/2018 11:24 AM (GMT 0)
I was chugging along well until I had an allergic reaction to a medicine (I think diflucan) a couple weeks ago and was put on prednisone briefly. I've had a significant relapse since then -- vision issues from inflammation, plus extreme fatigue, brain fog, joint pain, depression, insomnia. (Not sure if this was because of the reaction or the prednisone or both. But that doesn't matter right now.)

Bonus factors: I also have been having questionable reactions to other medications so I'm currently afraid of them all. I'm supposed to be adding something new for low cortisol levels that I haven't started yet. And now I'm realizing yeast is becoming a problem and I can't take the diflucan. Ugh.

Before the reaction, I had just been instructed to extend my time off abx from one week to two to try to get my immune system to do more of the work. (I'm on a MWF pulsing cycle with time off after two weeks of meds.) On Monday, I felt like I couldn't wait and took my abx after only one week off (against instruction sad but I felt awful). Now I'm wishing I hadn't started for a variety of reasons, and I want to skip the rest of the week and restart next Monday. (That means two weeks off with just one day of abx in the middle.)

Is there any reason that would NOT be ok and I should continue this week?

Also, any suggestions for yeast other than diflucan and diet? (LLMD said there's no alternative.) I've heard GSE can help with that and I want to take some this week but hope I don't flare more from it.

LLMD is hard to reach between appointments.
Posted 7/18/2018 1:12 PM (GMT 0)
Hi Dahlias,

A lot of lyme patients have adverse reactions to steroids and they are usually contraindicated in patients with low immune systems-but sometimes it is a give/take.

There are other ways of dealing with yeast besides conventional treatment. Coconut oil (or supplements), garlic, and oregano oil are all potent anti-fungals. Try working more into your diet as best you can.

Most LLMD's are hard to reach unfortunately... sad but we can help you out as best we can!

For me currently I am actually taking 1 clove of raw garlic a day. It helps immensely and I'm not to great with diet so it really helps at least keep things at bay. I would follow the instructions given to your dr as best you can and work on your diet.

~beth
Posted 7/18/2018 1:37 PM (GMT 0)
Before finding out I had lyme, the doctor gave me prednisone. Immediately everything was worse like day 2 of taking it. The symptoms I had before the prednisone were bad enough. Suddenly I was sleeping 16 hours a day, couldn't hardly stay away, no energy for anything, back of head pain worse than ever. Stopped the prednisone and things weren't as bad, but I was worse off for taking it for sure.

I think prednisone sets us back way further than it could ever helps us. I don't think it's a help for anyone with lyme. I believe I read some lyme research where those who took prednisone right before taking the standard doxy treatment for lyme had a higher chance of the doxy not working for them. Sadly I was one of those people.
Posted 7/18/2018 2:48 PM (GMT 0)
I know prednisone is not good. It was prescribed by the ER and I avoided taking as much of it as possible. It scared me badly to have to take it. Ashleylynn, I'm sorry it was so detrimental to you.

Beth, I'll add those, thank you.

Something occurred to me this morning. I wonder if what I had was not an allergic reaction at all but rather a big candida herx. Think I'll start another thread on that.

I
Posted 7/18/2018 5:53 PM (GMT 0)

Dahlias said...
I was chugging along well until I had an allergic reaction to a medicine (I think diflucan) a couple weeks ago and was put on prednisone briefly. I've had a significant relapse since then -- vision issues from inflammation, plus extreme fatigue, brain fog, joint pain, depression, insomnia. (Not sure if this was because of the reaction or the prednisone or both. But that doesn't matter right now.)

Bonus factors: I also have been having questionable reactions to other medications so I'm currently afraid of them all. I'm supposed to be adding something new for low cortisol levels that I haven't started yet. And now I'm realizing yeast is becoming a problem and I can't take the diflucan. Ugh.

Before the reaction, I had just been instructed to extend my time off abx from one week to two to try to get my immune system to do more of the work. (I'm on a MWF pulsing cycle with time off after two weeks of meds.) On Monday, I felt like I couldn't wait and took my abx after only one week off (against instruction sad but I felt awful). Now I'm wishing I hadn't started for a variety of reasons, and I want to skip the rest of the week and restart next Monday. (That means two weeks off with just one day of abx in the middle.)

Is there any reason that would NOT be ok and I should continue this week?

Also, any suggestions for yeast other than diflucan and diet? (LLMD said there's no alternative.) I've heard GSE can help with that and I want to take some this week but hope I don't flare more from it.

LLMD is hard to reach between appointments.

I would take the rest of the week off. AM I correct that you would then have had the 2 weeks off except for one day of abx inserted in the middle of the two weeks off (approximately)?

That's what I'd do.
Posted 7/18/2018 5:54 PM (GMT 0)
I just realized that it's Wednesday...and past your abx time - so you've probably already made up your mind.
Posted 7/18/2018 6:37 PM (GMT 0)
Thanks, Girlie, that's what I ended up doing but I'm glad to hear that's what you would do too.
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