Not sure if this is lyme or not.. help.

edcon88 said...
hi everyone..i started feeling unwell in January 2017 constant chest pains.. and no answers why apart from being told its costochondritis.. then around October last year I became really ill.. vertigo.. tingling all over..weight loss.. burning skin.. muscle /tissue loss. balance issues ..doctors told me it was nothing to worry about and gave me medication for vertigo and told me to relax.

Fast forward to now and I've got joint pain/ loss of cartilage..loss of tissue all over especially legs/hips feet and hands. constant fatigue..poor digestion..burning legs.. random shooting pain everywhere and many other symptoms i could go on forever ..

has anyone with lyme got these symptoms.. i tested negative in the Elisa test from my gp but they offer no other alternatives to what it could be..

thanks.

Hi edcon, welcome to out community.

when my symptoms of lyme appeared - within 6 months I had these ones from your list:
weight loss (very quickly) including significant muscle atrophy, balance issues, joint pain, poor digestion (pieces of food in the toilet ), shooting pain....

Plus many more.

The Elisa is a stupid (sorry) test....
What you want is a Lyme WB. Call the Igenex Lab in California, they will send you a test kit.
The best bang for your buck is the Lyme WB IgM and IgG. Total cost $250.

You need a Dr. to sign the lab req. Get the blood drawn and send off to Igenex via Fedex. Send it early in the week so they get it before the week-end (otherwise it sits for a couple of days)

We can help you find a LLMD (lyme literate Dr). Start a new thread titled: "Looking for LLMD in/near_____" and fill in the blank.
There is generally a wait time to get in - weeks to months.
You can take your test results to your first appt.

Alternatively, you can find LLND to treat herbally. If that's what you're wanting, then in your new thread put "LLND"

We encourage our new members read through the information contained in the thread at the top of the page: "New to Lyme?..Start Here!" It's packed full of useful information.

Keep reading posts, asking questions....it's a great group here.

/youtu.be/WlQukRz_Rj8

Some Literate Lyme Doctors like Dr. Jay, will tell you have Lyme 4 times.

"I tell them I'm going to tell you that you have Lyme four times once when I get a CD 57 back a, second time when working on your biofilm causes a herxheimer reaction, a third time when you come back and tell me that you are substantially better and a fourth time when I'm all done with my therapy and you've remained better."

The point is, if you go on antibiotics, start herxing and getting muscle twitches, symptoms like you're going to pass out, etc.... Guess what, herxing from microbials is a sure sign you have lyme disease. One of the major ways of getting a diagnosis!!!

And even though traditional Doctors will lead you to believe that anitibiotics have serious side effects, they're a lot more safter than the drugs that will mask your lyme symptoms, such as opioids and autoimmune drugs. As long as you taking probiotics to replace the good bacteria you kill off, you'll be fine. They've practically cured C Diff with fecal transplants now.

If you want an official diagnosis, get your bloodwork sent out to Igenex labs. They're the most accurate lab!

I recommend watching Dr. Jay videos and Dr. H's videos
/www.youtube.com/results?search_query=dr+horrowitz+lyme

Post Edited (Charlie55) : 8/25/2018 1:54:46 PM (GMT-6)

mine was lyme ...see the dr david martx story or the 'gone in a heartbeat by specter read my posts on lymenet concerning muscle wasting many here have and are going thru it ...i felt like a aids patient or cancer was killing me ..usually its a med that sets it off? ...i have halted mine and returned to life thru no small feat...direct microscopy got it when 33 docs failed to id ...

thanks for the reply guys.. yes i think my work has mold..i know the building had water damage for sure .. ive seem to have went downhill since I started working there..but ive struggled with symptoms since childhood.. unexplained migraines..anxiety for no reason..heat intolerance.. the crazy thing about my story is that I think getting chiropractic adjustments brought my symptoms full blown..i would need about an hour to write down every symptom. I've contacted an infectious disease specialist so hopefully I hear back from that. I really appreciate the help guys. credit to you all. My name is Eddie im from Derry in Ireland.

Girlie said...
Eddie,

Just want to prepare you re: ID specialist. Unless he/she is lyme literate, you won't get much (if any) help from him/her.

I have an option or two in the UK - if you'd like to email me for the information.

yeah that be great.. i can explore all options.. pretty sure the guy i contacted us lyme literate but the more info I have the better.. thanks again

eddie.

Post Edited By Moderator (Girlie) : 8/26/2018 12:09:28 PM (GMT-6)

WalkingbyFaith said...
Yes. I've had many, if not most, of the symptoms you mentioned. Lyme is often accompanied by other infections, too, like bartonella or babesia. The other infections are referred to as coinfections. There are more but those are the two that appear to be most symptomatic for most people.

Are you being exposed to mold? Did your symptoms start after moving or changing jobs to a differsnt location? Mold exposure can also cause a lot of those symptoms.

Have you ever had a known tick bite or bullseye rash?

no tickbite as far as I can remember..my symptoms do get worse at work at times dizziness.. tingling.. burning etc last week my jaw completely locked it was crazy.. does lyme make you sensitive to mold...? no one in my job has the problems im having.. so difficult trying to figure this out.