news/scientific journals validating lyme

Hello

My request for disability (private insurer, not SSDI) was denied earlier this year mostly on the basis that my claims were self-reported and that there were no "physical findings" or "medical evidence" indicating that was am unable to perform my "sedentary desk job."

I have a positive Igenix test as well as doctor's notes but they are not enough.

I am finally physically and cognitively able to put together the appeal and am looking for any scientific journal articles that speak to side effects of lyme such as extreme fatigue, anxiety, brain fog, chronic pain etc. Anything that validates the fact that Lyme is excruciating and precludes those with it / in recovery from being able to work.

Thanks in advance for any thoughts!

Thanks Psilociraptor

This is super helpful and appreciated!

My quality of life isn't so great, to put it mildly. I was denied last October for disability, as they determined that I "could still do some things" or something like that...

I'm wondering if I should mount an appeal myself. It's demoralizing to go through that on top of all the Lyme n Co symptoms as many of you probably know.

I think I was supposed to file an appeal immediately, or that's what an attorney would have done.

As far as scientific papers, I thought this thread was finally new definitive evidence of PTLDS! d'oh!

Chronic Lyme or Persistent Lyme or whatever you want to call it. I honestly think it is much of the same thing: CFS, Fibromyalgia, MSIDS, ME, Encephalomyelitis.

My new symptoms are running mild fever and lymphatic pain in my armpit.

It seems like you have to prove that you are blind, deaf and/or missing limbs to have a cut and dry case.

I'm not a complainer type and honestly don't have the energy for it but this is ridiculous..but I think someone on here had luck contacting a state representative of some sort consistently and persistently until they finally made a call or wrote a letter to the disability determination board.

My brief conversation with an SSI rep was that fibromyalgia is more often recognized, but that is only a symptom.

What a nightmare to have a nerve disease with phantom pain...

and to have 30% of usual energy...

and to have to switch "careers" (I barely got started at my chosen fields) and struggle because of it.

I had ~9-12 doctors records of treatment, including psychiatrist, cardiologist, infectious disease and they still denied:

I've heard that 79% of applicants are denied on the first try...anyway.

Trying not to sound dramatic, but they are not interested in science as they are in the business of denial... mostly.