Lightheaded, Fatigue, Headaches, etc..

Hey everyone!

So I just feel like I have literally tried EVERYTHING and I still feel pretty terrible most days.

Most days I wake up and feel really off balance. No idea why, but it just hasn't gone away.

Throughout the day I usually have a headache, and the off balance goes away, but I definitely still feel light headed.

I am seeing a new integrative doctor (still seeing my LLMD) and he thinks it's all due to inflamation.

He ran a NutraEval test through Genova which came back saying I'm low on the following:
Lactic Acid
Succinic Acid
Vitamin D
Omega 3
High on Creatinine (range is 3.1-19 and I am 28)

Everything else seems pretty much in range. Are any of those a reason why I'd be feeling so terrible still?

I just feel like I'm at the end of my rope.. I did antibiotics for 2.5 years and only got so far, now I'm looking at deficiencies and still not coming up with much. Does anyone have any other suggestions on what to look for based on my symptoms?

I saw an ENT who is going to run balance testing on me but she thinks that it's all due to migraines, could that be true?

WalkingbyFaith said...
Nic,

How deeply have you looked into the possibility of mold issues or CIRS from any biotoxins, including borrelia?

Balance issues can definitely be mold/toxin induced. So can headaches. Both docs I’ve been to have me walk heel to toe (which I cannot do without falling over). They both said “mold” when they saw that.

The reason I dont suspect mold is because I have moved 3 times since being sick and it has not changed the way I feel.. unless you can stay sick from mold for that long? If my original apartment had mold 3 years ago, could I still be sick from that?

My doctor actually said that he believes I have CIRS, but how is that treated? He didn't really say, just ordered tons of testing, but no mold tests.

I wouldn't be surprised if there was mold in all three houses.

Thank you so much for the great suggestions!!
1. I drink a lot of water, but don’t really keep track. I will say that constapation isn’t an issue for me, i actually have pretty frequent bowl movements which I know can also lead to dehydration. Just wish I knew the underlying cause.

2. I get at least 8 hours a night. I did a sleep study and they ruled out sleep apnea.

3. Diet isn’t great. I don’t eat fast food, but I don’t really eat a clean diet. I’ve tried in the past and it hasn’t really helped. Food allergy testing was all negative.

4. Right now it’s super cold! (Northern Indiana)

5. I’ve always wondered about anxiety but I’ve never thought of myself as an anxious person. I don’t have racing thoughts or trouble falling asleep, etc.

6. I’ve taken supplements to build my gut lining back up but definitely something I should focus more on because I do feel that a lot of my sx chalk up to soemthing like leaky gut..

7. I’ll have to talk to my ENT about that! Last year I had a CT done of my sinuses and they said they were clear.

"3. Diet isn’t great. I don’t eat fast food, but I don’t really eat a clean diet. I’ve tried in the past and it hasn’t really helped. Food allergy testing was all negative."

- food allergies, sensitivities and intolerance are all three different things. I dont have any food allergies found (tested), but I have a boat load (canoe load?) of food sensitivities that were tested/found.



"6. I’ve taken supplements to build my gut lining back up but definitely something I should focus more on because I do feel that a lot of my sx chalk up to soemthing like leaky gut.."

3 and 6 need to be planned together. 6 before 3, or alone if you have #3 wont do much.

It can take three months to notice anything. Read the "diet cookbook" post still up from yesterday.
https://www.healingwell.com/community/default.aspx?f=30&m=4086087

astroman said...
"3. Diet isn’t great. I don’t eat fast food, but I don’t really eat a clean diet. I’ve tried in the past and it hasn’t really helped. Food allergy testing was all negative."

- food allergies, sensitivities and intolerance are all three different things. I dont have any food allergies found (tested), but I have a boat load (canoe load?) of food sensitivities that were tested/found.



"6. I’ve taken supplements to build my gut lining back up but definitely something I should focus more on because I do feel that a lot of my sx chalk up to soemthing like leaky gut.."

3 and 6 need to be planned together. 6 before 3, or alone if you have #3 wont do much.

It can take three months to notice anything. Read the "diet cookbook" post still up from yesterday.
https://www.healingwell.com/community/default.aspx?f=30&m=4086087

Let me rephrase that, I did a food sensitivity test and nothing came back except a slight sensitivity to eggs.

I'll check it out! Thank you

So I just got out of my doctors appointment and this is how it went:

He said I have a severe Vitamin D deficiency as well as Omega 3, and 6. He also said that my body was not absorbing key vitamins due to my mthfr mutation.

So - he put me on the following
Prescription D2 50,000 weekly and D3 at 5000 daily
Prescription Omega 3
Digestive Enzyme
Methyl B Complex
Glutamine
No dairy diet with low gluten and meat

I asked if he thinks that this what is causing my symptoms and he said, "THINK?? I know! The truth is in these blood tests and it's clear you have deficiencies that are key to our overall health."

What do you guys think? I also asked about mold and he ordered a mold allergies test.

mine was at 24 so not extremely low in my opinion however, he said he wants it at 80.

So I mentioned that I have already taken pretty much all of these supplements (except omega 3) and he said that my issue was that I didn’t take everything all at once. He said all deficiencies need to be addressed at the same time because they all work in harmony. He said it actually will cure the root cause (whether it be a disease or whatever) because it will allow my body to work correctly by reducing inflammation and boosting the immune system. I’m not sure what to believe, but at least he gave me a new track to follow.

He isn’t an LLMD he is a neurologist that decided to open up his own integrative medicine clinic.

Do you think all of this could just be anxiety? Anxiety definitely runs in my family, I just don’t feel like an anxious person.

NicHostetler said...
So I just got out of my doctors appointment and this is how it went:

He said I have a severe Vitamin D deficiency as well as Omega 3, and 6. He also said that my body was not absorbing key vitamins due to my mthfr mutation.

So - he put me on the following
Prescription D2 50,000 weekly and D3 at 5000 daily
Prescription Omega 3
Digestive Enzyme
Methyl B Complex
Glutamine
No dairy diet with low gluten and meat

I asked if he thinks that this what is causing my symptoms and he said, "THINK?? I know! The truth is in these blood tests and it's clear you have deficiencies that are key to our overall health."

What do you guys think? I also asked about mold and he ordered a mold allergies test.

All you can do is try. It might be part of the puzzle, but don't be surprised if this doesn't do the job 100%.. I just dont see how this Dr can be so sure of himself as there are many combined things that can cause your symptoms.

Some people who appear to be "laid back" or "reserved" are in fact being worn down by anxiety. - But I think this would be self noticeable in times of high stress. What we might think of as being personality/energy traits are actually effects of body and brain chemicals/acids/neurotransmitters.

Anxiety that runs in families is due to genetic make up- methalation or lack of. Even alcoholism can be partially genetic (not always obviously) it actually has different effects with different genetics.

"My doctor seemed to think the methylated B vitmains would fix the methlyation issue, but should I be taking methyl folate? I know I have the heterozygous MTHFR mutation for A1298C gene..

Also, I get headaches almost daily. They are always pretty bad. Could this all be due to chronic migraines? Do you think a neurologist would be able to help me? I've never seen one before except for my integrative doc but he doesn't seem like a true neurologist. My ENT said she might try to Topamax for the migraines. "

-heterozygous MTHFR mutation for A1298C gene, so only one copy, only half as bad as it could be. Do you have any of the other mthfr, - the 677 variant?

This is the most common gene written about, it all over the place online:

https://www.dietvsdisease.org/mthfr-c677t-a1298c-mutation/

If you headaches are on the back or sides of your head they can be of tight muscle origin stemming from the neck or shoulders/back.

Mold and heavy metals may be in play, tested those??

If you have a Mthfr mutation you do need to supplement methyl folate.
You can’t process b12 effectively without it.

Mthfr mutations in their combos reduce your body’s ability to detox.
So you can see just with Mthfr issues the toxin overload and the energy issues. Metals and mold build up are awful.

Candida is a big player with these symptoms too

Be careful with large doses of D’S to avoid calcification issues.

There are so many pieces of our puzzles to consider...

I've done two heavy metal tests and both showed normal. As far as mold testing goes, I just did a mold allergy blood test through labcorp. Not sure how reliable that will be..He said if it shows I have an allergy to a mold then I will need to have my house tested to figure out the source.

Candida always comes back negative..