HealingWell
Search Close Search
☰

Here AGAIN

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/2/2018 12:35 AM (GMT 0)
Diagnosed CDC + June 4 years ago. I can’t believe it’s been that long. Off abx and started seeing a new LLMD. Seen him once and already happy with him. He’s running a battery of tests to see where I am.
DNA lyme panel, urine test
Adrenal through bio health
Genova stool
And one other I can’t remember now. I think it was urine mycotoxin and organic urine acid test

Since I’ve been on abx he didn’t seem to think I needed to continue since I’ve been feeling an itch to try and go off abx again. I’ve been trying for 2 years. So I went off in mid Oct.

I started feeling some symptoms a couple weeks ago, did a deep tissue massage (for the lyme test) and am feeling like death

I’m not supposed to see this been LLMD again before all my tests return. And I’m having issues with the adrenal test (not producing enough saliva in the morning for the first vile).

Anyway - what the heck do I do in the meantime besides up my detox?
(I know deep tissue massages are a no no but I also needed it for my test per the instructions).

I’m tired of being in this middle place. My last LLMD wanted me to do PICC line (despite a good 80% improvement in 4 years) and the new LLMD shook his head at that and thought there wa still more we could do.
Posted 12/2/2018 1:00 AM (GMT 0)
For the saliva test have you tried sniffing lemons?


Have you gotten past the 80% mark? Ie symptom free?

And how are you wearning off the meds? Do you just stop ... or do you wean off?
Have you tried taking the abx for three or four days a month?
Posted 12/2/2018 1:22 AM (GMT 0)

cappuccinocurls said...
Diagnosed CDC + June 4 years ago. I can’t believe it’s been that long. Off abx and started seeing a new LLMD. Seen him once and already happy with him. He’s running a battery of tests to see where I am.
DNA lyme panel, urine test
Adrenal through bio health
Genova stool
And one other I can’t remember now. I think it was urine mycotoxin and organic urine acid test

Since I’ve been on abx he didn’t seem to think I needed to continue since I’ve been feeling an itch to try and go off abx again. I’ve been trying for 2 years. So I went off in mid Oct.

I started feeling some symptoms a couple weeks ago, did a deep tissue massage (for the lyme test) and am feeling like death

I’m not supposed to see this been LLMD again before all my tests return. And I’m having issues with the adrenal test (not producing enough saliva in the morning for the first vile).

Anyway - what the heck do I do in the meantime besides up my detox?
(I know deep tissue massages are a no no but I also needed it for my test per the instructions).

I’m tired of being in this middle place. My last LLMD wanted me to do PICC line (despite a good 80% improvement in 4 years) and the new LLMD shook his head at that and thought there wa still more we could do.

You need to call your doctor and get a new prescription so you can begin to feel better. It seems that the infection was dormant and it has returned. The abx should allow you to begin to feel better at least until you see your doctor and he/she can draft a plan for you.
Posted 12/2/2018 4:04 AM (GMT 0)
I do have ceftin and tindamax still left. I was trying to not take any. sad

I’m also trying to get in with my osteopath to do my lymph massage a little earlier.

Any other recommendations for detox?

And for those who have done the adrenal, is it really necessary to go caffeine free for that day ?
Posted 12/2/2018 4:13 AM (GMT 0)
Oh and I did ween off. I chatted with my doctor about it first and I was so happy and proud that I was doing well!

My frickin hands went numb last night too and my boyfriend had to help me sad

I’m mostly afraid that all these tests won’t show anything but my boyfriend reminds me that there is a reason they are doing a battery of testing and he’s sure they will find something again.
✚ New Topic ✚ Reply