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Posted 12/6/2018 10:54 PM (GMT 0)
Has anyone else developed really unmanageable food intolerances? I guess I made a mistake of trying stone ground mustard yesterday and boy did I pay for it...up two pounds in what I assume/hope is water weight today and I did not get to sleep until about 4am, wide awake, had to take another half dose of my prescription sleeping med. That is insane for what amounted to about 2 tablespoons of mustard. I honestly cannot think of anything else different I ate and I tested allergic to sesame seeds (not intolerant, allergic) so I assume I have some kind of issues with them. I also have weight reactions and some intestinal cramping from many other foods (including meat which used to be a staple). I wish I didn't have to walk on eggshells with food all the time. It makes living really hard since I can't go out to eat or go to social events. I've heard of the Mediator Release Test and am considering it but it is sure expensive. My LLMD is at a loss as to what to do anymore with treatment so I think I'll have to look elsewhere. I don't know how much of this is related to Lyme anymore.

On a similar note. Has anyone had luck getting rid of their food intolerances? Or reintroducing foods slowly?

Oh also, I have posted about my liver problems too and I don't know if the two are related but for some reason my liver is really not doing its job well either.
Posted 12/6/2018 11:55 PM (GMT 0)
Yes, and i’m allergic to sesame seeds too. Others that I’m aware of are soy, banana, avocado, egg, peanuts. I’m doing an elimination diet now which may reveal more.

Immunotherapy (LDI) has partially helped with food allergies. Hoping the elimination diet will heal my gut further and help.
Posted 12/7/2018 12:23 AM (GMT 0)
Yes. When I got Lyme disease, my immune system reacted very strongly to it. This kept the infection under control (for a few years anyway) but I started getting allergic to many things. Not just food, but pollen, etc.

With antibiotic treatment, the allergies went away.

Liver problems, well yes I got that also, but that's related to the antibiotics rather than the Lyme disease itself.
Posted 12/7/2018 9:24 PM (GMT 0)
YES! My LLMD is actually the one who also found out I had food allergies. I have told this story on a couple of other posts but the long story short is that abx can cause these when people don't take probiotics correctly. He says the reason most doctors don't tell their patients about it is because for 1 week on abx you need a YEAR of probiotics and doctors know most patients will not follow that suggestion. ANYHOO...I tested positive for: lettuce, lemon, dairy, eggs, gluten, wheat, and I had to limit chicken, fish and almonds on top of no sugar (even from fruit) and no yeast. So I went cold turkey to the best of my abilities for 2-3 years. Then I slooooooowly started reintroducing these foods. That took about 3 years, and now I can eat whatever I want-with the exception that I can only eat a small milkshake instead of a large. I'm hopeful that in maybe another year that won't be an issue. It all just takes time.
Posted 12/8/2018 5:50 AM (GMT 0)
Hm well I've never been on antibiotics so that's not the reason. Sometimes I wonder if I should've just gone that route seeing as I'm having all the problems that come with them anyway.
Posted 12/8/2018 4:16 PM (GMT 0)

k07 said...
Yes, and i’m allergic to sesame seeds too. Others that I’m aware of are soy, banana, avocado, egg, peanuts. I’m doing an elimination diet now which may reveal more.

Immunotherapy (LDI) has partially helped with food allergies. Hoping the elimination diet will heal my gut further and help.

Allergic or gut sensitive? They are different remember.....but easily get confused in terminology. Different testing also.
Posted 12/8/2018 4:28 PM (GMT 0)
jb1994 - I hear your concerns.

Years after abx, just when I feel my gut is under control, it goes haywire again. Gets easily set off.

In addition to pointing out individual food issues, remember that certain food types or groups can make symptoms possibly from other "bugs" feeding on it anywhere in the gut. This creates a different kind of gut inflammation "gut bug overgrowth" vs cytokine release creating a true food sensitivity.

My go to meal that settles my gut down is basic chicken breast and green beans. Without that I would have nearly starved.

Initially dropping many man made carb foods I felt great. No pizza, pasta, real mac n cheese for a long time.

I got bored with limited foods and started eating more fruits, but I think that developed into SIBO now. Its not candida, had that many times and know the sighs.

I imaging conventional Drs would give me some digestive syndrome "label" and tell me to take pepto the rest of my life.
Posted 12/8/2018 6:22 PM (GMT 0)
Yes, from lyme and mold exposure I developed mast cell disease. It has gotten very bad. I would suggest celery juice in morning to help calm your gut. I would have done that back before it got so bad had I known. Also quercetin...I wish I could tolerate it.
Posted 12/9/2018 4:00 AM (GMT 0)
Astroman, I am allergic to them. All seeds. Anything with seeds in it including mustard seeds, strawberry seeds, tomato seeds.

I don't have mold so I can rule that out. It'd be nice if that explained it though. I'm sure I have some kind of MCAS as I can't tolerate a lot of traditionally histamine containing foods, though I can tolerate frozen fish so who knows. It could be glutamate sensitivity as well.
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