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Lyme Disease
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Posted 1/7/2019 9:24 PM (GMT 0)
All,

I wanted to give a quick update on what is going on in my life now as far as what we are finding and what my current treatment is. My goal is that maybe what I am finding can help lead others to solutions. I would LOVE it if this helps anyone else.

So I am still dealing with fatigue, dizziness, loose stools, headaches, etc. However, I have a lot of hope now for my current treatment plans.

I am not currently treating Lyme, but have found that my ferritin is low (mentioned in another post). It was 26.01 and really needs to be 50-80. There are plenty of articles out there that talk about how all these symptoms are usually present until you get up to 50 and above. So I'm super excited to see what happens as I raise that ferrtin level.

I tried several different irons and I think I finally found one that doesn't give me side effects!

I also did a cortisol test and found that my DHEA is super low for someone who is in their mid 20's so I will be starting 5mg of DHEA in the morning and mid afternoon starting tomorrow.

I still need to find the underlying cause for my low ferritin. I assume it is due to malabsorbtion, but my doctor is awesome and working closely with me to determine a cause. She's mentioned celiac, parasites, dysbiosis etc. SIBO test came back negative and so did H Pylori.

I'll keep everyone updated as I go.
Posted 1/7/2019 9:43 PM (GMT 0)
Fantastic, fingers crossed that the supplements end up helping! always good to check out various angles when it comes to this stuff. I have heard that babesia can cause issues with some of this stuff, but I have no doubt it could be any of the other potential causes you mentioned. I hope you can figure out the driving cause, it sounds like you are on the right track!
Posted 1/7/2019 9:46 PM (GMT 0)
Hey NicH - good to “see” ya!

I’ve also had ferritin on the low side - in the low 40’s.

But my hemoglobin is good and my Dr said that I likely wouldn’t feel the effects until my hemoglobin was low.
I don’t have fatigue as a symptom.

It’s possible that Babesia can cause the low ferritin - as it smashes/obliterates the rbc’S

I haven’t had mine retested since my extensive Babesia treatment.

Keep us posted!
Posted 1/7/2019 11:44 PM (GMT 0)

Girlie said...
Hey NicH - good to “see” ya!

I’ve also had ferritin on the low side - in the low 40’s.

But my hemoglobin is good and my Dr said that I likely wouldn’t feel the effects until my hemoglobin was low.
I don’t have fatigue as a symptom.

It’s possible that Babesia can cause the low ferritin - as it smashes/obliterates the rbc’S

I haven’t had mine retested since my extensive Babesia treatment.

Keep us posted!

Babesia was definitely something I thought I may want to circle back to, but not at this time, just because I want to start with one thing at a time.. I took mepron and zith/biaxin for around 6 months and didnt feel any relief at all. Also DNA Connexions showed negative babesia (not that it's all that reliable, but it's something).

My thought right now is address things that are showing up. Get my ferritin back up, DHEA back to normal and stomach issues fixed and see what happens. If I'm better I will be the happiest person in the world!! LOL

It's unbelievable how we all have to struggle daily with symptoms and there are so many people who don't have to worry about the way they feel. They can get up, go for a jog, go to work, go grocery shopping and make a nice meal and literally not think twice about their energy. I hope that one day I can be like that. My girlfriend gets up, runs, goes to work, then works out again after work. She runs marathons, I'm so jealous! Just getting up for work and getting through the day is exhausting especially when you add in dizziness, brain fog, and headaches.

Anyway, sorry for the rant, but I just cant wait until I can feel normal again. I'll never take health for granted!
Posted 1/8/2019 1:55 AM (GMT 0)
Yup - I'm with ya - can't wait.

I used to be one of those people...no aches or pains......... now it's a complaint-a-minute around here.
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