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Lyme brain? Scared

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Posted 1/19/2019 7:02 PM (GMT 0)
I posted on another forum that I rarely post on that most of my Lyme symptoms are gone except for a few relating to my brain. These include nightmares, insomnia, and the one I was most concerned about...sometimes while talking I will forget what point I was trying to make and will stop for a second before it comes back. The person who responded mentioned Alzheimer's over and over again saying I should ask my doctor for Alzheimer's medicine before it's too late.

I'm now TERRIFIED. I thought this was a Lyme symptom. Please tell me I'm not the only one. I'm so scared and can't stop panicking. Last night I kept waking up in a panic and crying. I can't eat anything. Please help.
Posted 1/19/2019 7:15 PM (GMT 0)
Hi Natasha and welcome to our forum.

Yes, this symptom can be a Lyme and other co-infection symptom. I have had it happen to me and I also had other brain issues to do with memory and once I was driving in a very familiar place and It all of sudden looked very foreign to me and I wasn't sure where I was for a few moments.

The good news is all of those symptoms have gone away with continued treatment.

I also use specific herbal tinctures that are supposed to help to repair damage done by neuro Lyme and co.

Now I don't know your medical history , family history or age(and don't feel like you should post it either that's your privacy)..and I am no medical expert so if you feel you should get checked out for Alzheimer's or any other issue I believe it is wise to do so.

Hopefully others will be along with more knowledge or personal experience in this matter.

I absolutely understand how terrified you must be but I would keep treating if you are having symptoms and I hope you are able to consult with an llmd. to do this or continue your care.

Take care and I wish you the best of healing.
Posted 1/19/2019 7:27 PM (GMT 0)
Have you tried burbur-pinella? It is a brain detox and I have had good luck with it. Sounds like you might still have some inflammation of the brain.
Posted 1/19/2019 7:42 PM (GMT 0)
Thank you! Really helps to hear of someone who had my symptoms and is now better. My family history includes my grandma dying of dementia at 92 years old. I was in Lyme treatment with an LLMD a long time ago but had to stop when I moved because there are no Lyme doctors where I live and funds are low-ish. I recently started taking lots of Buhner herbs as well as various essential oils but had to take a break because my stomach was getting irritated.

When I was briefly on IV Rocephin (before my insurance cut me off and said 30 days is enough) my brain came back. Back then I was having troubling expressing my thoughts and following conversations, basically I was slow. I'm hoping I can get back on Rocephin one day or find something else that will help.

Nope, I have never tried pinella. I'll look into that. Thank you.
Posted 1/19/2019 7:43 PM (GMT 0)
Welcome to the forum!

Happened to me all the time, I had all three of those symptoms. They all improved as I effectively treated the infections (I had the most improvement from treating babesia). Sure, other things can cause these symptoms, but if you have lyme/coinfections it's sensible to assume they may be playing a role. Have those symptoms improved at all with treatments?
Posted 1/19/2019 7:47 PM (GMT 0)
Thank you sebreg. I'm not currently on treatment but my brain did come back on IV Rocephin. It was such a long time ago though and I don't remember if I had this particular symptom.
Posted 1/19/2019 7:49 PM (GMT 0)
Oh you mentioned Babesia. I also have Babesia duncani though I figured it wasn't a problem anymore. Maybe it is.
Posted 1/19/2019 7:50 PM (GMT 0)
I guess I'm ashamed to admit that I've been very lazy in regards to Lyme treatment for a long time now. I got to a point where I was much better and just got tired of treating.
Posted 1/19/2019 8:01 PM (GMT 0)
Natasha, there is nothing wrong with that imo! These are personal decisions, the only right answer is the one that works for you! Sometimes we just need to get to "good enough," reach a point of balance and acceptable quality of life. Personally, I was severely affected by this stuff so I'd like to root it out as much as possible, but treatment can be mentally and physically grinding, and we can reach points of diminishing returns. Whether it is worth it depends on each individual's situation and how bad the symptoms are. And exploring new angles can sometimes prove beneficial (adrenals, thyroid, SIBO, mold, metals, viruses, parasites, etc).

Babesia caused a lot of ANS issues for me, including air hunger, insomnia (nightmares as well), fatigue, concentration issues, anxiety, etc etc.
Posted 1/19/2019 8:09 PM (GMT 0)
I never considered that Babesia could be causing my brain issues. about a year ago I took large doses of crypto (like 100 drops 3x/day) and ended up with a month long panic attack. I read somewhere that some Lyme doc was recommending doses that high.
Posted 1/19/2019 8:17 PM (GMT 0)
oh, that is interesting about the response to crypto. Sounds like a herx that went out of control into some type of immune storm. I suspect that I have MCAS issues (mast cell activation syndrome) related to babesia and its die-off. Basically I had ridiculously difficult herxing whenever I treated babesia, I found taking combo antihistamines helped a lot.

Yeah, I think those are the upper limits on what one can build up towards with crypto. I'd start out with a much much smaller dose, like even 1 drop just to ease your way in if you get back into taking that herb!
Posted 1/19/2019 8:21 PM (GMT 0)
Thank you so much : )
Posted 1/19/2019 9:46 PM (GMT 0)
100 drops 3X a day is a very high dose.

Buhner says the dose is 1/4 tsp 3X day. 1/4 tsp is 25-30 drops.


Of course that's just a guide...but I certainly would start lower and see if you can tolerate the lower doses.
Posted 1/20/2019 12:50 AM (GMT 0)
Yeah I definitely think I need to go back to the lower dose, thank you. This forum has been really helpful. I just wish I could stop the anxiety. I would give anything to get back on IV Rocephin.
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