Do these symptoms point to anything?

Could be Lyme or maybe bartonella, could be myalgic encephalomyelitis (chronic fatigue syndrome) or chronic Epstein-Barr, could be hormonal issues (adrenal fatigue, other forms of hormone dysregulation), could be dysautonomia like POTS. As I'm sure you know, these symptoms can be related to so many conditions - for me, they are related to all of the above!

I strongly recommend evaluation and extensive testing by an integrative medicine or functional medicine doctor, and ask beforehand if they have any experience treating Lyme. I once had an excellent integrative doc literally throw up his hands and tell me to leave the office when I brought up Lyme, so if you want to look into it, then know it's definitely not a common specialty. Another reason to ask about Lyme experience is that the more accurate Lyme tests are very different from what most doctors can order because they come from independent labs (and most docs affiliated with insurance and hospitals can't or won't use private labs).

From what you describe, my guess is myalgic encephalomyelitis (chronic fatigue syndrome). Check out the documentary Unrest and https://rawlsmd.com/health-articles/overcoming-chronic-fatigue-syndrome Keep in mind that many believe that ME/CFS is caused by underlying infections, like Epstein-Barr virus and Lyme, so you could be dealing with multiple things.

Thanks for supporting your partner and reaching out. Keep asking questions!

Sara (Lyme, ME, dysautonomia, HPA axis dysfunction)

cppoly said...
I’m not up to date on all the symptoms of lyme but do any of these point to anything or any specific co-infection? These aren’t mine but my wife’s:

Extreme dizziness, always feeling like going to tip over. Similar feeling when laying down and getting up quickly where blood rushes to head and feeling heavy and unstable but this feeling can occur sporadically even from just standing, walking, or sitting. Chronic fatigue, weakness (feels heavy when walking and takes effort just to walk). Blurred vision and seeing dots. Diahhrea/constipation. All of these are on a daily basis. Less frequent are acne, chicken skin (looking like goose bumps on arms).

Any help would be appreciated. Thanks

Could be all three B’s

Best to see a LLMD and get treatment for all 3

I have all these symptoms as well...

Be sure to rule out the obvious causes...

Anemia (do a full iron panel including ferritin)
B12 Deficiency (folate and b12 serum)

I might also consider looking into babesia given the various ANS symptoms. Does she get headaches?

I share this in case it can help, I found it to be a nice overview on the various flavors of symptoms with each of the major infections (granted they can have overlap!): https://conniestrasheim.org/blog/2017/3/6/a-deep-look-at-the-symptoms-of-six-major-lyme-related-infections