Is it just me or do you....?

Always. I truly believe as lyme patients we become overly paranoid and suspicious of every little symptom. You are not alone! (By the way,I sent you an email!)

Yeah I try not to do that but I also have been getting blisters on my toes and was about to post and ask if it was bart lol

physedgirl09 said...
Omg yes girlie!!! It’s like read and I’m like, wait a minute, is it really lyme or is my thyroid just off? Lol. It drives me insane!

I'm not quite as bad as I used to be....I used to work myself up into a dither....thinking all these horrible thoughts...that I'm never going to get better because I didn't do 'this', 'that'. or 'the other'.

There are soooo many rabbit holes to go down.

Not saying some aren't valid...but you know what I mean...it's endless.

Honestly I think this phenomenon is a major benefit of this forum. Unfortunately many of us have inadequate medical care (to say the least) and no one to help us brainstorm about symptoms. Someone might read about MCAS on this site, for example, and it could be the missing piece that lets them get better, you know? I have to believe that there's something out there I'll read someday that will make such a difference for me.

But I hear you that it can be overwhelming at times, might muddy the water, get lost in the weeds, etc. I tend to want reassurance through testing, but also have periods of feeling like I'm the only one who can figure me out, peppered with wanting testing but not wanting to go through the arduous process of getting medical folks to take me seriously enough to test for things I'm concerned about....

Sandyfeet, I know what you mean about not being sure what normal health might feel like. I know I'm far from it, but I really don't remember what it was like! And looking back at the years before I "got sick" I can see how long symptoms piled up that I dismissed as just not taking good enough care of myself, being stressed, etc.

Here's to being here for each other!

The story of my somewhat recent life. When you have as many infections as we do, it's almost guesswork trying to figure out what is causing what. Especially when so many of the symptoms overlap.

I swear, almost every type of medical condition there is causes fatigue, brain fog, and joint pain...

Yes

Psychosomatic- when the mind can influence our feelings in the body especially about dis-ease and wellness.

When doctors are training in med school they are taught to be Very careful when reading the physicians home journal- descriptions of pathologies. Many doctors have realized the mind body connection and had terrible times thinking they were sick with any amount of innumerable illness. It’s commonly discussed to be extremely cautious that our mind can influence our feelings.

....

Be well

I'm not talking about psychosomatic...


I have these symptoms...and I attribute them to bartonella...but maybe it's adrenal issues ( which of course could be caused by bart) and I need to supplement my adrenals...

My feet absolutely kill me in the mornings, this has just recently started about 2 months ago. When I get out of bed from my soles to my toes are so stiff and sore... what causes that?

KentuckyOConnor said...
My feet absolutely kill me in the mornings, this has just recently started about 2 months ago. When I get out of bed from my soles to my toes are so stiff and sore... what causes that?

That is a hallmark Bartonella symptom.

Mine was gone but is back again at a low level

running wild said...
Only font part of feet by toes and toes feel "crunchy."

Mine was the bottoms of my feet.

Interesting...my husband used to have that many years ago....sigh....