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Lyme disease and pain?

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Posted 3/3/2019 3:50 AM (GMT 0)
Hello I have been experiencing some very weird symptoms and don't know where to turn to. I feel terrible 24/7 and doctors keep telling me it is anxiety. Firstly I will name off my body type,race and age ect and then symptoms and you guys tell me what you think.

Personal details
6 foot 6
330lbs
Caucasian
26 years old
Live in Western New York

Health Problems
Enlarged lower chamber of heart
Anxiety

Medications
150mg Sertraline HCL

Symptoms-
Brain Fog - Like im dreaming 24/7 and loosing control of my arms
Nausea
Fatigue
Dizziness
heart palpitations
Virtigo
Confusion
Short term memory loss
Sharp pains all over head
Tinnitus
Hot flashes that feel like skin is burning on arms and face
movement feels uncoordinated

Note
Sometimes it is worse when waking up. I feel like my body is buzzing, extremely fatigued, dazed and confused. Kind of like I don't know what is up from down. I feel like im hallucinating.

also do you have to feel pain or have an elevated white blood cell count to have lyme?

Ok so that is most of it. I feel terrible and it scares me that the doctors don't seem to listen. I have been to my family doctor and to the ER multiple times and they keep saying it is anxiety. I have an appointment with a cardiologist next month and am looking into getting in the neurologist. I am terrified that there is something serious wrong with me but the doctors will not do anything unless something serious happens and it is too late. I try and stay calm but feel so alone. Thank you for your time and look forward to hearing from you all!

Post Edited (Iblackdog) : 3/2/2019 10:02:59 PM (GMT-7)

Posted 3/3/2019 4:03 AM (GMT 0)
Third post............welcome to the club.

Your symptom list is pretty common, maybe not the heart thing though.

Family Drs usually cant help you with this, unless a conventional medical problem is found..

Alternative Drs can to some extent. 90% is learned on our own. Read and learn as much as possible. Welcome to online health college.

Many have been in your shoes and get better, very seldom in less than one year though, unless you've been this way for a short time.

Anxiety is caused by many things that lyme and other health issues can do. Its never an alone problem and anxiety med is a band aid- but some need it if they cant fix the cause.

Check thyroid free t3 and free t4, tsh is not enough.

There are many supplements to regulate cortisol and anziety. Many past posts on this subject.
Posted 3/3/2019 4:24 AM (GMT 0)
Yeah they checked my thyroid but to what extent I do not know. You say there are many past posts but I cant seem to find any based on my searches. Any suggestions on looking? As well I have been sick with these symptoms for about a month or so. Some extending years
Posted 3/3/2019 4:47 AM (GMT 0)
It can be a long road. But first you need a plan.

So it looks like you have not seen a lyme Dr yet, and you dont know if you have lyme or bart or anything else? That is easier for most than learning on your own.

Its slow here on weekends.

There is an art to goggling (keep it simple), everything you mention I have read here in the last four years, so dont freak out, your far from alone.

I had all of your symptoms and more, 90% better now. Ended 12-14 moths of antibiotics 26 months ago. Had this for a few decades, but was functional, some years more than others.

Most healed people leave this place, better things to do, but they do heal.

Post Edited (astroman) : 3/2/2019 9:50:54 PM (GMT-7)

Posted 3/3/2019 4:59 AM (GMT 0)
one more question don't know if you have seen my update. do you have to feel pain to have lyme? Do you have to have an elevated white blood cell? Also how would I go about finding a lyme doctor in my area? Thank you for your fast reply
Posted 3/3/2019 6:08 AM (GMT 0)
Welcome to our community, Blackdog

No, you don't have to have an elevated WBC count and feel pain to have lyme. There are many, many symptoms.

You have multi-systemic symptoms...I think it would be wise to see a Lyme Literate Dr. (LLMD) for an evaluation...and testing.

You could do a Lyme WB IgM and IgG on your own...but you need a Dr. to sign the lab requisition. Would your Dr. be willing?
The best lab to test for lyme is Igenex (California) You can call them and they'll send you a test kit.
The above mentioned tests total $250. Takes 3 weeks for the results.

You could do that, as you're waiting for your LLMD appt. (It can take several weeks to get an appointment with one)

We do encourage our new members look through the thread at the top of the page: "New to Lyme?..Start Here!"


You could do this questionnaire and see what your score is;

http://lymeontario.com/wp-content/uploads/2015/03/horowitz-questionnaire.pdf
Posted 3/3/2019 6:10 AM (GMT 0)
Not everyone has pain, some only nuero.............and they are very lucky as many have/had both.

Elevated white blood cells? - most have low WBC count. This is why CD57 is tested, as this is a set of certain WBC's that are lowered in many people with lyme, and even after lyme is gone. It can actually damage some immune cells. Antibiotics can also lower this, in that case its temporary.

Enable your e-mail, and ask others for Lyme Literate Medical Drs in your area. Drs names cannot be listed on the forum as many endure lawsuits by other "A hole" Drs with a "god complex".
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