Tingling and Lion's Mane

I started taking Lion's Mane a week and a half ago because I've heard good things about it regarding headaches, which are my sole severe symptom left. Unfortunately it hasn't affected my headaches at all but the moderate tingling I feel every once in has almost completely gone away since I started taking it. For those of you with burning pains or tingling it could be worth a shot.

Now I just need to find something that will actually help my headaches too. My neuro is having me get a spinal tap to look for fluid pressure problems, hopefully that will shed some light on things. Anyway, just wanted to share something that seemed to make a difference.

Yes the lion's mane is very powerful. Sorry to hear that it didn't help with your headaches yet. Are you taking the fresh lion's mane or a liquid extract?

By the way could you please describe your headaches in more detail? Do you experience them on a daily basis? How long do they last? Do you ever get those ice pick lightning bolt headaches? Thanks for the additional information.

Post Edited (insomniaaa) : 5/10/2019 11:23:11 AM (GMT-6)

The ice pick headaches you describe are very uncommon for me, I maybe get 1 per month. My headaches are classic tension type: Feels like a tight band around the back, side, or front of head, sometimes a pressure like feeling (and can be tender to the touch every once in a while). I have them pretty much every day, though they can come and go as the day goes on.

The reason my neurologist is doing a spinal tap is because my headaches get better very quickly when I lie down which is characteristic of a CSF leak. If that is what's wrong it's an easy problem to fix so it's worth checking out. I have a few risk factors for developing a spinal fluid leak as well (I'm tall and I have a bicuspid aortic valve, both of which are linked to dural abnormalities). In the meantime I'm trying acupuncture though its benefit has been mild at best.

My headaches are the only significant problem I have left, I'll be off antibiotics finally in a week and a half or so. My LLMD doesn't think continuing them is doing any good (and may in fact be making my headaches worse as they can cause this kind of side effect). I would be happy to hear any advice on how to tackle them. I've modified my diet in any number of ways but nothing I eat (or don't eat) seems to make a difference. OTC medicines usually don't help so I don't take them much anymore.

It's frustrating to have this still be a problem after many months! But it's also encouraging to know I've gotten rid of most of my other problems in the past year or so. One more to go, right?

Noah2112 said...
The ice pick headaches you describe are very uncommon for me, I maybe get 1 per month. My headaches are classic tension type: Feels like a tight band around the back, side, or front of head, sometimes a pressure like feeling (and can be tender to the touch every once in a while). I have them pretty much every day, though they can come and go as the day goes on.

The reason my neurologist is doing a spinal tap is because my headaches get better very quickly when I lie down which is characteristic of a CSF leak. If that is what's wrong it's an easy problem to fix so it's worth checking out. I have a few risk factors for developing a spinal fluid leak as well (I'm tall and I have a bicuspid aortic valve, both of which are linked to dural abnormalities). In the meantime I'm trying acupuncture though its benefit has been mild at best.

My headaches are the only significant problem I have left, I'll be off antibiotics finally in a week and a half or so. My LLMD doesn't think continuing them is doing any good (and may in fact be making my headaches worse as they can cause this kind of side effect). I would be happy to hear any advice on how to tackle them. I've modified my diet in any number of ways but nothing I eat (or don't eat) seems to make a difference. OTC medicines usually don't help so I don't take them much anymore.

It's frustrating to have this still be a problem after many months! But it's also encouraging to know I've gotten rid of most of my other problems in the past year or so. One more to go, right?

Well at least its only one symptom left to deal with. If you don't get it resolved after being off the abx...as WBF mentioned - it could be babesia. Or have you already treated that?

What time of the day do your headaches begin?

Definitely check CSF pressure. I am assuming a MRI didn't show anything?

Noah2112 said...
The ice pick headaches you describe are very uncommon for me, I maybe get 1 per month. My headaches are classic tension type: Feels like a tight band around the back, side, or front of head, sometimes a pressure like feeling (and can be tender to the touch every once in a while). I have them pretty much every day, though they can come and go as the day goes on.

The reason my neurologist is doing a spinal tap is because my headaches get better very quickly when I lie down which is characteristic of a CSF leak. If that is what's wrong it's an easy problem to fix so it's worth checking out. I have a few risk factors for developing a spinal fluid leak as well (I'm tall and I have a bicuspid aortic valve, both of which are linked to dural abnormalities). In the meantime I'm trying acupuncture though its benefit has been mild at best.

My headaches are the only significant problem I have left, I'll be off antibiotics finally in a week and a half or so. My LLMD doesn't think continuing them is doing any good (and may in fact be making my headaches worse as they can cause this kind of side effect). I would be happy to hear any advice on how to tackle them. I've modified my diet in any number of ways but nothing I eat (or don't eat) seems to make a difference. OTC medicines usually don't help so I don't take them much anymore.

It's frustrating to have this still be a problem after many months! But it's also encouraging to know I've gotten rid of most of my other problems in the past year or so. One more to go, right?

Quote -have a few risk factors for developing a spinal fluid leak as well (I'm tall and I have a bicuspid aortic valve, both of which are linked to dural abnormalities).
Do you have Marfan syndrome?? The docs thought I had it, sounds like the tall and bicuspid aortic valve is describing it. It's a genetic thing by the way. I had a spinal fluid leak once after a spinal tap and it was so dreadful.