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Should I notice any improvement from CIRS treatment?

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Posted 5/13/2019 4:50 AM (GMT 0)
Hey everybody I have been treating for CIRS now for almost 2 months and I must say I notice nothing different. My doctor didn’t really say anything if I would feel better through this, but I pretty much feel the same lousy me.

After about the first week I woke up noticing aches & pain, so I figured it was a herx from the binders. I was also constipated, & once everything cleared I didn’t feel as bad.

After the experience I haven’t noticed any changes. No good or bad.

I wouldn’t say I’m disappointed, but I defiantly expected to feel something different from doing this. I was hoping just a tiny bit of a energy boost or cognitive clarity, but nothing.

Is this expected while treating CIRS? Once I’ve been taking the binders, and the rest of the medicine I’m on for 3 months my doctor wants me to take the vcs test to see if I pass it. I sure I hope I do because Im ready to notice some improvement, hoping treating the Lyme & bartonella will make me better.

Post Edited (Max01) : 5/12/2019 10:55:35 PM (GMT-6)

Posted 5/13/2019 2:26 PM (GMT 0)
If the CIRS is due to mold even partially, and you are still being exposed to mold (maybe without knowing it?), then I would not expect you to feel much of a difference with treatment. Which sorts of treatments are you doing? Which tests and symptoms led to your CIRS diagnosis?

Are you treating CIRS first and then Lyme and co-infections later? Anything else you are treating now, like mast cell activation, metals, parasites, gut?

I definitely understand wanting to feel some improvement. I think I would hope for that as well after two months. Perhaps a change in treatment is in order.

For what it's worth, I have mold issues, and I pass the VCS test 100% every time, so it is only supposed to be regarded as one tool among many (i.e. if you score well on it, then don't let your doctor dismiss your CIRS as fixed if you still have not noticed symptom improvement). I found Neil Nathan's book Toxic very helpful in formulating a plan with all this overlapping stuff.

Good luck!
Posted 5/13/2019 4:06 PM (GMT 0)
Sara asked some good questions and made some good comments. Did you remove yourself from exposure (should be verified by labs, especially C4a, TGFB-1, and MMP9 I believe)? Were you negative for MARCONS?
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