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Nasal steroids any one using?

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Posted 5/19/2019 9:48 PM (GMT 0)
Hello,
Anybody here uses nasal steroids for stuffy nose like budenoside or mometasone? Its the only ones i can use, ephinephrine sprays keep we awake.
I read that nasal steroids reduce immune function, i am Afraid this sets back my infections.
Posted 5/19/2019 11:46 PM (GMT 0)
Many people with Lyme avoid all steroids because of the immune system suppression you mention, but some people have used them (usually short-term and at low doses) when the benefits outweigh the risk. There also are people with autoimmune issues caused by or associated with Lyme who feel better on a steroid medication. Definitely talk it over with an LLMD and start slowly. Do you know what is causing your congestion? Is there another way to address it, perhaps?
Posted 5/20/2019 12:48 AM (GMT 0)
I used them for years before Lyme and for a time after Lyme. I believe mold and hormone issues were the cause of my stuffiness. After I stopped having regular menstrual cycles and got out of my moldy house and office, I didn’t need the nose spray anymore and quit.

I do use saline spray, Xlear, and colloidal silver sprays if and when I need something.
Posted 5/20/2019 6:20 AM (GMT 0)
I heard that steroidal nasal spray isn't absorbed into the bloodstream due to the large size of it's molecules. Is this true?
Posted 5/20/2019 6:29 PM (GMT 0)
Thank you WalkingbyFaith for the tips
Posted 5/20/2019 6:49 PM (GMT 0)
Doctors have told me a nasal corticosteroid (Flonase, in this case) is absorbed less than a systemic steroid you might take orally or by injection, but it still absorbs. A steroid of any kind (including hydrocortisone cream on a mosquito bite) would threaten my vision due to a retinal swelling condition, so I have to be careful about anything steroidal. It's so tempting for me to use one sometimes, though, as I find congestion terribly annoying!
Posted 5/20/2019 8:43 PM (GMT 0)

isitlyme said...
Thank you WalkingbyFaith for the tips

You’re welcome! Here’s another tip. If you haven’t already done this, get every bit of fragrance out of your house, car, and office. Everything - personal care products, cleaning products, laundry products, aerosol sprays, candles, plug-ins, car air fresheners, vacuum cleaner air fresheners, diffusers, reeds, potpourri, etc. I would remove essential oil fragrances as well.

Pack them up and store them in plastic bins in a garage. Be extremely fragrance free for at least one month. Longer would be even better. Made a record of the date it’s all taken out and track your sinus and nasal symptoms and headaches if you have them from the start date for the month or longer.

An allergist did this to me when I first got sick 10 years ago, and it was the single most beneficial advice anyone ever gave me. He knew how resistant I was and got in my face said “walk the line.” I agreed, obeyed, and have been grateful ever since. That one major change cut my chronic headaches in half.

The key is doing it 100%. As long as you have any fragrance on you or around you, you won’t see much benefit or know if it is a cause of any symptoms. Mold is the same way. Until you get completely out of exposure from toxic mold and water damaged buildings, you won’t get lasting relief of symptoms caused by it.
Posted 5/21/2019 9:26 PM (GMT 0)
Thank you Saraeli for alerting. I only use it if i am really forced.
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