1 year Bartonella free!

WOW! So exciting!

Can you share what you think was one of the best meds that help shut the Bartonella down?

Thank you for the encouraging post.

Congratulations! Thanks for sharing -- gives us hope.

Happy for you! What combos did you use or who were you seeing? Pulsed or continuous? So many questions haha.

Hey Jackie Moon!

I was wondering if/when you'd be back here to post!!


I know you had a rough go of it for awhile...so happy to hear you're still doing well!!!

I thought about sharing your LLMD name ....but thought maybe you might not want to...

Girlie said...
Hey Jackie Moon!

I was wondering if/when you'd be back here to post!!


I know you had a rough go of it for awhile...so happy to hear you're still doing well!!!

I thought about sharing your LLMD name ....but thought maybe you might not want to...

Thanks! Oh you can share my Doc's name if you want. I wasn't sure if I could on forum because of rules.

Can I share links? If I can't you guys can erase it.

This link outlines my entire treatment plan my Doctor used.
http://townsendletter.com/July2015/bartonellosis0715.html

I wish it was a simple process for you all but as Girlie knows when we email it has been extremely difficult at times ( Beware of adrenal issues). I was very severe with Bartonella symptoms. I had every single one. I was strongly neurological bartonella too. My herxes were deep in the brain many times. Luckly me. I am special. :0

1 year of Biaxin 1000mg
then
1.5 year of Biaxin 1000mg and Rifabutin SLOWLY increased to you get to a mega dose ( I was on 6 a day at the end) and don't herx anymore.

I was on Biaxin and rifampin for 9 months and it did not kill my Bartonella off. My Bart was a pretty strong strain.

Nope.

I mentioned above

Round 1:

9 months of rifampin and biaxin. It didnt kill it all of bartonella.

Stopped.

Round 2:

1 year of biaxin + 1.5 years of biaxin and rifabutin.

Total therapy for round 2 ( not round 1) was 2.5 years.

Yes it was super long therapy but I apparently had a super strong strain of Bart.

I could write a 20 page response on "supportive therapy" but the link I posted tells almost all of it.

I more wanted to encourage people even strong strains of Bartonella can be beaten. I need the HOPE so badly when I was at my worst.

Girlie said...
Well I meant share his initials.. not full name.. lol.

Dr M is who I consider to be the Bart Guru.

Wow - I didn’t realize you were taking that much Rifabutin!

My bart was still with me after more than a year of Rifampin (600 mg daily)

Now I’m on Rifabutin - taking just 2 (150 mg per) each day.
I had the worst herxes EVER on the Rifabutin and I wasn’t even taking it daily.
Almost went to the ER at one point due to severe symptoms.
So you were taking 900 mg daily?!?!



Wow -

That is correct. My Bart was very very strong. Bare in mind you can't possibly start at that dose. You have to work up to it over months. *****This should not be done without some sort of Dr supervision.

Rifabutin is extremely potent vs Bartonella but also massive herxing is very dangerous. It's a balancing act.

Hi Jackie Moon, hoping you will see this and reply.
Just to be super clear about your successful treatment (we all need hope!) you took 900 mg RIFABUTIN (not Rifampin) with your 1000mg clarithro for 9 months??

The reason I ask is that I’ve not heard of anyone going that high on dose (450mg is considered high, and what Dr M has used on some stubborn bart patients). Yours would be double that already high dose.

......you didn’t mean 900mg rifampin?

Post Edited (SuperLuke) : 12/11/2020 12:08:24 AM (GMT-7)