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dont know what to do next after lot of treatments - every opinion is welcome!

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Posted 6/10/2019 8:51 PM (GMT 0)
Hi there,
someone already knows me here, someone not... and I am not happy with this report at all. But...lot of disappointment in recent months.
Fact is, summer is here and this year is hot temperature lot of worse for me - I feel the bed is burning with me!
My problems are the same from the beggining - bad CFS and lot of inflammation feelings.
5 Years was could handle it, last year after some flu I get worse and this year is critical...lot hours of day in bed, hard symptoms.

This all after lot of treatments. I know I had a Lyme and EBV when I was a child and lot of doctors still want me on Lyme protocols, but I did not respond of all treatments in past - no herxes, no nothing... tetracyclines, clarithromycines, rifampicinum, metronidazolum, some IV atbx...
And herbs - Cowden full support for 1 year, now Buhner for 0,5 year - core and Babs... no respond, no herxes... I can drink it in liters and nothing happens. Maximum dosages are no problem for me.
Essential oils, stevia, enzymes...all things for biofilms and persisters...

With this all Im still on big support from supplements - CoQ10, liposomal C, good B complex, E, D, K, Curcumin with piperin, lot of good oils...

Some SC Immunoglobulines from my doc for 2 years now...

10-pass ozone - nothing for me

ketogenic diet for possible mast cell activation and inflammation - massive ketogenic flu and no more for me

HBOT - firts year impressive results, this year nothing for me (absolutely not understand it!)

Sauna, epsom salt bath - this detox methods makes my inflammation harder, another detox methods makes nothing.

Mold things - dont know, I live in good new house for 12 years now...no molds here

Possible gut problems - many diets trying, no allergens...this make nothing too

Heavy metals - lot of amalgams from my mouth are out! Now only 3 amalgams inside, I was on big surgery with wisdom teeths, infection under one is treated - all without effects.

Maybe is there some more in this crazy 6,5 year! But its a fact, I'm much worse over it all. Crazy thing is, on paper - on results (lot of investigation) is lot of results better and better! Im crazy everytime when I see results and feel my body, my CFS and inflammation... all is bad like 500 meters walk for a day and 2 days in bed after this "massive performance".

Sometimes I thought it was psychic (from despair), but fact is, I am very positive most of the time, carrying over a lot of things. Its not like - thinking about my state and symptoms comming, no - symptoms comming and I'll realize it.
This is, why Im little bit uncertain with all that neuro-programming programs... :-/

What do I think about it? Something inside me makes a massive inflammation and this makes all that problems - like chronic-active immune system fighting with something that doesn't exist for some time.

Fact is, I dont now what to do next? :-/ stop buhner and all around, save some money and try some completely different? Im very unsure with the infections in me, but still not find right way...
I think if I get rid of inflammation, I'll be much healthier, but I don't know how to do it anymore...

Everything is welcome! every advice, every tip...this can't work anymore, something must happen ...

Thanks a lot, Martin
Posted 6/10/2019 9:03 PM (GMT 0)
Maybe ask your LLMD to try something like Mepron with an antibiotic to tackle babesia
Try it for a month - see if u react.

Also - do You take anything for MCA - like Quercetin ?
Posted 6/10/2019 9:35 PM (GMT 0)
getting the amalgams out is only the first step of mercury detox. You have to chelate once they are all out, the mercury is deposited deep in your tissues and only chelation will get it out.

Now, I don't know if mercury is your main issue or not but it certainly could be. If I were you I would get the remaining mercury out and then chelate with OSR, the only mercury chelator that crosses in the nerve and brain tisses. Join the facebook group called

Irminix / NBMI / Emeramide / OSR

and ask there.
Posted 6/10/2019 11:20 PM (GMT 0)
Hi, Martin,

I'm sorry this is so frustrating and mysterious! The aspects that occur to me that could be issues for you are parasites, adrenal issues, and molds that you are not aware of. Have you had stool testing, hormone testing of all hormonal systems (thyroid, sex hormones, adrenal hormones), and/or mycotoxin testing? Have you tried frequency devices, like rife or AmpCoil? Hope you find some helpful ideas very soon and feel better!
Posted 6/11/2019 10:13 AM (GMT 0)
Hi all, thanks a lot for some answers ;-)
I'll take it in sequence...

Yes - lot of Quercetin for MCA. Can there be such a difference between Mepron and buhner babs herbs? Because I not react on herbs for babs. Bad thing is, Atovaquone is hard to find here in Czech.

I had a lot of amalgams in past - 7-8 pieces in my mouth! But...trying all 6 years when Im ill glutathione and alpha-lipoic acid (sometimes big doses for provoke tests whether it will make me worse...).
Im little bit scared from DMSA of more from DMPS when if I still have a few amaglamas (hope this year my dentist remove all).
Thanks for that group info! In general - does chelation seem dangerous to you? Something to avoid?

Yeah, lot of testing of my adrenal and hormones...my thyroid is in very good condition. Only in morning I have sometimes low cortisole. My mornings are most bad from day - inflammation from night.
Mycotoxin testing is one of things what I do not have. Highly recommended?
Is there some "home provoke testing" available?
It seems to me that some particles are moving in my eyes occasionally...I don't know how to explain it with my bad english skills... it's like looking through a microscope...

Yes - I had some experiences frequency devices, without results :-/ I had at home for some time and worked regularly.
Posted 6/11/2019 11:17 AM (GMT 0)

MartinK said...
Hi all, thanks a lot for some answers ;-)
I'll take it in sequence...

I had a lot of amalgams in past - 7-8 pieces in my mouth! But...trying all 6 years when Im ill glutathione and alpha-lipoic acid (sometimes big doses for provoke tests whether it will make me worse...).
Im little bit scared from DMSA of more from DMPS when if I still have a few amaglamas (hope this year my dentist remove all).
Thanks for that group info! In general - does chelation seem dangerous to you? Something to avoid?

Yes - I had some experiences frequency devices, without results :-/ I had at home for some time and worked regularly.

Yes Chelation can be very dangerous if done inproperly.

I can only recommend the “Andy Cuter Chelation” Protocol. Very low dose mulit year process. Join the Facebook group and ask the members. I’m one and doing very well.

I’m not only working also expanding my responsibilities. Just got back from a fishing trip where I was able too keep up with my 25 year old nephews.

So yes its working very well for me and many others.
Posted 6/11/2019 1:51 PM (GMT 0)
The microscope-like eye experience sounds like what we call floaters, if it's just visual. Is it just a visual symptom - stuff you see - or do you feel like there's particles in your eyes as well?
Posted 6/11/2019 1:52 PM (GMT 0)
Thanks Mark FW!
You did some testing for heavy metals? And...your main problem of heavy metals was amalgams? Symptoms like CFS/inflammation?

You recommended remove amalgams and after this start protocol, or start with some amalgams? Term for my dentist are long, 4 amalgams still in my mouth.
Posted 6/11/2019 1:55 PM (GMT 0)
saraeli - sometimes I have a feeling like this particles are moving. really hard to say. but fact is, my vision is worse than before 6 years... and more when my CFS is hard...blurry
Posted 6/11/2019 2:38 PM (GMT 0)

MartinK said...
Hi all, thanks a lot for some answers ;-)


I had a lot of amalgams in past - 7-8 pieces in my mouth! But...trying all 6 years when Im ill glutathione and alpha-lipoic acid (sometimes big doses for provoke tests whether it will make me worse...).
Im little bit scared from DMSA of more from DMPS when if I still have a few amaglamas (hope this year my dentist remove all).
Thanks for that group info! In general - does chelation seem dangerous to you? Something to avoid?



Yes - I had some experiences frequency devices, without results :-/ I had at home for some time and worked regularly.

okay first off you can't do DMSA/DMPS with amalgams still in your mouth, no absolutley not. Big doses of lipoic acid are a terrible idea also with amalgams still in your mouth. OSR is much much safer and gentler on your system than DMSA/DMPS. Its got a half life of 22 hours which means all the mercury it binds will be carried out of your body, as opposed to dmsa which drops mercruy after just a few hours.

I encourage you to get your amalgams out and then see if you can get some OSR (also known as emeramide etc.) Its very safe and very effective at getting the mercury out of your body.
Posted 6/11/2019 3:24 PM (GMT 0)

Lapis_29 said...

MartinK said...
Hi all, thanks a lot for some answers ;-)


I had a lot of amalgams in past - 7-8 pieces in my mouth! But...trying all 6 years when Im ill glutathione and alpha-lipoic acid (sometimes big doses for provoke tests whether it will make me worse...).
Im little bit scared from DMSA of more from DMPS when if I still have a few amaglamas (hope this year my dentist remove all).
Thanks for that group info! In general - does chelation seem dangerous to you? Something to avoid?



Yes - I had some experiences frequency devices, without results :-/ I had at home for some time and worked regularly.

okay first off you can't do DMSA/DMPS with amalgams still in your mouth, no absolutley not. Big doses of lipoic acid are a terrible idea also with amalgams still in your mouth. OSR is much much safer and gentler on your system than DMSA/DMPS. Its got a half life of 22 hours which means all the mercury it binds will be carried out of your body, as opposed to dmsa which drops mercruy after just a few hours.

I encourage you to get your amalgams out and then see if you can get some OSR (also known as emeramide etc.) Its very safe and very effective at getting the mercury out of your body.

Question. Do you use this protical?

If so how long?

What is your experience been?

How is you heath overall now?
Posted 6/11/2019 3:56 PM (GMT 0)
“....Can there be such a difference between Mepron and buhner babs herbs? Because I not react on herbs for babs. Bad thing is, Atovaquone is hard to find here in Czech.”

Yes!

Maybe the malarone (pill form) can be found?
Posted 6/11/2019 4:20 PM (GMT 0)

Girlie said...
Maybe the malarone (pill form) can be found?

Inhousepharmacy sells it. I don't know if they can ship to Czech tho.

Maybe you can get disulfiram? That is reportedly effective for babesia.
Posted 6/12/2019 6:22 PM (GMT 0)
Hey, malarone is here in Czech, maybe little bit problem to find doctor to prescribe, but good point for look! ;-) Thanks!

emeramide (OSR) hear for first time! any articles about this thing?
Posted 6/12/2019 7:11 PM (GMT 0)
better than rocephin for inflammation is bee venom therapy . documented 4 x more powerful than corticosteroids... and wont cause deep depression like mepron while easily killing babesia...
Posted 6/12/2019 7:22 PM (GMT 0)

MartinK said...
Thanks Mark FW!
You did some testing for heavy metals? And...your main problem of heavy metals was amalgams? Symptoms like CFS/inflammation?

You recommended remove amalgams and after this start protocol, or start with some amalgams? Term for my dentist are long, 4 amalgams still in my mouth.

Yes I did a hair test. Symptoms too long to list. There are supplements you can take to negate the effects of Mercury prior to Amalgams being removed.

However I'll stop here with any further recommendations outside of joining the FaceBook Site "Andy Cutler Chelation"

It would be irresponsible for me to provide any further Chelation guidance on this forum. Anyone making detailed recommendations on Chelation in a forum like this is, perhaps unknowing, also irresponsible.

This group mentioned follows a very well defined protocol that is known to help most people immensely. Also outlines what not to take. Much of these products are talked about casually on general forums that are actually very dangerous. Trolls pushing products,, random posting of internet/pubmed links which are mostly to promote product sales are not allowed.

Im not saying everyone who posts a link is pushing a product but managing your heath is serious business. Taking heath advice from random folks is irresponsible on your part.

Some Parting Advice to all

Do your homework..

Look for a group that is treating generally in the same way and getting mostly the same results. (good that is)

And sorry to be offensive to some but this is it:

If your not using it or used it with good results you should not recommend it. Period.

If your not getting significantly better, you have no business giving any Heath advice. You should be listening
Posted 6/12/2019 9:47 PM (GMT 0)

Mark FW said...


Question. Do you use this protical?

If so how long?

What is your experience been?

How is you heath overall now?

I just started on OSR about 6 weeks ago and have made more progress on mercury toxicity than I did with 5 years of Cutler protocol.
Posted 6/13/2019 8:49 AM (GMT 0)
@bluelyme: Thanks for mentioned bee venom therapy. You have your own experiences? Any articles about it?
I found out in the past, its available in Czech Republci too.
Posted 6/30/2019 9:44 AM (GMT 0)
Hey all,
some good steps info next treatments and hopes!

- I find BVT here in Czech - Im booked on, only waiting for results on allergy blood test on BV poison.
- Now waiting for results from hair tests - heavy metals
- go for low manganese and histamine diet
- I'm trying to find out and learn about Chiari and Craniocervical Instability - because my back and cervical spine too (I'm looking for a connection to see if it can be post-lyme trauma), this is on longer way - I need make some MRI - ideal 3T and send pictures for good neurosurgeons - try neckbrace and see what is happen.
Posted 6/30/2019 12:56 PM (GMT 0)
Thanks for the update, MartinK. You have a lot of things planned! I hope that one or more of them provides you some relief very soon.

I just read back a few posts in this thread and noticed your comment about neurological rewiring programs. They are not meant to correct the damage done by depressed mood or negative thinking, not primarily. They can do those things, but they correct the neurological pathways that perpetuate disease and symptoms, including things caused by viral damage, hormones, inflammation, mast cell issues, etc. - very physical problems. They do this by using your emotions as a tool to activate parts of the bran that control other things. The programs use the concept of neuroplasticity to heal a brain injury (like a stroke), not a mood disorder.

Obviously it's fine if you're just not interested, but it's a very common misconception that these programs are just aimed at people who are depressed and anxious, or that they just unscientifically promote positive thinking as a cure for disease. It's much more than that.

I hope that one of your new treatments makes a big difference. Let us know how it goes!
Posted 6/30/2019 5:19 PM (GMT 0)

MartinK said...
Hey all,
some good steps info next treatments and hopes!

- I find BVT here in Czech - Im booked on, only waiting for results on allergy blood test on BV poison.
- Now waiting for results from hair tests - heavy metals
- go for low manganese and histamine diet
- I'm trying to find out and learn about Chiari and Craniocervical Instability - because my back and cervical spine too (I'm looking for a connection to see if it can be post-lyme trauma), this is on longer way - I need make some MRI - ideal 3T and send pictures for good neurosurgeons - try neckbrace and see what is happen.

Do you or a Dr suspect Chiari?
Posted 7/1/2019 1:43 AM (GMT 0)
Why low manganese diet? You will only be depriving your body of manganese as the bacteria will eat whatever they can find...
Posted 7/1/2019 1:57 AM (GMT 0)
agree with jb - If lyme is consuming a mineral - then all the more reason to supplement it .
Posted 7/1/2019 1:59 AM (GMT 0)

bluelyme said...
better than rocephin for inflammation is bee venom therapy . documented 4 x more powerful than corticosteroids... and wont cause deep depression like mepron while easily killing babesia...

I didn’t get deep depression while on Mepron...

Guess I was lucky.
Posted 7/1/2019 3:35 AM (GMT 0)

RainyCloud said...
girlie that's interesting. antibiotics are weird that way. I got really anxious on Dapsone.

I think I was somewhat anxious on dapsone and daraprim - because I read about the risks/side effects (more than once) and the Methemoglobinemia (I spelled it wrong) really freaked me out. Plus I had some really bad herxes that I thought might be Sepsis...

A couple months later after I was almost finished that protocol I asked DrJ about it and if he’d seen it happen - (the Methmoglobinemia) he said he had (I think he said a couple times) but not at his practice.
He told me then that I was reacting to the Rifabutin.
I got off the phone and told my husband I didn’t think he was right because I had taken the similar med - Rifampin for over a year with no herxes like that.
A couple months later - the Daraprim and Dapsone were taken out of my protocol and I was on Rifabutin plus two other abx.
...And I herxed similarly - Dr J WAS right - I was herxing hard on Rifabutin
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