Suddenly developed POTS. Treatment?

So for about a month I was hitting my Lyme with tons of antibiotics and had to stop cause it felt like it was killing me. And after a week I started to develop pots. 😢

Laying down my heart rate would be in the 80s to 90s and standing up my heart rate would jump and stay anywhere from 120 to the 150's.

So my question is those that have gotten pots from Lyme what have you guys used to treat or help it? Luckily my cardiologist prescribed me a beta blocker called metoprolol and it's been keeping my heart rate under 100 while standing. Which that's good and all but id rather treat the root cause instead of just symptoms. Which I guess the root would be lyme. Lol.

So anyways what do you guys use for you Pots? Supplements / herbs? Medication?

I used metroprolol too for about 6 months and it did help some. Started to make my blood pressure to low so I stopped it and wanted to get off it anyways. I was worried it contradicted with some other meds. about 9 months of abx did help some. It was mostly babs treatment with some bart and lyme thrown in it. I used to be 60bpm to 110 standing. now only go up about to 80bpm. Are you able to do any exercise or physical activity? At my worst I could barely walk without my rate going up to 130-140. Now I can walk but thats about it. Wish I had an answer for you and hope you find one.

trekkar said...
I used metroprolol too for about 6 months and it did help some. Started to make my blood pressure to low so I stopped it and wanted to get off it anyways. I was worried it contradicted with some other meds. about 9 months of abx did help some. It was mostly babs treatment with some bart and lyme thrown in it. I used to be 60bpm to 110 standing. now only go up about to 80bpm. Are you able to do any exercise or physical activity? At my worst I could barely walk without my rate going up to 130-140. Now I can walk but thats about it. Wish I had an answer for you and hope you find one.

Well hopefully I can find something to help lower it over time. And yeah I have to watch my blood pressure to because it's already on the low side. I've been on metoprolol for about a month now and my bp averages around 100 / 75. So not too bad. But I noticed if I take garlic or a few other things it can get too low. So I definitely got my eye on it.

Donjr said...
Also do some lumbrokinase because your capillaries are clogged with fibrin that is what causes lyme pots not enough oxygen getting to your muscles so I am told. Look at your legs do you have small red dots not raised bright red though?[url]

What's lumbrokinase? And I can't say I have any red dots on my legs.

With POTS you need to maintain your blood volume, which involves calibrating your hydration and electrolytes. Basically eat a lot of salt when you drink extra water, and make sure you get enough potassium as well. Salt Stick Vitassium or similar sodium-potassium pills can help if it's hard to do dietarily. If you are deficient in nutrients your body uses in blood production, then that can be helpful, too (iron, B12, and vitamin C, but don't supplement iron unless you know for sure that you are deficient). Compressions stockings, recumbent exercise, avoiding heat and MCAS flares, and some leg-clenching physical therapy can help, too. Fundamentally POTS is a form of dysautonomia, or nervous system dysfunction. Focus on treatments that help you with nervous system symptoms, including proper minerals, lion's mane, burbur-pinella, Jernigan Neuro-Antitox, meditation, and the DNRS program for limbic system retraining. People have mixed results with meds, but there are a handful that can be helpful. There are a lot of posts about POTS on this forum if you want to search for other ideas and anecdotes.

That salt method is not a good fix it is cause by aldosterone being low and fibrin in the body, the fibrin is what the bugs use to make biofilms, florinef is better than the adding salt, florinef will cause your aldosterone to keep more salt thats why it is the brst solition but i just did not want to go there, when the heart doc told me what causes it i found what worked for me, i use dr best lumbrokonase take one am and one pm on empty stomach 1hr before food. I think that and the coq10 is what fixed mine but it might come back who knows. Water lots off it can cause more blood flow the same as salt drink a gallon a day but not real fast, the pots is caused by bartonella it leaves fat deposits on the heart valves that is why lumbro and coq10 i think worked the lumbro dissolved it and the coq10 makes the muscle contract harder

Very true, but the cardio said that the fat deposits cause the valves and the chamber to not get enough pressure and the contraction to pump enough blood through, thats what i have been told and this is why you have to remove the fibrin and fat, the signals is rhythm not blood flow, the hear will not rest properly and that can cause diastolic disfunction of the left ventricle. So have to fix the blood flow coming out of heart salt adds water to the blood vessels whick increase the blood volume in the veins but not the amount coming from the heart so the heart is sick somewhat. Not majorly but can be worse if the problem not addressed. The heart tries to raise the beats to get enough blood and oxygen to the brain, the fibrin in the capalaries cause in lungs cause not enough oxygen to get in blood. Does that make sense? Do a simple fibrin test if you have bart and lyme and have pots it will tell u what i am saying! Mine was 1864 and high was 380 dr wanted me on heparin but i went natural with lumbro had to test every week to prove to dr it would wour now mine is 106 with two weeks on lumbro no more muscle issues for now fingers crossed because they getting oxygen now woohoo

I will post the test later tonight when i get home

Well, eating more salt may be necessary, but why is the aldosterone low? Usually this is due to antibiotics which increase cytochrome P450 enzymes and destroy the aldosterone, eg rifampin. Also trimethoprim (bactrim, septra) can cause salt loss.