DNRS experiences?

Hi all, I'm still wondering (for almost a year!) whether to buy DNRS...but it's my birthday now, and my parents want to buy it for me as a present.
Now Im on disulfiram, MCAS drugs and sleep medications. Main problems - hard CFS, ortostatic intollerance, muscle pain after activity, inflammation, sleep problems.

The most important question - can I do it with a poorer knowledge of English? Thank you!

Martin, your written English is better than that of many native speakers. I really think you would be fine. Annie Hopper does a good job at explaining everything and not relying on technical jargon without telling you what it all means. DNRS does help with the symptoms you listed.

I watched the videos over three days, I believe. I'm excited for you!

I just started this. It's been one week. I haven't had any improvements as yet. Maybe I'm getting impatient? I got really excited when I watched the video of one of the participants who said after one day of practice her sound sensitivity was gone. Mine is still there. I guess everyone is different.

Sara, do you do the movements too? I don't. I hope it's still effective despite omitting this part. Also, I have weakness and I'm sitting a lot so I do my practice while sitting.

To the other people who are giving it a try, please post how you're doing with it.

If you are physically capable of doing the movements, then do them, but if you cannot, then be sure to imagine that you are doing them. (Annie Hopper describes why this works, mirror neurons, etc.) I do the movements most of the time.

For the first couple of weeks, sometimes the nervous system fights back against being rewired, and some neurological symptoms can flare for a while. I felt agitated, depressed, foggy, and had more nerve pain for the first two weeks. This is normal and will pass. If this happens to you, then push through. My LLMD knows Annie Hopper, and she confirmed that this symptom flaring happens to people fairly often, and it's not at all dangerous or a reason to discontinue or slow the practice.

Symptoms disappearing in one day is not typical! But I would think that you will see some noticeable difference within a month.

Are you doing well with the mindset changes and other components of the program (not just the rounds of the steps)?

When I first started the program, I had POTS and myositis, plus gastroparesis and peripheral neuropathy, and was bedridden, and needed help to bathe myself. Just visualize the DNRS practice, if that's all you can do. If you are saying the words and doing the motions in your imagination, then it still counts, until you can do more physically.

I don't remember mild exercise being part of the program except in the sense that moving one's body is good, especially if it's part of your "training zone." But you're definitely not supposed to push yourself with exertion, and you're definitely don't have to be able to exercise to be committed to the practice and see benefits. I certainly could not exercise, especially at first. Can you refresh my memory about the exercise part?

The mindset changes are tough at first, no doubt. I used markers to write reminders and phrases and lists on papers that I taped all over one of my bedroom walls, where I could make myself read over them all day. That made it much easier to remember and remind me. Key phrases, ideas for grounding, adjectives I'd like to embody, memories for visualization, etc. I know it's so hard not to be jaded after dealing with an illness like Lyme that knocks us down and disappoints us repeatedly, but for DNRS to work, we really have to do our best to believe that it can help and give it a real chance. That's the only way our nervous systems can rewire and our systems in general can resume normal function. I'm rooting for you.

@saraeli: Hi saraeli, "boot camp" was really great and Annie did a really good work!
Its a 14 days since I started it and now I think its a pretty good program.

I feel really comfortable, calm and positive. It's really hard but I try. I think that really shortened my PEM (post exertional malaise) after activity and do not feel restless before bed anymore.

But I can't stand on brands yet, I do everything with visualizations. Thank you for the suggestions you wrote in the previous message. Do you remember how fast your improvement came? Any other tips for a successful retraining?

Martin

I havent felt any improvements and I've been doing this for a month now. I'm starting to really second guess the effectiveness of this program. But I'm still going to give it 6 months because I paid a lot of money for it! Just feeling disappointed right now