Posted 7/11/2019 10:34 PM (GMT 0)
LLMD prescribed Ceftin & Zithromax and has me taking probiotics to keep things in check.
LLMD is on my dime, my insurance Dr.s wouldn't even consider treating me due to 2 negative WB's. Fortunately, my LLMD is in an environment (a hospital/clinic that doesn't snub his methods) that supports western medicine, holistic and naturopathic along w/acupuncture too but I'm not using any of that.
He has diagnosed me clinically. I haven't had any more tests done. The fact that he is treating me says a ton. I/we are in the upper midwest/western Wi.-an endemic area & I spend a lot of time outdoors during spring/summer/fall. He has seen a lot & has been treating lyme for a long time. I had to wait a little over 4 months to see him.
Ceftin was 1 week on/off. zithromax is m-w-f constant. If I'm seeing progress, it is slight and very difficult to tell if there is progress. I didn't notice anything until nearing the end of May and even then, I'm not sure. June gave me a total of 6 "good" days w/June 2nd being friggin' awesome! This was after a frightening 2 days prior. Weird weird weird.
My insurance Dr.s have me diagnosed w/MND/ALS. I've been having issues for 2 yrs as of March this year. Woke up one morning back in March '17 with weak left hand and it is still weak. My speech/tongue started to take a tumble last spring into summer. It still gives me grief but it's not constant. It's around most of the time but does go away from time to time. My right quad started bothering me late in '18 but it has been an off/on thing. Any of my issues can improve/decline within hours it seems & there are many of them.
Anyway, w/out getting into ALL the up/downs & in betweens...............
I had a follow up w/my LLMD Wed 7/3. He has switched my ABX around. I've stopped the ceftin, started metronidazole 2wks on/off, rifampin and zithromax m-w-f constant. I didn't start this regimen till monday 7/8 cuz we were camping and I wanted to imbibe in some drinking. Metronidazole acts like anabuse w/alcohol. I'm not a drunk but wanted to enjoy myself at least a little bit. ;)
So, 4 days in, my left knee aches. It started last night (it never ached before). Last night I had snotty half assed plugged nose that took quite a few attempts to blow it out. Today, early on at least, my hips kinda hurt/ached and general muscle ache below my waste. My right quad has been an on/off issue for me for months anyway so I can't say if it's flare up has anything to do with anything. So far, things are mild/tolerable.
I'm flying this by the forum to read other's reactions. My LLMD is on vacation till 7/25 so he's currently unavailable. Not that I'd contact him at this early stage of the "change" anyway.
Thoughts?
Thank you