Rx Antifungals - questions & concerns

WalkingbyFaith - "I know I am my own worst enemy. I question everything, trust no one, and make everything harder than it has to be. I’ve been like this my whole life (sigh). "


That is me. I understand.

My questioning started when I was about 5 years old. Frustrated my parents...and now sometimes my husband.

Although I chose the antibiotic route to treatment - I can tell you that I have googled each one of the ones I take a million (slight exaggeration) times for risks / side effects and all that did do is make me hysterical and question what I was doing.
When I swallow the pills...I imagine what damage they may be doing...to other parts of my body....

But, I do believe the abx are the way to go...so I continue on....in angst.

If you are feeling badly now....I would try it. Can you ease into it...ie low dose?

What sort of schedule is he wanting you on to take it?

I take fluconazole 2 days a month.

Hey Walking

I know you and I both fit pretty well into the CIRS category and I'm also highly sensitive to mold. I'm on fluconazole now and it's my third time taking it. It has never bothered me. I think one time it even reduced my sugar cravings a little. I've always been pretty stringent on keeping yeast at bay with diet and supp.s but fliconazole has never been an issue, though and i don't havenany reason to believe i became resistant to it

You know your body the best, though

WalkingbyFaith said...

Aerose91 said...
Hey Walking

I know you and I both fit pretty well into the CIRS category and I'm also highly sensitive to mold. I'm on fluconazole now and it's my third time taking it. It has never bothered me. I think one time it even reduced my sugar cravings a little. I've always been pretty stringent on keeping yeast at bay with diet and supp.s but fliconazole has never been an issue, though and i don't havenany reason to believe i became resistant to it

You know your body the best, though

Thank you, Aerose. One of my main concerns at the moment is that I am in really bad mold exposure with no real way to get in a safe place. I don’t know if it’s safe to take it while still exposed.

I’m not good with diet, although I have been staying away from sweets much better since restarting Candicid Forte. I do eat a lot of fruit, though.

I never had sugar cravings before getting sick but since then sometimes it's so bad Im literally shaking. I'm good on diet 95% of the time but if i slip and eat some nuts or a couple berries I'll fall right back into it. The mast cell issues are also a factor.

If someone could solve the sugar craving issue I'd love them forever.

Are you thinking of trying the fluconazole? Im currently taking it while living (at the moment) in my parents' house which im sure is moldy and still no problems with it

shave off a tiny amount of the pill and take just the smallest amount and see how you react. Then take a very slightly higher amount. etc

your first dose could be super tiny. Even if you have a negative reaction at that does it shouldnt be too bad.

Lapis,
Thx for the tip.

k07,
Thank you. This is helpful. If I remember right, you moved to a house about 2 years old, right? Are you the one that has a lake house that had some mold? Sounds like you did not test for mold in the new house.

So you finally saw Dr. O? Please tell. I want to hear all about it. What was your impression? Did he tell you to do the ERMI or HERTSMI-2 on the house(s) to verify levels and sources of exposure?

I didn’t dream my relative’s house had gotten this bad. HERTSMI-2 went from 4 to 18 and asper/pen from 90 to 970. I’m being exposed to massive amounts of Fusarium but don’t know if house or car, as it’s not on ERMI or HERTSMI-2. Now I am super sensitive again and reacting everywhere. My car is bad, and I am sleeping in it to avoid the relative’s house. I’m in a nightmare.

Are you still in NC? I found a mold inspector there on the ISEAI site who sounds wonderful - Linda Eicher.

Hope you will post more about your appointment.

WalkingbyFaith said...
Lapis,
Thx for the tip.

k07,
Thank you. This is helpful. If I remember right, you moved to a house about 2 years old, right? Are you the one that has a lake house that had some mold? Sounds like you did not test for mold in the new house.

So you finally saw Dr. O? Please tell. I want to hear all about it. What was your impression? Did he tell you to do the ERMI or HERTSMI-2 on the house(s) to verify levels and sources of exposure?

I didn’t dream my relative’s house had gotten this bad. HERTSMI-2 went from 4 to 18 and asper/pen from 90 to 970. I’m being exposed to massive amounts of Fusarium but don’t know if house or car, as it’s not on ERMI or HERTSMI-2. Now I am super sensitive again and reacting everywhere. My car is bad, and I am sleeping in it to avoid the relative’s house. I’m in a nightmare.

Are you still in NC? I found a mold inspector there on the ISEAI site who sounds wonderful - Linda Eicher.

Hope you will post more about your appointment.

New house was tested. Lake house has some Aspergillus. My joints hurt more there. And I had a really weird experience once when there was a bad lightning storm. Literally felt like my body was not mine. Like restless leg all over and electric. I think there’s a strong link with parasites & mold.


Sooo, the appointment was different. He doesn’t seem big on lots of supps or even bloodwork. Didn’t say anything about lyme & co or even think mold was an issue for me. He tests everything with ART, which I must admit I struggle with believing. But I am following it all to a T and if I see results I will be a believer. He’s focusing on detox & binders right now and did a treatment based off Lyme Stop (did this for parasite & fungus/candida). I continued to have parasite symptoms so doing the albendazole which should get here Friday. I’m quite excited to get that started bc of my big reaction to it the first time. I also felt less reactivity in stores - which I hadn’t expected. I started getting reactions again though as well as a lot of night symptoms (itching, restless leg, insomnia). So clearly whatever “it” is, isn’t gone.

No longer in NC. I do hope you can find somewhere safe soon. I think the south is hard for some of us. Have you always lived there? I grew up in OH and was fine. Started the weird symptoms about a year after moving to NC. But we also bought the lake house at the same time. Hard to know...

I’m rooting for you. We just have to keep trying something.

I'm not sure if my reactivity is mold or chemicals but if I had to guess I'd say chemicals. Less reactivity in the weeks after first dose of albendazole. We'll have to see if I experience the same improvements when I take it again.

Binders are zeolite and takesumi supreme.

Based on what remedies I tested positive for on ART, he thinks hookworm. It's so gross to think about it.

Post Edited (k07) : 7/22/2019 4:13:10 PM (GMT-6)

WalkingbyFaith said...
Okay, I picked up the Rx. Now I’m really worried.

It’s Fluconazole 100 mg tablets. Says take 1 tablet EVERY DAY.

I see others are taking this a couple times a week or month. This says daily.

Also says:
- may cause dizziness
- may impair ability to drive
- Important: finish all this medication unless otherwise directed by your doctor
————————-

If I have Candida (and especially if I have heavy metals) and get die-off symptoms, this could nearly kill me.

I took one S. boulardii capsule a year or so ago and had awful symptoms the next day, I assume from Candida and metals. Many months later, I took another S. boulardii and didn’t have the same reactions. Still, this is Rx antifungals, not a supplement, so I would expect the effects to be much more pronounced.

I took diflucan daily (100 mg) for a few weeks. I did not experience any side effects or die off - but everyone is different. I only ever noticed positive effects from it.

Just a tip of you want to take potassium...get some no-salt or sodium substitute. Its made with potassium. Also magnesium is known to kill sugar cravings.

ACV personally activates my mast cell issues which a lot of us have so also keep that in mind

Hey guys!! Thank you for your help with this.

I started the fluconazole last week. Days 1-3 with 1/3 tablet. Days 4-7 with 1/2 tablet.

I was already apparently having mast cell reactions due to mold before this and had started AllerDHQ for that, which seemed helpful at first. My reactions initially were whole body inflammatory burning pain and feeling swollen in response to almost everything in the environment - mold, fragrance, chemicals, whatever.

After starting the fluconazole, I started having noticeable reactions to food. I don’t know if I have had any die-off from the meds, as I can’t tell from stool. The only adverse symptoms I seem to have is increased MCAS issues, especially to food, which is really scary to me.

Did anyone else have a flare or onset of MCAS symptoms when starting antifungals?

Just trying to figure out if this MCAS stuff is all from mold exposure and my body going off the cliff, or if it’s partly from the antifungal.

Post Edited (WalkingbyFaith) : 7/30/2019 7:30:15 AM (GMT-6)

I took fluconazole (diflican) 100 x 2 per day for the first few weeks for candida, Ive not had mold issues that I know of.

My reaction I think were a kind of candida herx, after three weeks I had warm flowing sensations in entire body. Kind of like riding a motorcycle on pavement on a really hot day- it sucks- you hit "waves of heat";.............thats what fluconazole (diflican) felt like to me.

Used for two months. prob solved, co candida when all else failed.