Update - Cleveland Clinic

I was prescribed propranalol for my pots but didn’t take it.
I read it can lower blood pressure and mine is already quite low...

So they’re saying you don’t have active infection anymore..
but what about your headaches, dizziness, fatigue? Are they saying that is from POTS too?

I did read an article where Dr H said that POTS may or may not resolve once treatment is finished.

The HR symptom is exactly similar to what I’ve experienced when I’m having symptoms - for me it goes away after a few weeks/months of antibiotic treatment. While I was on my Babesia protocol for 135 days (Malarone, Zith) from March until end of July it improved greatly. Now that I’m 10 days out from not taking those (in this 10 days I did take 4 days of doxy and bactrim and abandoned that because the bactrim made me so ill) and haven’t taken anything since Thursday morning besides supplements it’s already back again. I ran for 2-3 minutes on the treadmill yesterday and my HR was up at 170+, which obviously shouldn’t happen if you’re 35. My thought is that the anti-inflammatory effects of the antibiotics help control the POTS. I’m hoping that your Doctors are right and that it will go away in time. When I was symptom free from Sept-Jan I had no HR issues at all. It came back in January and that tipped me off that something was wrong and I tested positive for Babesia Microti antibodies via MDL. I still wouldn’t rule out a lurking infection necessarily but it could just be neuro damage that needs time to heal (nerve healing is very slow).

Good to hear from you again, I believe you and I have had similar journeys. I’m coming up on 2 years of almost continuous treatment in October and I’ve started to think maybe it is the post-treatment Lyme disease syndrome that isn’t well understood by anyone but is thought to resolve on its own over time. Keep us updated!

It is interesting how these infections mess with our nervous system. I definitely don't want to say that all your symptoms can be explained by POTS, but brain fog and headaches etc, don't seem far fetched at all.

If your blood pressure and heart rate is all messed up it seems logical to me that you can get weird head symptoms from lack of proper blood flow to your head.

I had POTS like symptoms about a year ago, my LLMD said if it continued for 1-2 more visits(i was going every month) she would officially label it as pots, but basically the table tilt test would send my heart rate sky high and my blood pressure dropped a bit.

Also i would do a test where i would sit with a heart rate in the 80s(already to high) and then stand up and walk in place, within a minute or two my heart rate would hit the 150s (i'm 33).

What helped me with that was exercise and hydration, as impossible as it sounds i started walking, then jogging, then lifting light weights and now i run 3-5 miles about 3 times a week. I occasionally still get really high heart rate early in the mornings, and my resting heart rate is still too high, but i can actually tolerate moderate exercise well.

I would recommend you try the medicine for a while, who knows it might help, but staying active is very important for you neuro system to self regulate.

Yea, i have. I mean, i have good weeks and bad weeks. I don't know what causes the ups and downs, but overall i have more energy. A year ago, i would come home, plop down in my bed or on my couch and that would be it for the night, rinse and repeat during the weak. My house was constantly a mess, and couldn't be bothered to make food or anything.

Now if i'm not exercising that day i usually have the energy to do the dishes or whatever, still only one real activity beyond work every day. But definitely an improvement