CD57 question

I know it’s not the end all be all but I had my CD57 done by Labcorp late 2018 that came back 126 and just this week had it come back 106.

What do you guys make of that?

What’s usually the range where they say okay maybe it’s not chronic Lyme. Over what number?

Thanks Girlie,

Just trying to narrow down what’s going on.

My labs basically all come back normal now ( cd57 was the last one to be off). It was around 50 for a few years.

My C3a, C4a, VIP, VEGF, MSH, MMP, IGG levels, VCS testing, Stony Brook Western blot came back indeterminate

Is it crazy to think I should be focusing on something else with all these labs not pointing to Lyme or possibility it could still be causing all my brain symptoms? The latest person I spoke to said to try IV antibiotics but with these test results I just want to get other opinion if people think it’s worth it.

Brab8878 said...
I know it’s not the end all be all but I had my CD57 done by Labcorp late 2018 that came back 126 and just this week had it come back 106.

What do you guys make of that?

What’s usually the range where they say okay maybe it’s not chronic Lyme. Over what number?

So you are trying to determine if you have chronic Lyme?
Do you have symptoms - and history of tick bite... and/or positive test result and/or positive lyme specific bands on a WB test?

And has it been untreated for many months to years?

What bands were positive on the WB?

Girlie said...

Brab8878 said...
I know it’s not the end all be all but I had my CD57 done by Labcorp late 2018 that came back 126 and just this week had it come back 106.

What do you guys make of that?

What’s usually the range where they say okay maybe it’s not chronic Lyme. Over what number?

So you are trying to determine if you have chronic Lyme?
Do you have symptoms - and history of tick bite... and/or positive test result and/or positive lyme specific bands on a WB test?

And has it been untreated for many months to years?

What bands were positive on the WB?

IGM 41, IGG 41, 58 from recent WB

I was diagnosed with Lyme in 2012 with Postive PCR via Igenex but just trying to figure out if that’s currently causing all my brain symptoms or if it’s something else.

I have been treated with oral antibiotics, every herbal protocol/ supplement known to man, IV ozone, hyperbaric, IV C, etc etc. Have been through the gamut and have just been continually feeling worse every day for 7 years. Hasn’t come close to getting me better.

My symptoms are severe head pressure, severe brain fatigue ( not fog. My memory , word finding, confusion is perfectly fine,) and very sensitive to every med or treatment. No body pain at all and no other real symptoms to help distinguish what’s going on.

Girlie said...
Did you treat the coinfections - ie Babesia - with antimalarial s and Bartonella?

So never herxed when you treated?

Everything I take just irritates my brain so no idea what anything is doing. Get tired a bit at the beginning of some treatments but no crazy herxes.

Trying mast cell stuff at the moment because of the sensitivity.

Have tried Bartonella and Babesia stuff.

My CD57 was slowly improving- from 39 to 48 to 86 by April 2018. In May 2019, it had dropped to 35 thanks to mold exposure again.

WalkingbyFaith said...

Brab8878 said...


My C3a, C4a, VIP, VEGF, MSH, MMP, IGG levels, VCS testing, Stony Brook Western blot came back indeterminate.

The WB was indeterminate. Are you saying the CIRS labs were indeterminate, too, or were they normal? Did you go by Shoemaker’s ranges for those and not the lab’s ranges?
https://www.survivingmold.com/diagnosis/lab-tests

Had you previously been diagnosed with CIRS or have mold exposure at some point?

Brab8878 said...
Is it crazy to think I should be focusing on something else with all these labs not pointing to Lyme or possibility it could still be causing all my brain symptoms? The latest person I spoke to said to try IV antibiotics but with these test results I just want to get other opinion if people think it’s worth it.

.

I understand your question. That’s a tough decision. Do abx make your symptoms worse? If they do, I would give pause as it could just cause further damage. I remember your other post. Your symptoms sound a lot like Aerose.

Have you ever taken Cholestyramine? If so, how much and for how long? What effect did it have on you?

Have you communicated with the CFS/ME group from paradigmchange.me? Do you feel like you have the ME stuff like they do?

Thanks for trying to help WBF. I’ve just been pulled in so many different directions in the chronic illness world with 0 results and in the worst spot of my life so just trying to see if I can figure out what’s going on. So sensitive to any treatment that everything makes me feel worse so no idea what’s going on. I haven’t found a single supplement/ exercise/ med that I can go to if I’m having a tough time, to get back to a better spot.

I had mold ( Tricothecene) at one point. Treated that and my results came back 0 next time. All shoemaker labs came back perfect too so don’t think that’s the problem.

Thanks for the paradigmchange site. I’ll look into that.

I was told by a cancer blood/immune Dr that people with Autoimmune issues can also have low Immune cells (CD57 group and the other individual ones).

My thoughts: Even though there is thought that lyme can cause autoimmune, Im guessing the opposite is also true. Someone with autoimmune AND low immune cells would most likely be a great candidate to get lyme.