Anyone else have this sleep issue?

I usually get plenty of sleep every night. 8 hours or more.

My problem is that every time I wake up my brain always feels so much worse and I feel terrible and never bounce back throughout the day. My brain feels more tired, more depression, etc.

If I’m having a decent day the day before, it’s like I’m starting from scratch every day to try and have a decent day.

WalkingbyFaith said...
I don’t.

Have you recently checked your environment for mold? Are there other environmental toxins you might be exposed to in the night or in the room where you sleep - fragrance, chemicals, flame retardants, kerosene, etc.

I can say that things happen in the night that don’t during the day. I always feel worse in the morning. In a bad night, sometimes weird things start as soon as I lay down or close my eyes. It’s hard to explain. I hear most with Lyme say they feel worse in the morning.

If you have brain swelling (sounds like you do), then laying down probably increases or shifts the pressure around, which could make brain symptoms worse. That’s just my totally non-medical opinion.

Thanks again WBF. No weird fragrances or anything in my room and had the house taken care of for any mold a couple years ago ( was safe house according to HERTSMi to begin with).

I’ve very underweight with no snoring or anything and a finger pulse oximeter should perfect oxygen numbers throughout the night but just want to make sure I’m not missing anything by not having a sleep study done.

I had this issue and I describe it to my doctor as "I feel as if somebody is beating me up in my sleep" and he ignored it of course and pushed. I know nobody was actually beating me up, but I felt that way waking up everyday. Eventually after ditching my doctor and getting a LLND, and following treatment, it went away, but if I don't follow my treatment it can come back. I looked into some kind of patterns with my environment and was never able to find any, except skipping/ignoring treatment for a day or so.

Here is my opinion about non-refreshing sleep...it is yet another devastating symptom of lyme n cos..

btw isn't it interesting that it's also a CFS symptom (and ME, Fibro et al), why it couldn't all be mostly the same complex no, it's too uncanny! /s

My educated guess is that it is a lactate-threshold problem, mitochondrial if not HPA-axis dysfunction, or some combination of all of those (see MSIDS ala Horowitz for a comprehensive overview).

A little anecdote...I have been feeling worse the past couple of days (some lofty work goals I'm working on and stressed out= flare of symptoms I guess)

..so I took my sleep meds (low doses of Trazodone, Hydroxyzine HCL, Melatonin, Doxepin) last night and slept 12 hours (yes 12...with my sleep apnea machine and snorkel!) ...yet I woke up with about 30-50% of what energy and clarity that a normal healthy human being should have...again...just like before.

So, this is what I think is happening...certain co-infections (Babesia, Bartonella and more uncommonly Tularemia) are taking energy anaerobically from every system and cell in my body while I/we sleep, and being immune-compromised other infections become active (EBV, CMV, H. Pylori)..adding to toxin load, needing more recovery time to sleep and recuperate yet as long as the infections aren't addressed, this will keep happening.

Also I surmise that any extra carbs are utilized by these critters if I choose not to eat strictly paleo/keto and/or fasting..(so the canned spaghetti and meatballs I had 2 days ago was not a good idea).

So my symptoms are (diagnosed, documented): moderate to severe sleep apnea both obstructive and central, insomnia, anxiety, depression...tack onto that: unrefreshing sleep, brain fog, loss of administrative function, fatigue....

For me, I can usually muster some energy if I practice proper sleep hygiene (lights off, electronics off, etc) but I don't think merely sleeping will kill the numerous co-infections as they feast on my white tissues (brain, nerve myelin, eyeballs, cartilage) during the night...

I don't know the exact mechanism of action of all the different infections (like malarial red blood cell bart and babs do), I just know I need like 3-5X more sleep and recovery time that I used to than when I was more healthy (that is why I sense my lactate threshold is severely diminished.)

Anyway, Brab8878, it is a common issue.

If you can be spendy, try Magnolia Bark extract, L-Theanine supplement to relax if not sleep...

Or if you are desperate, ask your Primary Doctor to Rx the sleep meds I mentioned...