MCAS worse after bowel movements??

I just read the mast cells are in the gut, so maybe this is my issue.

I often feel what I used to call “toxin pain” set off immediately after a bowel movement, especially first one in the morning.

I now believe the “toxin pain” is actually a cluster of MCAS reactions - burning; numbness; swelling feelings; joint, muscle and/or tissue pain.

Does anyone else with MCAS experience symptoms related to bowel movements?

Has any specific treatment helped MCAS symptoms related to bowel movements?

If I could figure this out, it would probably significantly help me and may reduce gut damage in the process.

For those who have MCAS reactions to specific foods:
- do you have reactions to those foods as they are being excreted via BM’s or only when eating them?

Other than doing a low histamine diet, how did you identify food problems? Did you test for food allergies or sensitivities? Which tests?

Read up on it, but i think dao would help with mast cell gut issues.

k07,

I am taking DAO supplements before meals. I can’t tell it helps much of anything.

Mold exposure and increasing treatment for anything seems to increase my symptoms.

I have been slowly increasing drops of houttuynia, alchornea (those 2 very limited increases), black seed oil, lions mane, and added nigella sativa seeds last Thursday. Also just finished first month of Fluconazole. And have been on an antiviral mix of lomatium/isatis/licorice for about a week. Started that at 10 drops and went up to 20 drops each. So, I am killing stuff most likely.

Added Claritin this morning. I’ll see how it affects me.

I’m not keen on the DNRS. I did feel better last week after focusing more on spiritual aspects that I believe in. Got really discouraged again the past few days. Now dealing with a hurricane and the stress involved with that. It most likely means I will be forced inside the moldy house for extended period. Don’t know what that’s going to do to me. Makes me wish I could just die already. The mold and chemical sensitivities are my worst problems and make any aspects of normal life almost impossible. I’m not suited for life on this planet anymore. Sorry for the rant.

I don't have reactions to pooping, rather it makes me feel better lol. I don't react to food as I am eating it either, it seems to affect me hours later after it has finally entered my intestines so maybe that's where all my mast cells are hiding. I identify my food sensitivities by eating the same thing every day and when I have a symptom, looking for the needle in the haystack of what I ate different. I have a running list of basically every food in existence and whether or not I react to it in large quantities, small quantities, or any quantity. I try to reintroduce foods but so far it hasn't worked too well.

I keep seeing people post on DNRS but it doesn't seem like it's for me, I did some neurofeedback and it was expensive placebo basically. My doc is gonna start me on DAO enzymes but I am afraid because I react to basically everything. Even though it seems impossible to react to the actual thing your body needs to break stuff down. Idk. Plus all this trying stuff is so expensive.

I feel you WBF. I ask God to kill me on a daily basis (sorry to trigger anyone...). It's basically a running joke at this point but it would still be welcome.