I can totally identify. I was somewhat relieved when I got a Lyme diagnosis, but reluctant before I started (possible long-term abx). It's especially troubling since the conventional medical field is so far behind, (and in some states like NC) didn't even believe it existed in this region, until recently, when they can no longer deny it. . . . Partly due to pressure from the insurance industry (where the possibility of an increasingly common, debilitation illness) is not something they want to face, for their bottom-line priorities. I've had what's at least a partly clinical diagnosis (I didn't meet CDC criteria for Western Blot positives). Had an odd swollen kneecap for 3 months, earlier this year (which conventional MDs and Orthopedics couldn't figure), along with other long-term symptoms. And each time I do a course of antibiotics, my Lyme test results are slightly more positive.
Hang in there, and know that many of us have gone through just what you're describing!
Post Edited (BlueRidgeDave) : 12/7/2019 7:15:04 PM (GMT-7)