Handling Congenital Lyme in Kids

I wouldn’t ignore it but people with Lyme sometimes see the symptoms in others that may or may not be lyme. I know that I was freaking out in my mind anytime anyone in my house had any of the symptoms that I had. It can make you hyper sensitive about thinking other have it too.

That being said, I do believe it is somewhat contagious. If they do have it, the hard part is find something kids will take.

Monolaurin in pellet form is very easy for a kid to swallow, don’t get capsules.

If they can swallow a capsule, things like cinnamon, olive leaf extract, etc.. are gentle, to me at least, and won’t hurt anything if they don’t have lyme. Oregano oil is good but take It with food as it’s somewhat acidic.

Msm did wonders for me and it’s super good for you anyway. You can get it in powder form and mix it with water, it’s tasteless. A great source of sulphur.

Saraeli, this is such a hard question and I suspect why you might not have gotten more responses to your post. I’m a parent of a child that’s had lyme most of her life and may have been born with it. When she was young, she did not have classic symptoms of pain or fatigue but she did present with anxiety, ocd, and tics like many PANDS kids...she eventually tested positive for Lyme. We treated the lyme because her symptoms were severe enough. At one point she seemed stable so we backed off of treatment and tried managing things with mostly herbals. By her senior year, her lyme and co’s exploded. We are still digging out of that hole. She’s better but has a long way to go. I kick myself all the time but I tell myself that there’s no way to predict where this disease will go. Many kids I know with Lyme requires a much lighter treatment than mine and are totally fine. I know neighbor kids who are bitten by ticks and seem completely unaffected.
It doesn’t have to be a devastating life sentence IF your child does have lyme.

I was hesitant to reply to your post because I didn’t not want to add any unnecessary fear to your already worried state. I don’t think there is any replacement for your mothers instinct though, so I guess I would try best to follow that. If symptoms are mild enough, maybe just keep a close eye on things but if you are feeling more and more worry creep in your mind (especially at night lol hence my screen name “upatnite”), then take some action. Get the opinion of a dr you trust involved and let them help you decide. You’re pretty savvy with this stuff. Trust your gut. Best wishes and sorry you’ve got to deal with that worry.

We treated with a combination of antibiotics and herbs for about a year before switching to herbals. I was working with a practitioner who liked combining Byron white and Buhner herbs but occasionally she would flare and he’d put her on antibiotics for a month here and there. The treatment was spotty and I believe that was the mistake. It’s not necessarily that the herbs didn’t work or that the antibiotics didn’t work. It was a little of this and a little of that... I think my daughter would have benefitted from a more consistent approach. She seemed mild during those years and we thought we were managing things but in actuality it was likely building.