New Approach, More Symptoms

A few days ago, I decided to go back to a naturopath I have seen before. There they do bioenergetic testing. With nothing getting better, and dealing with Lyme, co-infections, EBV and autoimmune (along with kidney issues), thought it was worth a try to do.

There they found a few problems - bartonella (which I thought could be causing issues), autoimmune issue, and a couple of other Lyme-related problems.

After the evaluation, the natuuropath thought the best way to address the problems was through use of monolaurin (was already taking it), SBI Protect for immune support, a cortisol manager, CoQ10, Inflamma Tone for detox, something to address histamines (hydrochloricum). That goes along with cordyceps, reshi and a few other items I am already taking. Am also taking 250 of zith a day and Bicillin once a week.

Since starting, I have felt an upsurge in symptoms. The morning anxiety can now be felt at 6:30 am for about 10 minutes, then again at the usual 8 am. Depression has been much worse earlier in day but still gets better in afternoon. A bit dizzy, especially after light exercise.

My concern was the immune boosting part would make autoimmune worse, but the naturo said adaptagens being used would not hurt autoimmune. So is this a reaction to doing more for immune system, which is causing herx reactions? I've been on the edge of giving up on everything, which led to going back to naturopath. Something has to get me out of this and there are too many components involved.

I take cordyceps and lions mane. I literally dont feel a thing on them and i dont believe theyre upsetting my autoimmune issue. I may stop just because they dont seem to be hurting or helping.

I LOVE the idea of using SBI protect. I made it my goal to fix my gut because I believe thats one of the causes of my autoimmunity. Since changing my diet and starting bovine colostrum (which is IgG immunoglobulins aimed at healing the gut lining just like SBI protect) my SIBO and IBS are gone. My energy is through the roof.
Anxiety and depression greatly improved. Only symptom still left is this dang AI nerve pain, which could take a long time to heal since the nerves are damaged. I'm sure i still have autoimmunity but I hope that after a long period like this it improves significantly. AI issues often wax and wane and can heal themselves if you give them the right environment to do so. I'm gonna pick up some SBI protect hadnt heard of it til you mentioned, but its a non-dairy source of IgG and that was the only thing that bothered me about colostrum, the fact that its dairy.

My guess as to the problem would be the monolauren, and i feel like its a strong hunch. A lot of people seem to herx on it and i can imagine something that strong would bother an AI issue.

The other possibility is the Bicillin. I was on it for 5 weeks. The first week after I started i began to notice some mild joint pain and increased nerve pain. I thought it was a herx so i thought it meant i was on the right track. By week 5 i was so bad that i literally couldnt walk. My shoulders and bicepts felt like i was 200 years old. I thought i had polymyalgia rheumatica. Then my knee swelled up w/ a lump the size of a golf ball. I talked to my LLMD who thankfully isnt a typical LLMD quack who thinks everything is a herx, he recognized it immediately as serum sickness and made me stop. about 10% of the population is allergic to penicillin, i guess i am too.

Post Edited (dcd2103) : 2/3/2020 7:22:13 AM (GMT-7)

All those symptoms (visible swelling of the knee, joint pain in the shoulders, muscle pain in biceps) resolved within a couple weeks of stopping bicillin

All the symptoms from the serum sickness (visible swelling of the knee, joint pain in the shoulders, muscle pain in biceps) resolved within a couple weeks of stopping bicillin. Glad to hear the bicillin isnt a problem for you, that was rough.

My energy levels and mood are much better since fixing the gut. Its like night and day. Got a six pack now too for the first time in long time, happened fast. If it werent for this dang nerve pain, argh. I havent made much progress on that front, but I know small fiber is hard to cure. Its going to take years. My nerves are damaged and will take time to grow back. For all i know i may have improved the autoimmunity...but theyre still going to keep hurting until they finish repairing.

Also my gf and I are talking and seem to have reconciled, which helps.

After many exchanges with dcd, I do not think he meant it quite as it was put. I agree there are many good LLMDs out there and putting many as typical quacks is not helpful. While I can't read minds, I do know dcd has been very helpful to many of us and is not a troll on this site. His thoughts and ideas are usually well researched and has been helpful to me.

I also understand your frustration, orbitingaround. Hopefully, dcd will weigh in on this. If I thought he was a negative troll, I'd be right there stating it with you. There are good LLMDs and not so good LLMDs. That can be found in any field. But dcd has posted so much helpful, informative information.

Thanks running wild and saraeli I much appreciate your coming to my defense! It actually warmed my heart.

Quacks is a loaded term, shouldn’t have used it. I am annoyed, however, that I was told it was a herx by one dr until I consulted another one who knew better and quickly got me off. Also annoyed at myself because I knew better. I guess I felt my anger coming out thinking about it. I also think that like saraeli alluded to, the notion of the herx is a bit dangerous. Almost any negative outcome can be blamed on it.

I also don’t think I’m a troll. I’m here to try to figure out chronic illness and help out where I can. I truly want to see everyone get better. I recently told my girlfriend how much I love this community and I feel like a part of it. Getting to know everyone’s personalities and posts and symptoms and how they view their disease. Like I said it warmed my heart the way saraeli and RunningWild came to my defense because even tho we’ve never met, theyve gleaned something about me and my personality and intentions through all our interactions. That’s community.

Unfortunately though I also don’t buy everything that Lyme purists believe. I think there’s more to Lyme than just the bugs, and that often means things I say can annoy people or seem like trolling but that’s honestly not my attention.

Sorry orbiting if I offended yiu

Post Edited (dcd2103) : 2/3/2020 6:02:37 PM (GMT-7)