dcd2103 said...
That’s wild story regarding your arm. Did they do a nerve conduction study? I’m stumped...maybe it was just a crazy rapid onset of lyme symptoms. Seems like they love to attack/hide in the large nerves (always am reminded of these Bell’s palsy cases that resolve w abx). Has it gotten any better lately?
It does sound like you’re on the right track, nerve pain aside. I think that’s the right approach, allow yiur body to heal itself and let you own immune system take over. That’s what I’m trying to do. I’ve done so much work healing my gut I don’t want to upset it. How’s your diet and gut? Any GI issues?
I had both NCS and EMG - that was in 2014 - nothing remarkable.
The pain isn’t excruciatingly bad like it was the night the event happened. My husband has never seen me with that level of pain.
(Pain of labour and subsequent c section birth not even close)
But it can still be a 5 or 6 out of 10 at times... more than an annoyance.
I have read about
Banwarth syndrome with lyme -
“The specific symptoms of Bannwarth's syndrome may vary from person to person, however pain (that tends to get worse at night) seems to be the most frequent/predominant symptom. Depending on which nerve or nerves are involved, the specific type and
location of the pain will differ from person to person.”
“Bannwarth syndrome is a neurological disease caused by an infection with Borrelia burgdorferi, the bacterial agent of Lyme disease. The disease causes intense nerve pain and is characterized by “painful radiculopathy, neuropathy, varying degrees of motor weakness, lower motor neuron (LMN) facial nerve palsy and cerebrospinal fluid (CSF) lymphocytic pleocytosis,” writes Diaz et al. in the journal Clinical Neurology and Neurosurgery.”
https://danielcameronmd.com/bannwarth-syndrome-and-weight-loss/My diet isn’t always good -early on I went gf, df, sf for awhile early on and never felt better or worse so abandoned it.
I rarely eat gluten now - it’s an easy one to follow. I do eat cheese and I like my chocolate now and then.
I don’t go to restaurants often and make healthier meals.
ie dinner tonight is roasted chicken with a large salad - oil and vinegar drizzled over it - and a trickle of honey.
No major GI issues.
I have had some GERD - once early on (2013) - pre diagnosis - went away after a couple months and then again more recently - my Dr tested me for h pylori - it was negative.
It’s seemingly resolving again.