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Posted 2/24/2020 11:40 PM (GMT 0)
Hi all,
I'm currently treating for mold and MCAS and although it is early, I'm feeling discouraged by my lack of progress/exacerbation of symptoms. For almost 2 weeks I've been on:

GI detox+ binder 1x/day
Vitamin D3 with K2 drops 5000 mg
CoQ10 300mg 1x/day
1/2 grain Nature-Throid 1x/day
IV replenish treatment with B vitamins, Vitamin C, magnesium 1x/week
Sauna 3ish times/week, epsom salt baths 3-4x/week

I've also been taking these medications for quite a while:
Claritin 10mg 2x/day
Pepcid 40mg 1x/day
Collagen powder 1x/day
Fish oil 1200mg 1x/day
Women's Multivitamin
Estrogen bio-identical patch
Progesterone bio-identical oral meds
Melatonin 3mg for sleep

I am also on a paleo, low sugar diet with occasional intermittent fasting. I go to acupuncture and see a therapist once a week.

I've had persistent vertigo since the beginning of January, and I'm experiencing internal vibrations and buzzing sensations, which I know a lot of people here experience (and it's something I've had for a while). I'm trying to power through knowing that I'm on a treatment protocol, but it's tough to feel optimistic when my symptoms are so intense. My doctor said I should start to see progress in the first month of treatment and I'm worried that I could be regressing.

I moved out of the suspected moldy environment about a month ago. My work was tested last week and I'm waiting on those results.

Is there anything else I should be adding to combat the mold treatment? Or just be patient (the hardest thing to do when you've already been sick for so long...)?
Posted 2/25/2020 12:33 AM (GMT 0)
It will take time - longer than you wish. Have you felt worse since treating or just no improvement?
Posted 2/25/2020 1:11 AM (GMT 0)
I felt worse, then felt slightly better, then had a couple bad days again. I have symptoms every day - some days are okay, and some are unbearable. It does seem like the internal vibrations have flared up after being more subtle for a bit.

I've also been going to balance therapy for the vertigo which can exacerbate my symptoms. It's hard to pinpoint cause and effect when I'm at my worst.
Posted 2/25/2020 1:59 AM (GMT 0)
How does sauna affect your symptoms? I never was able to try it.

Did your doctor mention glutathione, NAC, or IV phosphotydilcholine? These are often used in mold treatment.

Post Edited (WalkingbyFaith) : 2/24/2020 7:02:18 PM (GMT-7)

Posted 2/25/2020 5:45 PM (GMT 0)
I enjoy the sauna - not sure if it alleviates my specific symptoms, but I feel generally better afterward. Also good for meditation and mental health.

My doc doesn't think I can handle glutathione yet, although it is offered at his practice. Haven't heard of the other two - would you recommend?
Posted 2/25/2020 6:17 PM (GMT 0)
Glutathione is usually very depleted in mold patients and is necessary for detox from my understanding. Sounds like your doctor doesn’t think you’re ready for IV glutathione. I never did IV. My doctor offered it, but I refused (thank God). It probably would have nearly killed me. I take Readisorb liposomal glutathione.

NAC is a precursor to glutathione and alpha lipoic acid helps production, too. ALA is reportedly better at it, but can cause detrimental mercury redistribution in people with mercury toxicity or amalgams.

I take oral phosphotydilcholine. I can’t tell it does anything. You’re supposed to do the IV’s for a while first then shift to oral for maintenance. I haven’t done the IV’s due to cost.
Posted 2/25/2020 8:20 PM (GMT 0)
Have you thought about trying Shoemakers mold protocol? I think Neil Nathan has a book on it. My doctor goes by this mold protocol and it seems to work for a lot of people. I’m on welchol, activated charcoal, GI detox, chlorella and bartonite clay.... I believe my doctor put me on these as part of the Shoemaker protocol
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