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Posted 4/3/2020 5:55 PM (GMT 0)
Hi all, I’m on a new bartonella treatment: methylene blue, Bactrim, doxy, clarithromycin. These are to cover all the different forms of Bart. I hate being on antibiotics because I never herx or anything but I decided to give this a shot. How long should I stick with a antibiotic treatment plan before I come off of it? Any suggestions for the antibiotics causing fatigue? And do any of you herx with bartonella?
Posted 4/3/2020 6:23 PM (GMT 0)
What "all the different forms of Bart" are you talking about?

I would give it a few months and see if you herx.....and/or start to get some improvement in one or more symptoms.
If you do respond...definitely stick it out longer.
Did your LLMD not give you an approximate time line?

I certainly got uptick in symptoms on bartonella treatment.
Posted 4/3/2020 7:10 PM (GMT 0)
My LLMD talks about covering the different types of Bart such as the stationary form (forgetting the others cause she can go on tangents during our meetings). I’m nervous that this will do more harm than good since I’ve been on many antibiotics before and nothing ever happens. My doc didn’t give a certain timeline. I think because she wants to see what happens and we are in contact regularly anyways. Today I’ve had some pain on the soles of my feet but it’s hard to tell if this is a regular symptom I’m having or die off (probably the former)
Posted 4/3/2020 7:14 PM (GMT 0)
Side note: when I got hyperthermia in Germany a doctor there told me that for every month you are on an antibiotic, it takes your immune system a year to recover. I guess that always stuck with me....
Posted 4/3/2020 7:22 PM (GMT 0)

Patient166 said...
Side note: when I got hyperthermia in Germany a doctor there told me that for every month you are on an antibiotic, it takes your immune system a year to recover. I guess that always stuck with me....

Well for chronic lyme and CO’s - Treatment is usual + 9 months.
Many are on abx longer - like 2 years

So it will take 24 years for immune system to recover for those patients?

I’ve not heard of the different types of bart other than different strains.
Posted 4/3/2020 7:35 PM (GMT 0)
My LLPA (works part time with Dr. J DC) says in her 15 years treating with Dr. J protocols there is no evidence ABX hurt immunity. She said key is take care of gut...lots of probiotics, low sugar, immune boosters (sleep, diet, etc.). She actually thinks that lessening infection "frees up" immune system "for other jobs".

I take 90-100 billion probiotics plus 10 billion S. Boulardii per day (LLPAs suggestions) and do sugar free diet (do use some honey now).

Post Edited (ChristianWithLyme) : 4/3/2020 1:38:03 PM (GMT-6)

Posted 4/3/2020 7:37 PM (GMT 0)
When you say +9 months of treatment... do you mean sticking with one working protocol for 9 months? I've been doing treatment for about a year, maybe a bit shorter for bart because I was more geared towards the Lyme at the beginning. But I switch around bart protocols if I'm feeling no change.

When it comes to the recovering of the immune system. 24 years does sound crazy. And the docs in Germany (in Europe in general) are very anti-antibiotic and pro-herbs and less harmful treatments which can be a good thing but it makes their opinions very biased. However, they do say that their patients coming in from the US are in much worse shape than everywhere else because of the treatment plans followed in the US. I take this info with a grain of salt as I think everyone has to follow a different, more personalized plan to get better.

Post Edited (Patient166) : 4/3/2020 1:44:23 PM (GMT-6)

Posted 4/3/2020 7:43 PM (GMT 0)
It seems like Dr. J has learned how to protect the patient while being on aggressive ABX. I'm not saying none of his protocol patients would have immunity/gut problems, but I've been given good instructions on how to help my immune system. Some docs will put you on ABX and won't mention how you can support your immune system/gut.
Posted 4/3/2020 7:56 PM (GMT 0)

ChristianWithLyme said...
My LLPA ......
She actually thinks that lessening infection "frees up" immune system "for other jobs".

I think that makes sense.
Posted 4/3/2020 8:01 PM (GMT 0)

Patient166 said...
When you say +9 months of treatment... do you mean sticking with one working protocol for 9 months? I've been doing treatment for about a year, maybe a bit shorter for bart because I was more geared towards the Lyme at the beginning. But I switch around bart protocols if I'm feeling no change.

When it comes to the recovering of the immune system. 24 years does sound crazy. And the docs in Germany (in Europe in general) are very anti-antibiotic and pro-herbs and less harmful treatments which can be a good thing but it makes their opinions very biased. However, they do say that their patients coming in from the US are in much worse shape than everywhere else because of the treatment plans followed in the US. I take this info with a grain of salt as I think everyone has to follow a different, more personalized plan to get better.

+9 months = treating lyme, bartonella, babesia...plus any other confections..

I would take what the Germany docs with a grain of salt, too. i know many...many people (from all age groups) who have done well with long-term abx treatment...and still are doing well years later.

I'm not saying there's no risks...certainly there are risks with long term antibiotics...and they are hard on the stomach/gut...etc.

BUT, letting these infections flourish...is also damaging the body....my body was being damaged long before I started taking abx. I may be facing a candida infection now...but I will take that ... over letting the infections continue on and ravish my body.
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