Crawling sensations in head

saraeli said...
Lyme causes a lot of paresthesias and neurological issues, and also is associated with the condition Morgellons. A lot of us have had crawling sensations. It's maddening! But yes, they go away. I recommend keeping your lymph moving (craniosacral therapy, lymphatic massage, red root, yoga or gentle exercise, rebounding, dry brushing...) and doing what you can to safeguard your nervous system (tone your vagus nerve, reduce stress, DNRS, tapping, lion's mane mushroom, magnesium, good sleep...).

You cannot feel spirochetes.

I'm sorry that you are having such a difficult time! What you are going through is very hard, and health issues like this are troubling and traumatic for everyone. It's a struggle, and most people in your life will not know what to say; it is a loved one's job to support you, but not to fix you. (Even if they are therapists or doctors, it's still not ethical for them to act in that capacity for a loved one.) Your mental health is extremely important, and it makes sense to reach out to people when you need help. I'm very glad that you posted here! We've all had those dark days (or weeks!). These days a lot of health care practitioners are offering online appointments - any chance you could access a mental health counselor that way? There is absolutely no shame in reaching out for help when you need it. Getting help is a sign of strength and wisdom, and anyone who thinks differently is ignorant about how mental health actually works.

As for Lyme and co-infections that you are dealing with, I'm sure you know this but symptoms can flare a lot when herxing, and that can happen whenever you change something or increase a dose. Disulfiram especially can be very hard for people to handle mentally and neurologically. I know some folks who saw improvement with it but had to stop around 2-3 months in because of mental and neurological symptoms. There's always something else to try, if the current regimen isn't working for you. Do you think you can reach out to your doctor and let them know you are struggling as things are? Maybe take a break, detox, try something else? What are you doing for supportive treatment? It can be a long, complex road, but we're here to help you figure things out!

fjdrill said...
Your email is not activated. you can click on my name and go to my email. I'll email you back.

magoo2 said...
I also had zero tooth pain.
The infection dna contained many bad bugs calling one out makes zero sense.
A simple test would be to get a dental thermography-cheap-zero radiation.
Dont live that way for years without checking thiss. Root canal-cavitation-implant-old site where tooth was pulled-all of that can cause a smoldering infection that does not cause pain but causes many problems throughout body. For me this was the cause of my scalp crawling sensation.
Dental thermography-easy

orbitingaround said...
Where in the back of your head is it? Occipital lymph nodes? (Search google images)

I swear I can feel my lymph nodes back there drain. They get really heavy feeling before it happens.

Nerves also cause lots of tingling and weird buzzing sensations. I can feel my trigeminal nerve sometimes (thanks Bartonella), and it feels like buzzing, vibrating, pulsating, itching, burning, cold, and sometimes like there’s water running down it.

Blakeleysmom said...
I also live in AL, an hour from Birmingham. My daughter saw a doctor in Atlanta three times. I had the exact same reaction to her. (If it’s the same one?) We would tell her all the symptoms and she just listened, which is good, but never addressed our concerns specifically. Would just write out what meds she wanted her on and that was that. Also I felt like she would always refer us to a local doctor every time we would call with a question or concern.
Anyway, fdrill gave us the name of LLMD in TN and we have an appt but have moved it back bc my daughter is trying to finish up a homeopathic treatment first. So we haven’t seen him yet.
There is an integrative doctor in Trussville who has learned ALOT since we first saw her last year. Small office, reasonable cost, and SO SO personal and since we went back to her after the Atlanta doctor, she seems far more knowledgeable than what I gave her credit for in the beginning. You can email me privately if you’d like more info.
Regarding the symptom you mentioned, my daughter has not had that specifically but has crawling sensations at times where it feels like bugs are all over her legs.