Dehydration / thirst

Treating bartonella. Since symptoms started I’ve always had this hard to quench thirst and frequent urination. The frequent urination isn’t as bad as it was but now that it’s getting warm again I can’t tolerate the heat, it drains me and I can’t drink enough water to make it better.

I’m trying electrolyte support and it’s not making much of a difference.

Last checked back in December my ADH was on the low side of normal, but still measurable at 1.

Did this go away for anyone during treatment? Any tips?

Thinking about asking my doc to call in some ddavp.

Thanks

Thirst/frequent urination are common with CIRS. Low ADH with normal or high osmolality. I had low ADH with normal osmolality to begin with but later had low osmolality.

Had frequent urination all my life until symptoms started in 2009. In 2009, I got sudden onset of extreme thirst, and a complete 180 of bladder habits. I then felt no urge to pee for hours until I was about to bust and would barely make it to the bathroom and sometimes leaked. I drank massive amounts of water all day and all night and would have spells where everything including my tongue tasted salty no matter how much water I drank.

As the years went by and I remained undiagnosed, the thirst declined somewhat, but I still drank more water than normal and never went anywhere without a water jug.

Just recently, I have had a return of frequent urination and constantly feeling like I need to pee. This has coincided with spending more time in the house we had mold remediation done on. They removed all the sources of mold, but there could be some lingering toxins in the environment, although I am hoping it’s just a coincidence.

I still drink a lot of water, but I've had some very bad episodes of extreme thirst in the past. Sometimes I would get frequent urination, and sometimes not.

More recently when I had a bad episode, I must have drank four glasses of water, I was so thirsty. I turned out I was coming down with a bad cold, and that must have had something to do with it.

It's been helping me lately to mix electrolyte powder in with my water sometimes. I find I have a lot more energy, and my muscles don't get so tired.