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Posted 5/19/2020 4:05 PM (GMT 0)
I started taking Cortef and I’m on 20mg right now. It has made a HUGE difference in my hair loss and my hair has pretty much stopped falling out which is great. But while the hair is a lot better my fatigue has improved a bit but not as much and improvement is still needed. I am still struggling with bartonella too but nothing seems to do anything for that and the hormone treatments help me a lot more (thyroid meds/ Cortef). I’m wondering if I need a higher dose of Cortef for energy improvements or if the fatigue is an unrelated issue?
Posted 5/19/2020 7:48 PM (GMT 0)
The issue that I had was that insufficient cortisol increased my adrenaline production. This caused increased homocysteine, and depleted vitamin C, B12, and carnitine. Taking vitamins resolved those deficiencies, but the homocysteine issue remained.

Have you had labs done? What are you taking for bartonella?
Posted 5/19/2020 9:32 PM (GMT 0)

Patient166 said...
I started taking Cortef and I’m on 20mg right now. It has made a HUGE difference in my hair loss and my hair has pretty much stopped falling out which is great. But while the hair is a lot better my fatigue has improved a bit but not as much and improvement is still needed. I am still struggling with bartonella too but nothing seems to do anything for that and the hormone treatments help me a lot more (thyroid meds/ Cortef). I’m wondering if I need a higher dose of Cortef for energy improvements or if the fatigue is an unrelated issue?

How are you treating Bartonella?
And is it working ? Any symptoms resolved?

Edit : I had read a past post of yours’ and you have taken Rifampin..did you get any results ?
How long did you take Rifampin?
Posted 5/20/2020 3:14 AM (GMT 0)
I took Rifampin for like three months and I’m on doxy, Bactrim, clarithromycin and methylene blue right now. Honestly, I didn’t notice anything from the Rifampin but that’s kind of how I am with all the antibiotics I never get much of a reaction. None of my Bart symptoms have resolved... it’s frustrating it just seems like it doesn’t budge.

And Quin, is the homocysteine caused from lack of adrenal supplementation or happened when you started taking Cortef (or an equivalent prescription?

Post Edited (Patient166) : 5/19/2020 9:18:27 PM (GMT-6)

Posted 5/20/2020 3:56 AM (GMT 0)
Epinephrine (adrenaline) is produced in the adrenal glands by methylation of norepinephrine. This also produces homocysteine as a waste product.

I didn't have my homocysteine tested before I started taking cortef. My doctor wanted to know if I still needed to be taking cortef, so I had this (and other things) tested recently.
Posted 5/20/2020 1:54 PM (GMT 0)
Patient166, have you ever tried any anti-parasitics like Artemisinin, Cryptolepis, Flagyl, etc.? Based on my experience, some of these things seem to flare my bart. Also, have you taken anything for biofilms? I'm wondering if a good strategy for some people with bart could be a combination of anti-parasitics and bart-killing ABX.
Posted 5/25/2020 5:28 PM (GMT 0)
ChristianWithLyme- I'm glad to see you have this opinion. My doctor is actually starting mom on antiparisitics (Ivermectin, Alinia, and Albenza) and then some more antibiotics for bart as well as ABART to see if this does anything. Fingers crossed it does because I feel like we've tried everything else.
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