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Posted 8/9/2020 12:30 AM (GMT 0)
In an opinion piece in today's New York Times, Ross Douthat compares the COVID "long-hauler" experience to his Lyme experience.

https://www.nytimes.com/2020/08/08/opinion/sunday/covid-lyme-treatment-medicine.html
Posted 8/9/2020 1:01 AM (GMT 0)
saraeli Thank you so much for sharing that article! Those words certainly should resonate with us all here. The long term effects of these viruses, bacterial infections,etc unfortunately are still poorly understood. Hopefully with time this will change.
Posted 8/9/2020 1:24 AM (GMT 0)
OMG!! Thank you! Thank you! Thank you! What a brave and honest article.

I especially needed to hear what he said about “Ask God to help you. And keep asking when He doesn’t seem to answer.” I have had awful thoughts and spoken awful words repeatedly in the last week about wanting to die again because I don’t know what else to do. I am convinced that the house is making me so much worse, and I am just done with trying to deal with mold. There has to be another answer besides constantly running for my life from mold.
Posted 8/9/2020 1:32 AM (GMT 0)
Oh boy, does this ever resonate with me.

How many of you have not said how you really feel when someone (even a close friend) asks how you're feeling?

Even my husband has been supportive 98% of the time....but...every now and again...doesn't REALLY listen to me.
And will say something that frustrates the heck out of me.

For instance: When I went back to work after over six years being off...I had some trouble. My memory isn't good enough for some jobs. It's getting better and hope this isn't IT. Hoping it will still get better.
I'm now trying another job....and I'm concerned that my memory is failing me. My husband says "You've been off work for 6 years...you're not used to it...not used to having to remember".

I don't buy that. I was a stay-at-home mom for 15 years and when I went back to work....no problem...

Then he says...yah but you were still doing more when you were stay at home mom. With lyme, you're at home a lot not doing anything.

For f- sakes. I had pressure in my head, behind my eyes.... just trying to remember what day it is today....and what I did yesterday.

There's a difference.
Posted 8/9/2020 1:58 AM (GMT 0)
That's a nice article. Thank you for sharing!

Since we're talking about Lyme affecting our lives...

I was wondering how you guys deal with the thought that time is flying by while we're sick?
I'm in my early 30's and am seeing everyone around me get married and thrive in their careers.

I'd spare you the details of what my life looks like with Lyme because I'm sure I'm not the only one.

But I was just wondering how you guys deal with those thoughts that life is flying by?

I feel like Lyme has done so much damage that I wonder if it's too late to start over even if I got rid of it.
Posted 8/9/2020 4:09 AM (GMT 0)
Rainy,

Yeah. I hear you. Life altering symptoms started suddenly just a few months before my 40th birthday. I’m 50 now. I can’t even remember my life.

I’ve spent the last 10+ years of my life searching for answers to the mysteries, all the while feeling my body fail in ways I never imagined possible.

Since getting sick with bronchitis 5 years ago, I have battled systemic inflammation, pain, and dysfunction to the point of disability. From that point on, my symptoms became and have remained all-consuming. I have been in survival mode for so long, I’m not sure I would know how to pick up a “normal” life again if God miraculously healed me tomorrow. Normal isn’t even in my realm of consciousness anymore.
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