HealingWell
Search Close Search
☰

Nxt step

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/6/2020 12:32 PM (GMT 0)
So after three months of doing what feels like nothing...

Testing house for mold
Moving
Taking cholestyramine for two weeks ( didn't feel good so stopped)

Here I am...

Living with my two small kids at my mothers house. about to remote school.

I still wake up everyday in nightmare. Feels depressed/stressed
I still get debilitating brain fog
I still have fatigue
I still get tingling in back
I have yet again a hard sore neck node
I still have heart burn burping for hours

I want to die

My options:
treat for mold or infections or spot treat w 5http for mood

1. Try cholestyramine again ( stay a smaller doses)

2. Spend 10,000 on LLMD / labs - no insurance ( can they get rid of my depression anxiety brain fog- for 10 g) ? No guarentee right!

3. Take herbs - I already have all I need ( I haven't tried coinfection herbs yet but have them) I'm just treatment p aralyzed it's wired.

-----There's alwsys something wrong with me at different points of day. Burping crying depressed foggy. I never want to take anything

Prob is I resist taking anything
I ordered 5 htp
I ordered serriphos
I have so many herbs supps cholestyramine etc.
I resist. I feel awful but can't seem to help self.

My day is filled w trying to hold it together enough to entertain/ take care of kids. Take care of mother with surgery, food, laundry etc. worring about survival. No money etc. no partner- I used to be a great mom. I barely hanging on.

Any guidance or support Thankyou

Post Edited (Lightlife) : 9/6/2020 6:41:26 AM (GMT-6)

Posted 9/6/2020 3:57 PM (GMT 0)
“ 2. Spend 10,000 on LLMD / labs - no insurance ( can they get rid of my depression anxiety brain fog- for 10 g) ? No guarentee right! “


For $10,000 with a LLMD - will that be for several appointments spanning over a year?
My first appt was under $1000 (and they were less expensive for subsequent appts and a few months apart) This is with a very experienced/knowledgeable llmd.
I don’t know how much the labs would be - as a lot if mine were covered -

I think going the herbal route makes sense since you have the herbs.
But do the cholestyramine first.
Posted 9/6/2020 4:09 PM (GMT 0)
Thankyou.

I just can't seem to do anything.

" Mama... " as we speak plus I just feel so awful all the time. I know that might sound weird or lazy or something but I'm just stuck again.

The LLMD i had in mind is 3,000 for labs and 3000 for appointment. Follow ups are 1000.
I could reduce the cost by going with an associate or PA . But I feel like i would want to see the main dr.

I'm trying to change primary care physicians to see if they will somehow order the labs or somehow help withgetti g me covered. But that's a long shot and they seem to be full. Hopefully they will reply by nxt week.
Posted 9/6/2020 4:30 PM (GMT 0)
I sense you are desperate, conflicted, and confused by all of the options.

this is OK and quite understandable given the circumstances.

but, as a result, you may well struggle to plan and execute a self-treatment plan.
and for this reason, I think you will get more progress by getting the support of someone who has treated a lot of people. ie a good LLMD

choose your Dr well and spend wisely to make your funds go as far as possible.
a good LLMD should be sensitive to these needs as many of their patients will be in a similar predicament.
Posted 9/6/2020 5:16 PM (GMT 0)
“ The LLMD i had in mind is 3,000 for labs and 3000 for appointment. Follow ups are 1000. “

That is a lot. Hope the $3000 appt is at least 3 hours long!!


The one I see is one of the top llmd’s and cost of his appts aren’t that high. Plus appts are 2-3 months apart and then 6 months.
(And he does phone appts too)
Posted 9/6/2020 11:20 PM (GMT 0)
I agree with girlie about the cost. I’m not sure who this LLMD is, but that sounds excessive. I do know who girlie sees, and he’s one of the top docs.

I totally understand the paralysis in not doing anything. I have been there and still am there in a sense. When you have X amount of money and your needs are 1000x greater than your resources, it’s easy to just stand there feeling dread because you don’t know what to do, and you don’t know what the outcome will be down any of the paths you’re looking at. I get it.

Suggestion -

Is it possible to book an appointment with an LLMD maybe 4-6 months out with the ability to cancel at some point prior if you change your mind? In the meantime, listen to what the naturopath is telling you, take cholestyramine, start some herbs, and detox all you can. Start low and increase slowly with everything. Spend time outside in fresh air, get some sunshine, walk on a beach or by a lake if available. CHOOSE hope. Focus on something positive and pleasant for at least a few minutes every day.

If the treatments you’re doing in the meantime don’t help, then maybe the LLMD can. If the treatments you do while waiting do help, then you can decide when the time comes if it’s worth it to go to that LLMD for $10k.

I’ll be praying for you.🙏
Posted 9/7/2020 3:26 AM (GMT 0)
Thanks guys. Had a very hard day. Super depressed all day. Had occular migraine and eye twitching plus I have very sore neck .

Thanks for all of your help.

As far as cost. It's 2500 for first. 3000 for labs and 400 specialty lab... then 750 follow ups.

If I went to assistant then it's 1500 plus labs then 600 follow ups.

I figure it's an extra 1000 to see dr initially but might be worth it.

Maybe I should look into your LLMD due to costs. I just liked this ones videos. Yours is same distance. This one would do tele.

I like idea of making apt for a couple months out. I just have to hold it together.

I started cholestyramine today at small dose.

I'm scared that if I go see someone / spend money ... it won't help and I will be stuck being depressed and then no one can help. I'm scared I will feel like this for longer and I can't take much more. I'm scared. Not sure what my problem is. I know I have Lyme. Had bullseye. Had symptoms. The ones above are my current ones. Don't know about this mental ones- the depression anxiety and fog.lm scared I will get worse with or without treatment. I can't take getting worse .

Post Edited (Lightlife) : 9/6/2020 9:46:17 PM (GMT-6)

Posted 9/7/2020 4:14 AM (GMT 0)
No easy answers for lyme.

People can go to the best llmd’s and still be suffering years later.
But many do get better - it takes perseverance and unfortunately $$



Lyme SUCKS
Posted 9/7/2020 2:37 PM (GMT 0)
Lightlife,

How long ago was the bullseye rash?
Posted 9/7/2020 11:08 PM (GMT 0)
16 / 17years ago

Then about five years ago I got a different ( more blistery) rash with symptoms.

So I think I've been infected twice.
✚ New Topic ✚ Reply