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Posted 10/1/2020 2:23 PM (GMT 0)
I know JK is recommended for Cyto storm. Are there any other supplements you guys take?

Has anyone here tried Cytoquel?
Posted 10/1/2020 4:02 PM (GMT 0)
Some supplements I was told to take:
Quercetin, magnesium, curcumin, taurine
Posted 10/1/2020 4:09 PM (GMT 0)
I hear medical mushrooms can help. I also remember someone saying they like a supplement called what u believe was A-Immflame. Good luck
Posted 10/1/2020 4:27 PM (GMT 0)
I have read that about Japanese knotweed, too, and I don't really understand. If JK has such great antimicrobial properties, then couldn't it induce a herx and make the cytokine storm worse? JK helps with cytokines because of the resveratrol, but you can get resveratrol in other forms.

My LLMD is a big fan of Cytoquel, but I have not taken it. I have taken the components, though. Curcumin is very helpful.

CBD has been helpful for me in the past in calming what I believe were cytokine storms.
Posted 10/1/2020 4:43 PM (GMT 0)
Good point Saraeli. Curcumin seems to help me the most. I read somewhere to take 500mg 3 times a day. Is curcumin safe to take same time as antibiotics?

I take all my other supplements midday.
Posted 10/1/2020 4:49 PM (GMT 0)
Yes Cytoquel was great!
Posted 10/1/2020 4:50 PM (GMT 0)
That is the amount of curcumin that I take. Not sure about antibiotics, so someone else will have to weigh in on that.

This might be somewhat of a tangent, but I have been thinking about fasting in relation to cytokines. It seems that inflammation of all kinds goes down for people when they fast. Any time I've been dealing with a cytokine storm, a major feature for me is total loss of appetite and difficulty forcing in food. I've been wondering if giving my digestive system a break is what I should have done, rather than trying to force in smoothies or whatever else. Perhaps the inflammation would have subsided more quickly if I'd used an elemental diet or just paid attention to electrolytes and water for a few days, rather than a month or two of trying to force in food. Has anyone tried fasting for this reason?
Posted 10/1/2020 5:00 PM (GMT 0)
"I have read that about Japanese knotweed, too, and I don't really understand. If JK has such great antimicrobial properties, then couldn't it induce a herx and make the cytokine storm worse?"

Japanese Knotweed is only mildly active against spirochetes.. it is more potent vs other bacteria such as streptococci (which I don't think would produce a herx).

In Lyme it is most useful in protecting endothelial cells.. as an anti-inflammatory and cytokine modulator.

Salvia miltiorrhiza (red sage) and Scutellaria baicalensis (Chinese skullcap) are probably the most specific herbs for cytokine remodulation in Lyme (according to Buhner). However, there was a study done recently by Zhang that showed Chinese skullcap as also being a very potent killer of borrelia burgdorferi in vitro
Posted 10/1/2020 7:15 PM (GMT 0)
I used cytoquel for a few years. If I missed a day I could tell. Definitely helped. One of the few supplements that I could tell was helping for sure.
Posted 10/1/2020 9:01 PM (GMT 0)
yep
i second
JK
chinese skullcap
salvia M

also
ECGC and quercetin
cordyceps
Kudzu root
Uncaria Rhynchophilia

the later 2 being especially good for inflammation/cytokines effecting the CNS
Posted 10/2/2020 2:15 AM (GMT 0)
Buhner lists recommendations for stopping a cytokine storm in his book Healing Lyme. My book is in storage, but if anyone else can look it up and list it here, that would be great.

I have been helped by SPM Active by Metagenics. It saved me from a cytokine storm once (4 capsules in a single dose). It’s a high dose of whatever anti-inflammatory property is in fish oil.
Posted 10/2/2020 1:21 PM (GMT 0)
ref Buhners lists

there is a rather comprehensive list taking up a full page of fine print in his second edition page 212

here he lists the herbs that work for each cytokine/chemokine or pathway discussed in the book

its very detailed - but the main ones he recommends that cover most cytokines in Lyme are as above
-Japanese Knotweed root
-Salvia M (red sage, Dan Shen)
-Chinese Skullcap root
-Cordyceps mushroom
Posted 1/6/2023 5:50 PM (GMT 0)

saraeli said...
That is the amount of curcumin that I take. Not sure about antibiotics, so someone else will have to weigh in on that.

This might be somewhat of a tangent, but I have been thinking about fasting in relation to cytokines. It seems that inflammation of all kinds goes down for people when they fast. Any time I've been dealing with a cytokine storm, a major feature for me is total loss of appetite and difficulty forcing in food. I've been wondering if giving my digestive system a break is what I should have done, rather than trying to force in smoothies or whatever else. Perhaps the inflammation would have subsided more quickly if I'd used an elemental diet or just paid attention to electrolytes and water for a few days, rather than a month or two of trying to force in food. Has anyone tried fasting for this reason?

saraeli,

Did you ever try a longer fast for inflammation? or elemental diet for a few days? I agree that fasting helps inflammation. I almost always feel worse after I eat. If I never had to eat that'd be great lol. I've done several 24-36 hour fasts, but never longer. It's hard to stick to them. I guess it's instinct. I fast naturally every day with an non-intentional intermittent fast. I do this because I simply don't have an appetite. I do wonder if a longer intentional fast could have permentant or temporary benefits in regards to the chronic inflammation. I know they do temporarily, but it would be great if it was a permanent benefit.

I hate it because I actively don't look forward to eating. That's a terrible way to go through life but it's my reality.
Posted 1/7/2023 2:13 AM (GMT 0)
I have not done an intentional fast, aside from intermittent fasting. For a few months, my partner fasted 40 hours once per week to decrease chronic pain. It worked for the pain and inflammation, temporarily, but was unsustainable in terms of energy levels and nutritional needs. When I feel worse after eating these days, it's usually a histamine issue because of MCAS. Wish I had more input for you!
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