Body Pain Getting Worse

"Is it possible with Lyme to have so many what seem to be muscle issues around joints in so many places."


I believe so. While my muscle pain wasn't too bad, I did have joint pain in a lot of places.
Elbows, knees, fingers, tailbone (not sure if that has joints)

The infections are systemic...so I think it's reasonable to assume that it would attack many areas at once.

running wild - i'm so sorry you've gotten worse since your treatment at Biologix Center.
I hope they can help you again.
Pain has always been in my top 3 for worst symptoms, so I can understand how this is affecting you.

Astro - Because of you, I now use a tennis ball on my left shoulder blade area...and it does help with the pain and stiffness. (when my husband isn't 'handy' to work on it)

Thanks for sharing your knowledge with us!

Thank you all for your thoughts and experiences. I had a feeling Girlie and astroman would have some thoughts as I have read a lot fo similar symptoms in posts from you both over the years. Your ideas will be utilized by me.

borrelioB - What happened to access to a gym for you? That's too bad. I do workout lightly with eliptical/biike and weights every other day but struggle with migraines when I do often.

I just opened the mold tests I put out five days ago and I was real surprised to see many were clear of mold or had less than 4 mold spots, which ImmunoLytics said means no mold problem. But one was close to positive, and the one from the kitchen was absolutely covered in mold - it had so much it came out of the sealed dish and covered the round container. It is from my kitchen, which is very close to where I watch television and hang out a lot.

I don't know if mold can cause the issues I am experiencing, but I'm sure it has some impact. Maybe that's why I felt better when I spent the time at Biologics going through detox methods, massage, etc... and being away from my kitchen. The irony was the basement (partially finished) was the best area, next to my bedroom.

My thoughts and all those muscle release and trigger point release stuff I’ve mentioned over the years is ......regardless of the cause -the body structure is a bio chemical mechanical system that needs to keep moving like a well lubed engine.

But then I look at it one step further - an engine with a blown oil pump so it just won’t circulate lubrication on its own anymore.

So by using different tools (and there’s a wide variety when you start to think of it ) for pressure on muscle tissue (and even tendons carefully ) , this increases circulation dramatically - there is nothing else that really copies this.

One thing I never tried but if I could still hardly move at all I would try it that’s those new suction devices. They call this cupping. They would work good for large muscle areas but not the joints and tendons that’s where something small like a golf ball works or the end of a Thera cane against the wall or door jam or even the floor.

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Yeah it’s funny when people that never experienced lime or coinfection’s just say just go do yoga ! LOL !!!!!

they don’t understand that you can’t do yoga when your tendons are tight And have limited range of motion it’s like putting a rope on door half open, and trying to open it all the way !

I could not stretch - what got me up to the point of being able to stretch was doing muscle and tendon release and then stretching a little bit after which led to more and more it was a long slow road. Had I not done that I don’t know where I’d be today. It would probably have been way slower recovery that’s for sure and maybe not to the extent to where I am today.

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Keep in mind I also had a lot of impact injuries from various types of motor sports and bicycle racing, Which did not heal correctly years ago from these infections. So I actually loosened up areas with a lot of internal adhesions from years ago , sometimes a couple of decades ago. A couple massage therapist said this is impossible to do ....well I proved them wrong.

In Extreme cases - Some chiropractors that do this stuff ( very very few ) term this as muscle restructuring. Sometimes to break up internal muscle adhesions you actually make the area black and blue re- Injure it and start over stretching letting it heal correctly , and then rebuild it with physical fitness equipment. A person would go broke with the amount appointments needed to do this in difficult cases. I went to quite a few different forms of “bodyworkers , chiropractors, massage therapist, PTS‘s “ ect. learned a little bit here and there from the better ones who were willing to explain to me what they were doing and I also learned some from the Internet. Funny thing is none of them knew all of it they just had their little specialty areas.

running wild said...
borrelioB - What happened to access to a gym for you?

It came with tuition during my college days, where I lived close to the university. I don't live there anymore, I moved after I graduated.

Sorry to hear how bad your symptoms are getting though, I know how it feels.

And hearing the other experiences here, yeah this ongoing persistent infection seems to populate old injuries. One of my quadriceps seems like it is permanently torn or numb, and I wouldn't doubt that I have some sort of incomplete spinal cord injury. And those pains are on top of the usual neck pain and pressure, headaches and migrating joint pains, not to mention the 2 and 3 day post-exertion or eating the wrong food muscle myalgia.

Hopefully, a change in weather might help those afternoon fevers, when it gets cooler in Fall and Winter. And maybe it might have an effect on clearing out the mold situation too. Stay safe and I hope you feel better soon.

Hoping weather can make a difference in how you feel, borrelioB. Some of the symptoms you mentioned I can relate to, especially the headaches. More like migraines. Have started taking a anit-fungal herb Biologix sent and have felt worse. May be a sign.

K07 - The Avise test is supposed to be so much more reliable than older tests. I took it in February and would like to take it again as a follow up ot make sure and, as you mentioned, not worry about autoimmune. The Vectra is not one I have heard of. Will look it up.

I have gone gluten and dairy free about 90%. I slip every once in a while. The dairy is much harder when I use some. How about you? And did you send in any positive mold tests?

That's great about one of your doctors understanding Lyme. Sure makes getting treatment better.

My Avise test showed a -1 for Lupus back in February. That's why I want to have another done - to make sure it is still in - territory. It is a very thorough test.

The house I live in is the one where I grew up. Built in 1962. I have renovated so much of it but used the old kitchen cabinets but had them refaced. I took out everything from under the sink and noticed the wood dark and looked mile mold. I have sprayed it with a cleaner with bleach for now, but I'm thinking the floor has to be taken out and new one put in. Also thinking about having all duct work cleaned. I don't really know what I'm doing, but by today the tests for the rooms by the kitchen looked worse with mold.

Final question, k0. Does it matter what kind of mold it is? That's what throws me. If it is any kind of mold, wouldn't it neeed to be eliminated or are there different type molds that require different treatments? Thanks.

WBF has more experience with this since she’s done an actual remediation. My two cents is that a mold source, ie: water damage should be taken care of. But a few spores of an outdoor mold can be normal. They travel into the house via open windows, pets, or us. Certain molds are more dangerous (really it’s the mycotoxin they give off). We had one spore of a fungi in my daughters room that can cause ringworm. Often can be found on animals. Really, all I can do there is sweep, dust, wash bedding. It’s not from water damage and she doesn’t have ringworm.