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Disulfiram, lyme and dental work

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Posted 11/9/2020 10:20 PM (GMT 0)
I haven’t posted on here much at all lately but I finished up my course of disulfiram early October.

I was feeling quite good, more energy, way less migraines, aches and pains of lyme gone. In other words, I know it’s way early to say the ‘r’ word but you get where I’m going.

In the past, dental surgery has always, always either caused a straight up massive flare or pushed me right out of remission. November 2 I had to get an extensive bone graft in my jaw where I’ve had ongoing issues from cavitations, root canals, all the usual lyme dental crap. It was a lot of bone they had to put in. I’m still recovering and quite sore.

However, and here’s why I wanted to share, I have had zero flare ups of any lyme symptoms at all. Zero migraines, zero joint pain, zero neuro symptoms, just the usual fatigue from healing. I’m a slow healer too so there’s that. I was put on Clindamycin and Septra post surgery and this is the first time I’ve started an antibiotic and not herxed! It’s so weird, I expected to get migraines, and feel terrible. I feared undoing all the good the dsf has done. I had lots of anxiety about this surgery due to past experience.

I wanted to share because I’m a long time lymie sufferer and I’ve found a new level of healing from disulfiram in ways I never thought I’d achieve.
Posted 11/9/2020 10:24 PM (GMT 0)
ChickNorris,

Wow! That’s awesome!!! I am thrilled for you. Thank you so much for sharing this with us. Praying you just keep skipping right on into that ‘r’ place permanently;)
Posted 11/11/2020 8:35 AM (GMT 0)
Great story. Nice to hear the real and full success stories. Thanks
Posted 11/11/2020 9:44 AM (GMT 0)
Awesome!
Posted 11/11/2020 12:20 PM (GMT 0)
That's fantastic! It's thrilling to hear of a long time sufferer having such great results...

Can you please share some specifics about your DSF treatment? Did you take an enteric form or just the regular tablets? What was your max dose and how long were you at max dose? How much do you weigh? Any trouble with side effects?

Thanks!
Posted 11/13/2020 12:46 AM (GMT 0)

potsnpans said...
That's fantastic! It's thrilling to hear of a long time sufferer having such great results...

Can you please share some specifics about your DSF treatment? Did you take an enteric form or just the regular tablets? What was your max dose and how long were you at max dose? How much do you weigh? Any trouble with side effects?

Thanks!

I started in February at 32.5. Worked up very slowly to 250mg in May. It was enteric capsules compounded for me. I’m about 145lbs.
I herxed a lot with each rise in dosage but I started to feel a lot better after I was on my max dose for a month or so. By the end of my treatment I was having more side effects, reacting to almost everything I ate, migraines all the time. I was supposed to have a slow taper but I ended up quitting rather quickly because I wanted to be done. No issues like withdrawals.
Posted 11/13/2020 2:23 AM (GMT 0)
Hey ChickNorris, I actually have been trying to get in touch with you. We see the same doctor and I've been looking at potentially starting an IV combo that you posted about here before. I sent an email to the address in your profile.
Posted 11/16/2020 7:33 AM (GMT 0)

Adam B said...
Hey ChickNorris, I actually have been trying to get in touch with you. We see the same doctor and I've been looking at potentially starting an IV combo that you posted about here before. I sent an email to the address in your profile.

Sorry! I think I got your email near my surgery time and I forgot to respond!
Posted 3/11/2021 4:13 PM (GMT 0)
ChickNorris,

Hey there! I just came across this post again. Hope you are doing great!

This was back in November and you were doing well. Just wondering if things are still good. Are you doing any kind of treatment now, or are you off everything?

What are you doing to maintain health from here on out?
Posted 3/11/2021 6:37 PM (GMT 0)

WalkingbyFaith said...
ChickNorris,

Hey there! I just came across this post again. Hope you are doing great!

This was back in November and you were doing well. Just wondering if things are still good. Are you doing any kind of treatment now, or are you off everything?

What are you doing to maintain health from here on out?

I am doing AMAZING. I am not on any treatment at all. I did a three week course of the peptide, MOTS-C and that seems to have repaired my mitochondria enough to basically get rid of my lingering chronic fatigue. I am working out everyday. Working on building my core back up after years of forced sedentary lifestyle. I’m also able to do cardio everyday with no crash! Just that magical endorphin rush I heard about but never experienced. I used to feel like utter death every time I’d try to work out. I feel so good, I almost can’t believe it. I get teared up during every workout because it’s such a gift.
Posted 3/11/2021 6:43 PM (GMT 0)
ChickNorris,

YEAAAH!!!! I am so happy to hear that!! May you have many more years of health, happiness, and wholeness.

I have heard of peptides but not MOTS-C. Did your doctor recommend the peptide treatment? Where do you get it? Is it expensive?
Posted 3/11/2021 6:59 PM (GMT 0)

WalkingbyFaith said...
ChickNorris,

YEAAAH!!!! I am so happy to hear that!! May you have many more years of health, happiness, and wholeness.

I have heard of peptides but not MOTS-C. Did your doctor recommend the peptide treatment? Where do you get it? Is it expensive?

It was prescribed, made by a compounding pharmacy called Archway Apothecary. I had responded favorably to the peptide BPC-157 in the past for a tendon injury so my dr knew I responded well to injectable peptide therapy. It is rather expensive, I think the MOTS-C was around $500 but IMO well worth it. The lingering fatigue was a real problem and I think contributed to my migraine attacks as well. Since I’ve been able to workout and be more active, I find myself getting less headaches, recovering from them quicker, waking up earlier. Chronic fatigue has such far reaching consequences. Nothing I’ve tried in the past worked well for the fatigue issue. And I don’t know how well the peptide would have worked if I hadn’t been basically in remission.
If I feel that fatigue creeping back in then I absolutely will do another round. It’s one injection a week. First week was a little uptick in energy, second week I was working out every other day, third week it was like my body actually woke up after years of hibernation and now I’m getting the positive feedback from being more active too.
Posted 3/14/2021 11:31 AM (GMT 0)
Thanks for sharing another update and for the info about MOTS-C! Looks like it can be purchased easily online. I may have to try it.. added to the list smile
Posted 4/1/2021 10:04 PM (GMT 0)
So was the dental issue holding back your immune system from being strong?
Posted 4/13/2021 1:59 PM (GMT 0)
Hi,
I had root canal and developed a headache and a few other symptoms, after a while had the tooth removed, and headache remained, neuroligist said it was chronic migraine. Lyme doctor and blood tests said differentely and has put me on antibiotics. First of all i didnt know there was a connection between Lyme and teeth. Who should i see about my jaw, a Maxifacial surgeon maybe.
thanks
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